Update 3 days post reversal surgery :)

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Liveandlearn
Regular Member


Date Joined Aug 2009
Total Posts : 27
   Posted 3/4/2010 6:19 PM (GMT -6)   
Hello all,
I was discharged today (Thurs) after my reversal surgery on Monday March 1st.   Thought I would send you an update with my good news tongue
 
The post op pain was very manageable.  I was given a morphine pump which I didn't need to use nearly as often as would have been allowed.  By the second day I gave it up and switched to tylenol 3s.  I did need those every few hours just to keep the pain level low.  Getting up and walking around was just as useful as the posters on this site said it would be (thus their expert status:).   I did have a lot of gurgling in my stomach and some gas.  Nothing too uncomfortable at all.  On the second day I started having small loose BMs.  I was on fluids only so I still have not had the pleasure of anything formed. Sorry if that's TMI !   I am not having any troubles with leaks or control - yahoooo!  My wound is being packed so that it heals from the inside.  That process is mildly uncomfortable; I would say like having a dressing changed on a skinned knee, nothing more.  I will have a home care nurse do that daily until it's all healed.    Funny thing is that I stepped onto the scale and weight 10 lbs more than when I went into the hospital! What is up with that?  It's not like I have eaten anything but soup and yogurt...  I'll be interested to see how the weight thing plays out over the coming days.  The nurses said I should have an easier time getting my energy back after this surgery compared to the ileostomy placement and bowel resection since this was so minimally invasive.  I hope that's true.  Spring is on the way and there are fun things to do.....like buying jeans and getting out on the mountain  bike scool
I respect the fact that my bag/pouch was critical to my recovery but it is fantastic not to have it any more!!
thanks to all of you for your kind advice over the months leading up to this.  I'll be happy to answer questions from my experience. 
Connie

June 09  - hysterectomy due to pre-C cells on Cvx.  Complications during surgery due to adhesions....resulted in nicked bowel
July 09 - massive infection due to nick. Hospitalized 3 weeks, all antibiotics and drains failed.  Temp Ileostomy placed as last resort.
Jan 4/10 - bowel resection to remove damaged section
Feb /10 - flexible sigmoidoscopy confirmed resection healed perfectly
Feb 5/10 - first follow up to screen for evil pre-C cells, results in 4 weeks
Mar 1/10 - scheduled ileostomy reversal !!!  Yahoo :)
 
June/09 - present...forever grateful for this forum and all members !!
 


Equestrian Mom
Veteran Member


Date Joined Mar 2008
Total Posts : 3115
   Posted 3/4/2010 8:05 PM (GMT -6)   
Sounds like things are going well...keep us posted:) and enjoy the nice weather, I hope it lasts!!
Crohn’s dx 1989
some terrible years before my
Proctocolectomy in 2008


andorable
Veteran Member


Date Joined Jun 2005
Total Posts : 981
   Posted 3/5/2010 12:45 AM (GMT -6)   
So happy for you :-) Glad your doing well.
Keep up the good work

Chasblah
Veteran Member


Date Joined Feb 2007
Total Posts : 788
   Posted 3/5/2010 7:50 PM (GMT -6)   
Good for you! Glad all is going well.
Chassity
28 yrs. old. married with one beautiful daughter (born 11/20/07)
-diagnosed with severe pancolitis u/c 2002 had total colectomy 12/19/08; emergency surgery due to abscess-had to redo ileostomy and switch to left side 12/25/08; 2/15/09 found blood clot in superior mesenteric vein (prob. from inf. and surgery inflammation)
i only take vitamins now, when I WANT to. :)
(temporary ileostomy....maybe)

"Things turn out the best for those who make the best of the way things turn out."


Liveandlearn
Regular Member


Date Joined Aug 2009
Total Posts : 27
   Posted 3/9/2010 5:37 PM (GMT -6)   

Hi all,

I'm adding this update 7 days after surgery.  Maybe I should have started a new topic but there are lots of good threads on reversal right now.  idea

 

In general things are still going well.  I'm having home care daily to pack the wound since they have decided to let this heal from the inside out to minimize the risk of infection.  At least with the reversal surgery there was no new incision; they did it through the hole the stoma poked out of.   The home care nurses are helpful in tracking the progress my bowels are making as they "wake up".  Were it not for the daily nurse review, I think I would have been running back to the doctor because the output is not matching the input...if you know what I mean.  My tummy keeps growing although gas is having no trouble finding its way out, nor is some amount of semi formed poop.  It's scary how bloated I am, way more than from the resection surgery.  But since there is no nausea or swelling, I'm told it will just take a while for things to normalize.   A huge fear is that all this weight will stay -- 15 lbs up since surgery.  But logically it cannot  stay since I am carefully watching my calories and am not topping 1000 per day.  Lord I hope it does not correct itself in one day !!! Ouch :)   

With this surgery I find that my energy level has not taken the nose dive it did with the hysterectomy, ileostomy or resection.   The first two were paired with a huge infection so that makes sense but with the resection I also had the need to sleep 12+ hours per day.  Now, only one week post reversal, I find that my energy is pretty high and consistent.  I do have naps but only for an hour or so and then I can keep moving again.  Now, I have not actually done anything but wash dishes and walk the dog around the block but I can tell the difference.  One silly measure which I use is whether I can dry my hair while standing.  Even 6 weeks post resection surgery I needed to sit down; now I can already stand.  Maybe it's the drugs:  This time I insisted on avoiding Percocet or Oxycodin (sp?) because in my mind I should not need it and I found it hard to wean myself away from.  Instead, I am using Tylenol 3s which perhaps are just as high in narcotic content, not sure.  But I'm only taking them at bed time + first thing in the AM which is much much less than I needed after previous surgeries.    The nurse has advised me to take Senekot which is a natural stool softener to help counterbalance the constipating effect of the Tylenol.  It seems to be working a bit but as I said, the input is way more than the output and that is frustrating.  I'm picturing all kinds of nonsense going on in my bowels as the food groups are mixing and hanging out waiting for a special invitation to move along turn    So...except for some basic discomfort, I am doing very well.  Oh, and I have had no trouble controlling the BMs, even when I had to turn back several blocks into my dog walk.  That is a huge relief, especially after the biggest ileostomy stress being leakage.   Sorry for the long post.   Connie

 

 

 

 


June 09  - hysterectomy due to pre-C cells on Cvx.  Complications during surgery due to adhesions....resulted in nicked bowel
July 09 - massive infection due to nick. Hospitalized 3 weeks, all antibiotics and drains failed.  Temp Ileostomy placed as last resort.
Jan 4/10 - bowel resection to remove damaged section
Feb /10 - flexible sigmoidoscopy confirmed resection healed perfectly
Feb 5/10 - first follow up to screen for evil pre-C cells, results in 4 weeks
Mar 1/10 - scheduled ileostomy reversal !!!  Yahoo :)
 
June/09 - present...forever grateful for this forum and all members !!
 


Collicat
Veteran Member


Date Joined May 2009
Total Posts : 827
   Posted 3/17/2010 9:19 PM (GMT -6)   
Just wondering how things are going...I hope really well yeah

ElliUK
Regular Member


Date Joined Mar 2009
Total Posts : 74
   Posted 3/18/2010 2:27 AM (GMT -6)   
Hi Connie,
 
It sounds like you sre doing really well in your recovery.  I had very bad bloating, and then spasms for the first couple of weeks.  I am 3 weeks out now and both of those have past.  I think its just a normal side effect of bowel surgery.
 
Keep up the positive mental attitude you have and I am sure things will carry on going well for you :)
 
 

Liveandlearn
Regular Member


Date Joined Aug 2009
Total Posts : 27
   Posted 3/21/2010 3:20 PM (GMT -6)   

Hi all,

Thought I would add an update now that it has been 3 weeks since my reversal.  I wanted to be really up beat in this post but I just read about Vette Guy and that is so incredibly sad. 

Now that it's been 3 weeks I am pleased to report that all systems are about 95% back to normal.  I stopped needing any pain meds after 2 weeks.  My bowels have settled into a routine of about 3-4 bms per day.  I am not chained to the bathroom at all and can venture out to live my life pretty much the way I did 9 months ago when my saga started.   I now have the confidence to re-introduce foods I gave up when I had my ileostomy.  Note that I gave up foods I should never have avoided due to bad information upon discharge from the hospital last summer.  Anyhow,  I have so far tried asparagus, pickles, onions - no problems!  Today I bought lettuce for the first time in so long; fingers crossed that it does not shoot through me.   I've been keeping the staples in my daily routine: cherrios, yogurt, melba toast, soft cheese, turkey slices.  Peanut butter is always a good insurance policy when I know I'll be away from a bathroom but I really don't worry about it anymore.  

The swelling is going down but my clothes are still tight.  I'll have to keep a close eye on the calories to make sure I'm not contributing to keeping the weight one.  I'm going back to work full time tomorrow so I won't be grazing as much as when I was at home.  The trick seems to be eating several small meals just like they tell you at the hospital.  I messed up a bit in week 2 because I was just so hungry. I ate meals which were probably ok for normal people but too large for just being post-reversal.  That caused extreme bloating followed by hours chained to the bathroom.  I'm not sure how smart it was but I just stopped eating for 24 hours and then re-introduced foods very slowly.  Since I did that, it's been a walk in the park.  I'm grateful to have had the ileostomy in the sense that it allowed me to survive a massive infection, but I am equally grateful to be rid of the bag.  The wound care is also going well; it looks like it will take another 3 weeks or so for it all to fill in.  Then I will be cleared to hit the gym. 

Life is getting back to normal in every way.  My energy level is just great and I'm sleeping through the night!! Could never do that with the bag because I had huge output at night.  So all in all I should say that it's incredible to be so fully recovered only 3 weeks post reversal.  I see my surgeon in 2 weeks and I expect to be told I'm all "done" with this experience.  But I will be taking in a short list of things which I want him to tell all new ileostomy patients in the very early days.  Some are from my experience and some are from all the good advice on this forum.  Don't laugh, but the #1 thing is that the green smelly goo which you get in the first  7-10 days is NOT permanent.  No one told me that and it caused me to be brutally depressed in that first week.  I had enough to deal with and did not need to the goo factor on top of it all.  

Hugs to all and know that I am forever grateful for your help. 

Connie

 

 


June 09  - hysterectomy due to pre-C cells on Cvx.  Complications during surgery due to adhesions....resulted in nicked bowel
July 09 - massive infection due to nick. Hospitalized 3 weeks, all antibiotics and drains failed.  Temp Ileostomy placed as last resort.
Jan 4/10 - bowel resection to remove damaged section
Feb /10 - flexible sigmoidoscopy confirmed resection healed perfectly
Feb 5/10 - first follow up to screen for evil pre-C cells, results in 4 weeks
Mar 1/10 - scheduled ileostomy reversal !!!  Yahoo :)
 
June/09 - present...forever grateful for this forum and all members !!
 


Ileostomyfree
Regular Member


Date Joined Mar 2010
Total Posts : 23
   Posted 3/31/2010 9:59 PM (GMT -6)   
Hi Connie,
You just made my night!!!! I'm 5 days post op from my ileostomy reversal. You sound just like me:) I'm very happy to have the bag gone but now just dealing with my first day of living in my bathroom. If I may ask..how long did it take you until you weren't tied to your bathroom. I'm not sure if my 18 trips to the bathroom today was because my dr. office told me to take milk or magnesia (since I hadn't had a bm since my surgery on March 25th. I'm praying that it was the milk of magnesia and not going to be the norm. I, like you am feeling great. Just knowing that I can go to bed worry free about bag leakage is a good thing.
I am soooo happy to hear your great progress and it gives me hope for myself. My belly is also swollen and like yourself I'm not eating that much. The visiting nurse said that would take awhile to settle down. I remember with my first surgery (i've had 5 surgeries in 8 months)...I came home from hospital and had gained 9 lbs. I also wondered, what the heck is this all about, lol!!! My gain was from all the liquids that were pumped into me. It took a month to get back to my normal weight.
I would love to hear from you again to see how your progress is going. Much luck and prayers to you. Enjoy the nice weather and enjoy your newfound health. xoxo Eileen

Collicat
Veteran Member


Date Joined May 2009
Total Posts : 827
   Posted 4/1/2010 7:57 AM (GMT -6)   
Connie....Wonderful news...Here's to a healthy life!...enjoy it!

Cathy

Liza D
Regular Member


Date Joined Apr 2009
Total Posts : 166
   Posted 4/1/2010 9:27 AM (GMT -6)   
Way to go!!!! That is great! congratulations!!! :)
UC (Pancolitis... 90%!) December 2001
Arthritis (2003)
Upper GI Ulcer (2006)
Osteopenia (2008)
Depression/Anxiety (2002)
J-Pouch May 2009/ Reversal November 2009/ Fistula correction March 2010

Check out my blog: shlookshlies.blogspot.com/

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