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anonymuswi
New Member


Date Joined Mar 2010
Total Posts : 7
   Posted 3/21/2010 6:59 PM (GMT -6)   
Wow! I just joined this forum and i cant believe how many people suffer from similar problems. im amazed doctors dont take us all seriously. im a 26yo female suffering from chronic constipation and all the pain and emotional agony that goes with it. i really wish i would have found this site sooner as ive been trying to get help since i was in high school. although my problem stems as far back as i can remember.
 
i have finally found a doctor that takes my problem seriously and has been doing all he can to help me. ive been seeing him for 2 and a half years and after many many tests, treatments, and therapies im finally meeting with a surgeon this week to discuss a subtotal colectomy. i have definitely been diagnosed with high tension pelvic floor dysfunction, but i do believe theres a much bigger problem as ive been doing the physical therapy route for months and months with absolutely no progress. my therapist told me she would definitely be able to fix my problem, but since that hasnt happened im finally getting to take the next step. i consider myself very lucky to get the option of surgery as every colonic test ive taken has come back "normal". and im sure many of you know how frustrating it is to be told youre normal when youre clearly not. and then you start to think youre crazy :)
 
i just look forward to maybe getting the opportunity to see what its like to live life without the constant pain and emotional toll this problem provides me with.
 
i truly wish that EVERYONE who is suffering gets the help they need and deserve. if we all keep pushing forward to find someone who will listen, our voices will become loud and hopefully future sufferers wont have to go through all the rejection from doctors regarding a very REAL problem. anyone who doesnt go through it cant understand. so we have to try to get them to understand.
 
D

flchurchlady
Veteran Member


Date Joined Jul 2007
Total Posts : 2765
   Posted 3/22/2010 5:38 PM (GMT -6)   
Welcome! I'm so glad you found us (and a doctor who will listen!) :-) Good luck with your appointment this week. Please let us know how it goes!

Take care,
Cecilia
Dx'd Crohn's in '99 at age 28. Proctocolectomy and permanent ileostomy in '06.
Disease-free and medicine-free since surgery and very thankful to be healthy again.


Equestrian Mom
Veteran Member


Date Joined Mar 2008
Total Posts : 3115
   Posted 3/22/2010 8:46 PM (GMT -6)   
welcome, too! Have you read the "total colectomy" thread yet? They are a group who've been through roads to dx:( Glad you found us!!
Crohn’s dx 1989
some terrible years before my
Proctocolectomy in 2008


answers4me2
Veteran Member


Date Joined Dec 2008
Total Posts : 1325
   Posted 3/23/2010 8:09 AM (GMT -6)   
Your transit marker test was normal? What do you mean by constipated? Hard, infrequent bm's, or many divided moves, or do you feel like you can't "get it out"?

honestwoman50
Veteran Member


Date Joined May 2009
Total Posts : 833
   Posted 3/23/2010 11:02 AM (GMT -6)   
anonymuswi
     Hello D, and welcome to the best family around.  What is wrong with you and what kind of tests are showing that you need a subtotal colectomy?  Just curious, we are all here to help you with whatever you need...This site saved my live and helped me diagnose my own problem and hopefully it will do the same for you.
 
Leslie
Leslie King
 
 1984 Tubligation
1992 Diagnosed with Thyroid tumor, has to come out, but not till I am darn good and ready,  its not bothering me so .....18 years later I still have it.....
1993 Gallbladder Removed
1997 Hysterectomy
1998 Carpol Tunnel Right Hand
1999 Spinal Cord Surgery for a Anacroid Syst
2001 Lower Lumbar Fusion L4-5
2003 Sigmoid Colon Resection
2005 Breast Reduction
2006 Right Knee Replacement
2008 RE-did the Lower Lumbar Fusion/ lamanoctomy
2010 Total Colectomy diagnosed with CI
 
 
 


sarahann
New Member


Date Joined Jan 2010
Total Posts : 11
   Posted 3/24/2010 4:44 PM (GMT -6)   
anonymuswi...are you in Wisconsin? I am a 25 yr old female in WI suffering through a similar situation. My doctors are considering a colectomy as well.

anonymuswi
New Member


Date Joined Mar 2010
Total Posts : 7
   Posted 3/24/2010 5:56 PM (GMT -6)   
yes im in wisconsin. madison to be exact :)
 
as far as my history goes...constipated since forever. only ever went once every 7 days or so and it was very hard. started taking laxatives occassionally in high school (my mom has had constipation problems since before i was born). saw 2 doctors who told me to drink more water, exercise, eat more fiber, blahblahblah. well that never worked. i started using otc laxatives to produce a bowel movement every 4-5 days. that worked well for a while.
when i was 19 the pain started in. excruciating abdominal pain. mostly in the lower left area, but occassionally it was my entire abdomen. so painful i couldnt even walk (when it was at its worst). the first time i experienced the pain i went to the hospital thinking that something inside me burst and i was dying. they took xrays. found nothing wrong. told me not to eat late at night.
suffered on my own until i was 23. my gyno took a medical history and sent to me a specialist. she was the first person to acknowledge that this severe constipation isnt normal.
the new doctor diagnosed me right away with ibs. gave me miralax. it worked really well for a couple months. the pain and bloating was still present (but less severe), but i was at least pooping. eventually the miralax stopped being effective and i was told to take more along with amitiza. that didnt work. it was a rollercoaster of all kinds of rx laxatives for quite a while. he even put me on a super low dose of amytriptyline for a bit since he said it can help people in rare instances. ive had blood tests for everything from allergies to celiac disease and everything in between. so many xrays i couldnt even tell you. sitzmarker test, sigmoidoscopy, rectal biopsy to test for hirshsprungs, ct scan, anorectal manometry. and im sure im missing something, but its been a long ride. everything but the manometry test came back normal.
so i was diagnosed with high tension pelvic floor dysfunction and sent to a physical therapist for internal releases as well as external therapy. my therapist has tried EVERYTHING she can think of. i was seeing her once a week. she had me stop exercising- because it increases tension. i was taking valium suppositories every night and had to give myself an enema every morning. still i would only go to the bathroom if i took an insane amount of otc laxatives. she was probably the person who was most against me having surgery. she swore she could fix me. but at our last appointment she even admitted that maybe surgery is the right choice for me as everything else has completely not responded.
i met with the colorectal surgeon today and he says he thinks im going to be a candidate for surgery. i still have another appointment with him in the near future. hes going to thoroughly review my whole history to make sure nothings been missed. i really hope that this is the year i get better.
ok i really didnt realize how long this was. but i swear its the condensed version! :)
D

honestwoman50
Veteran Member


Date Joined May 2009
Total Posts : 833
   Posted 3/24/2010 6:02 PM (GMT -6)   
anonymuswi
Gosh, you sound like so many of us...have you had a sitz marker test, if not have one done and that will tell you if your colon is working properly.  I hope you get the help you so desperately need...
 
 
Leslie
Leslie King
 
 1984 Tubligation
1992 Diagnosed with Thyroid tumor, has to come out, but not till I am darn good and ready,  its not bothering me so .....18 years later I still have it.....
1993 Gallbladder Removed
1997 Hysterectomy
1998 Carpol Tunnel Right Hand
1999 Spinal Cord Surgery for a Anacroid Syst
2001 Lower Lumbar Fusion L4-5
2003 Sigmoid Colon Resection
2005 Breast Reduction
2006 Right Knee Replacement
2008 RE-did the Lower Lumbar Fusion/ lamanoctomy
2010 Total Colectomy diagnosed with CI
 
 
 


Allison77
Regular Member


Date Joined Feb 2005
Total Posts : 421
   Posted 3/24/2010 6:20 PM (GMT -6)   
Im so happy you found us D!!! Hopefully some members can shed some light on your problems and we will all help you in your journey to health!!!!

-Allie
RX Crohn's 1999, over 30 surgeries, 3 strokes, permanent colostomy and rectum removal.
 
"The most unfortunate thing that happens to a person who fears failure is that he limits himself by becoming afraid to try anything new."

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