Sitz Marker Findings - PLEASE HELP!

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LoveMyYorkie
Regular Member


Date Joined Jan 2010
Total Posts : 24
   Posted 3/1/2010 8:04 PM (GMT -6)   
Hello!

I made it to Mayo and I have to tell you that the clinic is amazing and I feel that I will be well taken well care of here. However, I do have a question for any of you that have taken the Sitz Marker Study. I had mine back in December. All 24 markers remained in my left colon and a few in the sigmoid. The few enteries I have read, stated people had surgery. My dr. here is not committing right now. She clearly stated that my left colon is not working but need to find out why. Many tests scheduled for tomorrow.
 
My question to all of you - what type of follow up was performed on you when you did not pass the markers? Surgery? therapy? Anything would help (possibly) prepare me.
 
Hope this day is a good one for most of you. You are always in my prayers and thoughts. This is NOT fun and we all need support from one another.
 
Thank you in advance!

honestwoman50
Veteran Member


Date Joined May 2009
Total Posts : 833
   Posted 3/3/2010 2:14 PM (GMT -6)   
 
  Hey, well I had one Sitz marker done and then a second one done 2 months later, the first one all the markers were still all in me at the bottom of the colon on the left, the second one the markers were all at the bottom of the right and never did move or come out.
 
Had surgery, total colectomy on Feb 19 and so glad I did because my colon was not working at all... and so far bery happy with the out-come and NO BAG, they reconnected me to my recutm....so that is all I know but keep your chin up and be your own advicate it the best advice I can give you.  If you are not happy with what that doc said, see another, I did mine on my own,  I was not willing to wait a min longer without getting help...so best of luck to you.  Leslie
Leslie King


LoveMyYorkie
Regular Member


Date Joined Jan 2010
Total Posts : 24
   Posted 3/3/2010 2:32 PM (GMT -6)   

Leslie,

Thank you so much for taking the time and sharing your experience.

I agree, you have to be your own advocate. I have been for almost 3 years and that is why I am now at the Mayo Clinic. I couldn't be happier or feel more confident in my doctor (Dr. S. Kane), she is wonderful, kind and willing to listen! I think at some point when all of us have been so sick for so long, we (at least me) begin thinking it must all be in my head and I am making myself feel this way. Then I snap out of it and realize no dog gone it, it isn't me..I really am sick and I will find someone that will fix it! Thank you for reinforcing my strength!

I had several tests run over the last 2 days and meet with Dr. Kane in a couple of hours. She said there was more than one issue happening but clearly, my left colon was not working. I thought then (based on what I have read) that more than likely meant surgery. I am ready for that, if that is the case. I just want me life back and my old self.

I pray that you have a speedy recovery and wish you nothing but happiness and painless days ahead. Take good care of yourself and know that you have a friend in me :) xo

 


suebear
Forum Moderator


Date Joined Feb 2006
Total Posts : 5690
   Posted 3/3/2010 4:08 PM (GMT -6)   
Be sure to rule out immotility of the small intestine. There have been CI sufferers who have had colectomies only to find that their problems were not alleviated because the disorder extended to the small intestine. Bring this up with your doctor.

Sue
dx proctitis in 1987
dx UC in 1991, was stable until 1998

1998 started prednisone, asacol, pentasa, nortriptylene, ativan, 6MP, rowasa enemas and suppositories, hydrocortisone enemas, tried the SCD diet, being a vegetarian, omega 3s, flax, pranic healing, yoga, acupuncture, probiotics

2000 lost all my B-12 stores and became anemic

2001 opted for j-pouch surgery- now living life med-free


ohcountrybear
Regular Member


Date Joined Mar 2009
Total Posts : 192
   Posted 3/3/2010 4:17 PM (GMT -6)   
I think I am one of them Sue. Although it was my doctors idea to do a colectomy, my motility is so low and the stool is so hard to come out, I keep getting obstructions. I go see a new sugeon tomorrow and I know he is going to do a another sitz marker test. I dont know what the answer is but myself, I would rather have my ileostomy back. Am I being silly? Im just tired. I dont mind my appliance but I hate that I am worse with the colostomy than I was with the ileostomy.

Hischildvalda
Regular Member


Date Joined Feb 2010
Total Posts : 175
   Posted 3/3/2010 5:50 PM (GMT -6)   
I had my Sitz Market study done a couple of weeks ago and all markets were left. They were scattered throughout the colon . When I went for the follow up last Friday the gastro doctor decided to add Miralax twice per day to my routine of Ducolas/Fleet/manual disimpaction. So I'm in a holding pattern rather than having more tests.

Please keep us updated.
1999 Fibromyalgia and all the fun stuff that goes with it came to live with me.
 


LoveMyYorkie
Regular Member


Date Joined Jan 2010
Total Posts : 24
   Posted 3/3/2010 11:18 PM (GMT -6)   
I met with my doctor and she said that all of my tests came back normal but that didn't change the fact my left colon isn't working properly. She has me on Miralax 1x per day and a fiber pill (FiberCon) 1x per day. She told me that within 2 weeks I should begin to feel better and that within 6 weeks I should feel like my old self. If for any reason this is not the case than I am suppose to contact her and she will refer me to a dr in NYC that is an expert in motility. She is a colitis specialist - with her focus on women's colitis.

Funny thing..she told me I did indeed have ischemic colitis 2x and the intussuception but did not have ulcerative colitis. In fact, the tests/biopsies they took came back clean - no type of colitis. Go figure. I wish she wasn't so darn far away. I feel scared to a degree if I need a GI dr locally, I really don't know where to turn. If I continue with the way I feel, I will call her.

I highly recommend her if anyone needs answers. Can't say enough good things.

I will continue to watch this site and help where I can. I will also share with you whether or not this works. Maybe if it works for me..it will help others too!

God Bless all of you!

pelztier86
Regular Member


Date Joined Apr 2009
Total Posts : 401
   Posted 3/4/2010 6:15 AM (GMT -6)   
ohcountryohbear,

be sure that you have your rectum checked for rectal dysmotility/inertia which can also cause obstructions even in the more proximal gut since there is no barrier any more (which was previously the colon and the ileoscecal valce) that could compensate the pressure caused by the rectal obstrcution.

Since you were better with an ileostomy it is very likely that you have rectal dysmotility and that's what is making your stool hard and cause constipation (if it is severe enough actual obstrcutions) again.
I know most people and docs can't imagine that the rectum has a major role not only for the defecation but also for the proximal stool transport.

So with an ileostomy I am sure your small bowel would work fine since the rectal obstrcution is not there any more which can cause impaired small bowel transit subesequently to the rectal obstrcution. So it is not a primary, irreversible impaired small bowel motility. I think that this is what mostly happens when people have a colectomy with an ileorectal anastomosis and suffer from constipation again. You also need not have an abnormal defecocraphy and/or a diagnosis of anismus/pelvic floor function since dysmotility of the rectum itself is usually not considered with these tests.

I have small bowel dysmotility as well as rectal dysmotility and in contrast to what most people would suggest with small bowel dysmotility you don't have constant constipation but you alter between constipation/thick output ( I have an ileostomy ) and very liquid stools/output subsequently to bacterial overgrowth which is caused by the slow motility.
sarah

ohcountrybear
Regular Member


Date Joined Mar 2009
Total Posts : 192
   Posted 3/4/2010 10:53 AM (GMT -6)   
I dont have a rectum though, they  made a permanant colostomy. I went today to get the pill for sitz marker study. I go for the xray on tuesday. Boy, those markers are so so small, is there a chance that they can miss them when they look at it.

pelztier86
Regular Member


Date Joined Apr 2009
Total Posts : 401
   Posted 3/5/2010 8:49 AM (GMT -6)   
if you have a colostomy then it means that you have stilkl something of your colon left which is a no-go when you have colonic inertia. It is very likely that the residual colon (even if it is only very little) cause the persistent constipation issues.
Or do you mean an ileostomy? How is your output?

ohcountrybear
Regular Member


Date Joined Mar 2009
Total Posts : 192
   Posted 3/5/2010 9:09 AM (GMT -6)   
Yes, we know the colon is the issue, just not sure how far back. He did a sitz marker test which I have the xray on tuesday. He said that he would prefer cuting out the colon back to the transverse because the left side is not function but he wants to make sure my small intestine is ok so he order the sitz marker before we did surgery. Im not allowed to take any miralax while Im waiting to do the xray, this morning my stool was so hard, a round ball I was trying to get out of my stoma, it hurt so bad, it even has my stoma bleeding. How am I possible going to hold out until tuesday. Im nauseated, Im so sorry Im whining, Im just tired.
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