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summerstorm
Veteran Member


Date Joined Aug 2006
Total Posts : 6571
   Posted 3/14/2010 8:40 PM (GMT -6)   
We have a lot of people on here right now who are fixing to get their ostomies, i thought it would be good to list some of the little things, the ones noone thinks of, that we are grateful for post surgery.  Everyone thinks of being able to eat whatever and go whereever, but some of these things are just as important to me, even though they seem silly!  So i'll start
 
I have fingernails that grow and dont break!!!  the whole time i was sick they were so thin and brittle and ugly, after i had surgery i started getting nails put on so i didnt notice, but i quit doing that a while back and after my nails grew back out from that, they are healthy and strong now!  WOO HOO!!!
 
Oh and my hair quit falling out and i had to get it thinned!  That was amazing, first time in years i have done that!
UC for 8 years, before finally kicking its butt and having a permanent ileostomy April 17 2007! 
-I have gone to find myself, if i get back before i return, keep me here-


Equestrian Mom
Veteran Member


Date Joined Mar 2008
Total Posts : 3115
   Posted 3/15/2010 5:12 AM (GMT -6)   
I've been able to put weight back on (maybe too much!!) and I am no longer freezing all the time :-)

My hair actually grows too fast~I am NOT complaining~and doesn't fall out smilewinkgrin

But the most important one is that I can be the BEST MOM to my daughter!!!
Crohn’s dx 1989
some terrible years before my
Proctocolectomy in 2008


80sChick
Veteran Member


Date Joined Oct 2009
Total Posts : 1054
   Posted 3/15/2010 7:34 AM (GMT -6)   
Thank you for this post, Summerstorm! I really look forward to reading all the replies.
 
My hair has been falling out HORRIBLY for the past few years and it's so bad now that I actually have wigs. I have high hopes that once I've recovered from surgery and can eat something and get off these steroids that I might get my hair back...that is priceless.
Stephanie, 28 years old
Diagnosed with Crohn's Colitis March 2000
Possible diagnosis of IBS-D
 
Tried Meds: Asacol, Remicade, 6mp, Humira, Xifaxan, Apriso, Imuran, Rowasa Enemas, Colocort Enemas.
 
Tried Probiotics: Align (with no change except bloating) and VSL #3 DS (AWFUL diarrhea).
 
Currently on: 40mg Prednisone (Been on it since June '09...get me off!!), Psyllium Seed Powder, Prenatal Vitamin, Vitamin B 12 Complex, Vitamin D, Calcium, Vesicare (for urinary retention). 


pam222
Veteran Member


Date Joined Jun 2009
Total Posts : 985
   Posted 3/15/2010 8:25 AM (GMT -6)   
Something about this whole thing has made me less self conscious about my body. I haven't been swimming in years (I can't even remember when) because I was always too embarrassed to wear a bathing suit. I don't care anymore and can't wait until I am able to go again and am going to look at bathing suits probably this week.
26 year old female
Diagnosed with unspecified UC 11/08 (symptoms for over a year before)
Asacol, Prednisone, Remicade with no success--no remission for over 2 years
8/09 colonoscopy shows that the whole colon is affected
12/18/09 First part of J-Pouch surgery; recessed stoma
12/30/09 Second part of J-Pouch surgery too soon; RV fistula
1/9/10 Second Ileostomy Surgery with sparing of the J-Pouch
1/25/10 Stoma Revision Surgery and Fistula Repair
4/10 Going to try to go back to the J-Pouch again
Imodium (8/day), Questran (3/day), TPN 12 hours/day, IV fluids 4 hours/day


Allison77
Regular Member


Date Joined Feb 2005
Total Posts : 421
   Posted 3/15/2010 9:58 AM (GMT -6)   
^ exactly what Pam said. I too couldn't go swimming, just not close enough/able to get to a washroom quick enough. Went to Aqua Fit last week and even sat in the hot tub after, first time in years I've been able to get into a pool comfortably.
A big one for me has been, I am now able to eat/drink in the car. I take my travel mug full of green tea EVERYWHERE. I was never able to do that as food/liquid brought on the poops.

-Allie
www.oscartheostomy.blogspot.com
-Allison
RX Crohn's 1999, over 30 surgeries, 3 strokes, permanent colostomy and rectum removal.
 
"The most unfortunate thing that happens to a person who fears failure is that he limits himself by becoming afraid to try anything new."


Trigirl
Veteran Member


Date Joined Jan 2006
Total Posts : 768
   Posted 3/15/2010 3:31 PM (GMT -6)   
I can go for a run. Got so sick could not run at all for a few years.

I only have to get up in the night once to empty bag and sometimes I'e slept 6 hours!

My family says I am nicer. I know they are right but I was trying before.

I'm not afraid to wear white pants this summer. Just have to make sure I have the leak thing better controlled.

I don't have to sit at the exit in the movies so I can get out all the time. I sat thru Avatar without a problem this weekend.

I don't mind cooking so much because now I can eat some of it!

I could go on but will let someone else have a turn. Hugs to all!!
Those things we keep trying to do get easier not because the feat gets easier but our ability to "do" gets better.
Thyroid cancer removed 1988
Stomach problems finally figured out 2001 Crohn's/Colitus
Tried every drug without much success
Colon/rectal cancer removed Aug 2009
6 Grown kids, grandkids and a great husband to keep me busy


J's Mom
Regular Member


Date Joined Oct 2008
Total Posts : 109
   Posted 3/15/2010 7:45 PM (GMT -6)   
I don't have the ostomy, but my handicapped son does.

It has given me back my happy little guy that sings all the time, follows his Daddy all over the house and is always wanting to eat by telling us "there is always room for jello". Life is GOOD !!!

(When he was so sick with his UC we tried everything to try to get him to eat. Seemed jello was one thing we could get him to eat and also get some liquids in him that way. His Daddy would always tell "Come on J, there is always room for jello". So now whenever he wants to eat that is what he tells us:)
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