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pam222
Veteran Member


Date Joined Jun 2009
Total Posts : 985
   Posted 3/14/2010 5:25 PM (GMT -6)   
My incisions haven't hurt in weeks, and now the past few days I am in terrible pain. Whenever I bend, sneeze, throw up, walk too much, it is a bad burning pain and feels like the early days when it feels like you might pop staples or something. It's also very tender to the touch. It's been since January 9th since I've had those incisions opened. I know I have a lot of scar tissue, as they had to open the same large incision for 3 of my surgeries, but is it normal to have no pain and then suddenly have bad pain again? Of course I have no more pain meds or anything to take for it.
26 year old female
Diagnosed with unspecified UC 11/08 (symptoms for over a year before)
Asacol, Prednisone, Remicade with no success--no remission for over 2 years
8/09 colonoscopy shows that the whole colon is affected
12/18/09 First part of J-Pouch surgery; recessed stoma
12/30/09 Second part of J-Pouch surgery too soon; RV fistula
1/9/10 Second Ileostomy Surgery with sparing of the J-Pouch
1/25/10 Stoma Revision Surgery and Fistula Repair
4/10 Going to try to go back to the J-Pouch again
Imodium (8/day), Questran (3/day), TPN 12 hours/day, IV fluids 4 hours/day


Equestrian Mom
Veteran Member


Date Joined Mar 2008
Total Posts : 3064
   Posted 3/14/2010 6:25 PM (GMT -6)   
Mine hurt, on an off, for many months post op...if it is bad enough to need pain meds you should check with your doc. Would Tylenol work?
Crohn’s dx 1989
some terrible years before my
Proctocolectomy in 2008


pam222
Veteran Member


Date Joined Jun 2009
Total Posts : 985
   Posted 3/14/2010 6:32 PM (GMT -6)   
It's pretty painful. im just sitting here right now and it's hurting pretty bad. My doctor is out of town until Wednesday. If it's still painful then I will call him.
I just asked me husband to grab me some Tylenol so I'll see if that works
26 year old female
Diagnosed with unspecified UC 11/08 (symptoms for over a year before)
Asacol, Prednisone, Remicade with no success--no remission for over 2 years
8/09 colonoscopy shows that the whole colon is affected
12/18/09 First part of J-Pouch surgery; recessed stoma
12/30/09 Second part of J-Pouch surgery too soon; RV fistula
1/9/10 Second Ileostomy Surgery with sparing of the J-Pouch
1/25/10 Stoma Revision Surgery and Fistula Repair
4/10 Going to try to go back to the J-Pouch again
Imodium (8/day), Questran (3/day), TPN 12 hours/day, IV fluids 4 hours/day


suebear
Forum Moderator


Date Joined Feb 2006
Total Posts : 5378
   Posted 3/14/2010 7:09 PM (GMT -6)   

Pam,

Might the pain be adhesions that you are feeling?  I remember having minor adhesion pain that would come and go, especially when I was in aerobics class.  Mine eventually subsided and now rarely get a pinch feeling.

Sue


dx proctitis in 1987
dx UC in 1991, was stable until 1998

1998 started prednisone, asacol, pentasa, nortriptylene, ativan, 6MP, rowasa enemas and suppositories, hydrocortisone enemas, tried the SCD diet, being a vegetarian, omega 3s, flax, pranic healing, yoga, acupuncture, probiotics

2000 lost all my B-12 stores and became anemic

2001 opted for j-pouch surgery- now living life med-free


pam222
Veteran Member


Date Joined Jun 2009
Total Posts : 985
   Posted 3/14/2010 7:50 PM (GMT -6)   
I don't know.
My surgeon just happened to call me (he's such a nice guy he calls at 830 on a Sunday night while out of town "just to check up" on me). We were originally going to do the takedown again on Tuesday but he has to go out of a town a few days later and he decided he just doesn't feel comfortable leaving me so soon after surgery and really wants to monitor me closely himself and not leave me to his partners. He still wants me to come in Tuesday, though. he's going to put me to sleep and have a thorough look to see if he can find the fistula. If he can, he's going to try a repair through the vagina. Then I would stay overnight and have to wait longer before getting rid of the ostomy. If he can't find it, we will have the surgery in early April.

about the incisional pain, he said it's pretty late to have an infection but said something about the sutures dissolving and causing pain and the muscles pulling. He said he will check it out on Tuesday but it's probably normal
26 year old female
Diagnosed with unspecified UC 11/08 (symptoms for over a year before)
Asacol, Prednisone, Remicade with no success--no remission for over 2 years
8/09 colonoscopy shows that the whole colon is affected
12/18/09 First part of J-Pouch surgery; recessed stoma
12/30/09 Second part of J-Pouch surgery too soon; RV fistula
1/9/10 Second Ileostomy Surgery with sparing of the J-Pouch
1/25/10 Stoma Revision Surgery and Fistula Repair
4/10 Going to try to go back to the J-Pouch again
Imodium (8/day), Questran (3/day), TPN 12 hours/day, IV fluids 4 hours/day


summerstorm
Veteran Member


Date Joined Aug 2006
Total Posts : 6564
   Posted 3/14/2010 9:25 PM (GMT -6)   
i had that happen too, for about 6 months or so,just random pains, its those muscles going back together and getting stronger.
UC for 8 years, before finally kicking its butt and having a permanent ileostomy April 17 2007! 
-I have gone to find myself, if i get back before i return, keep me here-

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