I want to get my problems across quickly so bare with me if this post sounds a bit blunt.
I need to know what my options are.
My rectum or illieum or whatever is making me feel like I got razor blades stuck my my ass.
Been on Remicade for a year now. No sign frm blood work of active disease.
CT scan results - no signs of fistulas or strictures or anything like that.
I am at about
15+ BM's a day. Anemic - very tired, and get headaches lots too.
Not eating barely anything anymore therefore loosing weight. 100lbs soaking wet.
in 1998 I had an ostomy for about
a yr. and it was hell. I hated it!!!
the stoma was not out far enough and I started to get lots of leakage and it started to eat away at my skin.
it was abosolutey horrible!!!!
I am in fear that going back to an ostomy is my only other option.... ??????
And I so don't want to experience that again. My butt needs to heal though ... it is so sore ... I have used so many creams and ointments and its just not enough!!! I am dying to get answers!!! Where do I go from here.
I have a nasty scar from the ostomy before...
Can they do an ostomy [bag] when I have the j-pouch??
What is the process, I can't be the only one out there like this.
33 yr. old female CANADIAN
dx with UC October 1998
had temp j-pouch: '98-'99
disease free & back to norm: '99-'07
dx. with CD March 2009
Currently taking: Remicade mthly & Imarun
In my next life: I want to be a big beautiful oak tree or something like that... so I can live off of just sunshine and water.