celebration was a blow out

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sammies
Regular Member


Date Joined Feb 2008
Total Posts : 493
   Posted 2/24/2010 8:40 PM (GMT -6)   
Today marked one year for me and my "little stoma." Although I've been battling 2 weeks of constant gas and tons of output, things were slowing down and firming up today. However, right after dinner, little stoma decided to remind me of her royal presence with a HUGE blowout.

Anyway, I am remembering how scared I was and the numerous questions I had. This board was incredibly helpful and the support i received both before and after the surgery was immense. THANK YOU!!

PS. I hope those of you who were undergoing the surgery around the same time I was--Robin and Wolfie--had a better celebration than I!
24+ years with Crohn's/colitis; fistulizing crohn's; ileostomy and proctocolectomy; TPN, propranolol and xanax; anemia of chronic disease


summerstorm
Veteran Member


Date Joined Aug 2006
Total Posts : 6571
   Posted 2/24/2010 9:20 PM (GMT -6)   
aww just think of it like it was blowing out a candle!
UC for 8 years, before finally kicking its butt and having a permanent ileostomy April 17 2007! 
-I have gone to find myself, if i get back before i return, keep me here-


Equestrian Mom
Veteran Member


Date Joined Mar 2008
Total Posts : 3115
   Posted 2/25/2010 7:08 AM (GMT -6)   
That is too funny summerstorm!!!

Sammies~I cannot believe it has been a year for you...Congratulations (but NOT for the blowout)!!!

I hope life is back to 'normal' for you and you are enjoying it:)
Crohn’s dx 1989
some terrible years before my
Proctocolectomy in 2008


RobinByrd
Veteran Member


Date Joined Dec 2008
Total Posts : 511
   Posted 2/25/2010 7:11 AM (GMT -6)   

Well Happy Anniversary!!!!  I know it probably wasn't an ideal evening, but experiencing the one year mark is such an empowering feeling!  And I agree...the support given from HW was invaluable to myself and my family.  My anniversary was fine physically, but emotionally it a bit of a struggle.  I had a tendency to numb my emotions during my moments of crisis/trauma with the UC and surgeries, so when the anniversary dates came around so did those pesty emotions! 

Sammies, are you living an active life now that you're healthier?  I'm sorry you're struggling with blowouts...I can experience those if I eat certain foods for dinner and go to bed before everything has passed...like scrumptious bean burritos from Taco Bell smilewinkgrin  

What are some of the fun things you've experienced since your surgery?!  I just really like the fact that I can have a social life again, and go for lunch dates with friends and shop till I drop and not have to worry about the nearest bathroom...oh and the whole not being in pain thing is pretty awesome too! cool

smurf 


: )  Robin
 
29 year old Mommy of an amazing 2 year old and Wife for 3 years!
Dx-May 2007 Moderate/Severe Pancolitis - failed all medications
Proctocolectomy w/ permanent ileostomy on 02/06/09!!!
 
"Your mind is like a parachute, it only works when it is open."  -Unknown


sammies
Regular Member


Date Joined Feb 2008
Total Posts : 493
   Posted 2/26/2010 6:55 PM (GMT -6)   
Thanks for the support and responses. I went back to teaching full time in September--my school has been beyond fantastic. The fall and winter were rocky. I was hospitalized 3 times for dehydration. The third time was over Christmas--8 days--and my kidneys took a hit. However, things are good. My kidneys rebounded and it turned out that I need epo to produce red blood cells. Turns out the dehydration was not directly ostomy or crohn's related but b/c of the anemia, the severe lack of red blood cells and the low white blood cell counts too. Crazy! I went on TPN for almost 2 months but was encouraged to eat as much as I wanted. I went from 80lbs in the hospital to 105lbs. Truly, the TPN turned things around.

Things are good and I am thankful. I can finally do stairs and walk around campus, stand while I'm teaching and I can sing again (I'm a music teacher). It has been a slow road. Dehydration is a constant challenge. My marriage went through some ups and downs but we're ok! Hoping to go off to Vegas in a a few weeks. I'm seeing a nutritionist who has been awesome and I'm finally really eating well. Still can't truly exercise--was doing more while recovering from the ostomy surgery--but spring is coming.

THANK YOU for asking!!
24+ years with Crohn's/colitis; fistulizing crohn's; ileostomy and proctocolectomy; TPN, propranolol and xanax; anemia of chronic disease


RobinByrd
Veteran Member


Date Joined Dec 2008
Total Posts : 511
   Posted 2/26/2010 9:38 PM (GMT -6)   

Well, that's exactly what we all want isn't it...something completely different to occur after our bout with CD/UC!?!  wink   Here's a funny...my skin has been really dry this winter, and I haven't been very religious about putting on lotion after I shower, so my shins developed a few little bumps...they itched and I totally wigged out!  My sister has a fairly severe form of psoriasis and it's a genetic, immune disease...so after curing myself of UC, I found that I had developed a paranoia of developing yet another condition!  shocked   I'm such a dork. 

I am really glad to know you're back at work and doing well!  My husband and I had some major and ups and downs as well, and are finally in a good place...thank goodness!

Do tell us more about your journey to Vegas!  I've never been, but have always wanted to go!  cool

Have a nice weekend!

smurf 


: )  Robin
 
29 year old Mommy of an amazing 2 year old and Wife for 3 years!
Dx-May 2007 Moderate/Severe Pancolitis - failed all medications
Proctocolectomy w/ permanent ileostomy on 02/06/09!!!
 
"Your mind is like a parachute, it only works when it is open."  -Unknown

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