ileostomy and gassy feeling

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esoR
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   Posted 3/22/2010 11:06 PM (GMT -6)   
Do other ileostomates have a bloated gassy feeling even if all is moving along OK and there are no problems?

Is the idea of 6 little meals a day to prevent air build up in the intestines by always keeping a little food and drink in there?

I've had my ileo for 2 and a half years now and still haven't figured out how to eat and when to eat. The what to eat is a work in progress.

Thanks, Rosemary

No underlying disease; have ileo due to a gut injury.

Allison77
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Date Joined Feb 2005
Total Posts : 421
   Posted 3/23/2010 3:21 PM (GMT -6)   
I get gas pains occasionally that are so severe I have to stop what Im doing. I'll eat things that are fine one week, but give me gas the next. I realized it only happens if I miss a work-out or swim. I think maybe my body has grown accustomed to being more active and I need to keep it up or suffer the consequences...LOL.

-Allie
RX Crohn's 1999, over 30 surgeries, 3 strokes, permanent colostomy and rectum removal.
 
"The most unfortunate thing that happens to a person who fears failure is that he limits himself by becoming afraid to try anything new."


esoR
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Date Joined Jan 2007
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   Posted 3/23/2010 3:24 PM (GMT -6)   
Thanks Alison. How often do you eat? Were you told small amounts frequently v.s. normal amounts 3 x per day. Do you drink with meals or do you separate solids and liquids? I was given these instructions first off and followed them. Then I got into my own habits. Which do you do? Thanks, ROsemary

Equestrian Mom
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Date Joined Mar 2008
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   Posted 3/23/2010 5:18 PM (GMT -6)   
Do you use a straw? Or, talk while eating? Those two can add a lot of air into your system:( I found that I was sleeping with my mouth open and that was a huge culprit for me!

I was instructed to eat small meals more frequently and that does help keep the gas down since my stomach is working to push food through, not just working for nothing. I also don't drink a lot...more for what my body needs for that individual day (I don't have a set amount of fluids I must drink) since I get a good amount from the foods I eat.

My biggest change is that I've eliminated processed foods (not totally, but a large amount) and eat mostly fresh fruits/veggies, minimally processed poultry/beef and sprouted breads. I haven't had much excess gas and my output is as thick as if I was taking extra fiber or Imodium!

I've been trying to figure things out for 10 years...so don't feel bad!
Crohn’s dx 1989
some terrible years before my
Proctocolectomy in 2008


esoR
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Date Joined Jan 2007
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   Posted 3/23/2010 7:15 PM (GMT -6)   
Ohio76,

Thanks. I DO sleep with my mouth open AND I catch myself mouth breathing during the day too. You are brave getting the effluent so thick; I would worry about a clog. I once clogged on only mashed potato, so I eat lightly. I don't use straws or chew gum or eat gassy foods. Oops but I do a moderate amount of sugar, maybe that's it? If I don't drink a ton, the effluent can get thick.

WOW 10 years! You're doing great. So this is a learning curve right? And the learning just sort of keeps going?

Thanks, Rosemary

Allison77
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Date Joined Feb 2005
Total Posts : 421
   Posted 3/23/2010 9:59 PM (GMT -6)   
Rosemary,
I wasn't given any restrictions at all. I eat everything I want, and drink what I want, when I want. I have however made a few changes to my diet because I just don't like how I end up feeling. No more carbonated beverages...AT ALL...this includes pop, alcohol and  fruity fizz drinks. I don't eat cabbage (hard for this German, sauerkraut is a staple!) or onions or pineapple. No two bodies are exactly alike - the foods that give you gas may be ok for others. Also, two servings of a specific food may cause gas (such as diary due to lactose intolerance), whereas a half-serving may not. A good way to figure out what foods are increasing your gas is by keeping a food diary. Write down exactly what you had to eat during each meal, and when gas occurred. You should soon be able to identify the culprits. Eliminate one food at a time, so you can be sure it's that particular food. After you're sure a certain food causes gas, play around with the amount of that food you eat. You may be able to eat a certain amount of it without suffering from gas.
As to liquid intake while eating, I drink lots of water all the time, even when eating. I understand drinking fluids introduces air into the system, hence us becoming more prone to gas, however I haven't experienced any ill effects from drinking while eating.
Hope this helps!!
-Allie


RX Crohn's 1999, over 30 surgeries, 3 strokes, permanent colostomy and rectum removal.
 
"The most unfortunate thing that happens to a person who fears failure is that he limits himself by becoming afraid to try anything new."


esoR
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Date Joined Jan 2007
Total Posts : 4147
   Posted 3/24/2010 7:45 AM (GMT -6)   
Hi Allie,

Thanks. Appreciate all the tips. I will start with the food diary. Good idea. Loved your humor about the German having to give up that food you mentioned. Oh, well, least we CAN eat what we can. :-) Thanks again, Rosemary

esoR
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Date Joined Jan 2007
Total Posts : 4147
   Posted 3/24/2010 1:20 PM (GMT -6)   
Allie,

Just another question. When my ileo was new, I would eat and what I ate appeared in the bag in about 15 minutes or less. Now I can eat something and not see it for about 3 hours. (Easy test to do, I just drink some tomato juice or eat something red).

I know that as our bodies adapt to not having the use of the colon, the small intestine does slow down. However, is this "normal" slow or too slow?

Thanks, ROsemary

Allison77
Regular Member


Date Joined Feb 2005
Total Posts : 421
   Posted 3/24/2010 6:03 PM (GMT -6)   
Rosemary,
Im still all very new to the entire "ostomy" world, but I do think that the time frame you mentioned sounds reasonable. Perhaps ask some of the members who have ileo's their thoughts and ideas? I have a colostomy and it takes a LONG time from mouth to pouch. I would be concerened if it was passing through you immed. or "shudder" not at all!

-Allie
RX Crohn's 1999, over 30 surgeries, 3 strokes, permanent colostomy and rectum removal.
 
"The most unfortunate thing that happens to a person who fears failure is that he limits himself by becoming afraid to try anything new."


summerstorm
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Date Joined Aug 2006
Total Posts : 6571
   Posted 3/24/2010 6:56 PM (GMT -6)   
I have had my ileo almost 3 years now, and different things come through at different times! like if i eat carrots or lettuce,they are out in 30 minutes. Other things take hours. And it also depends on the time of day i eat them
Allie-a suggestion for pineapple, this is gross so only do it at home, eat the parts that are easy to chew, and spit the rest out! I usually end up spitting out about half a piece when i eat it. And only swallow the soft part, andthen i dont have a problem.
UC for 8 years, before finally kicking its butt and having a permanent ileostomy April 17 2007! 
-I have gone to find myself, if i get back before i return, keep me here-


esoR
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Date Joined Jan 2007
Total Posts : 4147
   Posted 3/24/2010 7:08 PM (GMT -6)   
Thanks Allie, Thanks summerstorm,

I have not eaten regularly for 5 days due to an intense project I was into. I did just have some cereal and some gas passed with a bunch of effluent. Maybe I have air in my intestines from being so hungry. Rosemary

summerstorm
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Date Joined Aug 2006
Total Posts : 6571
   Posted 3/24/2010 9:49 PM (GMT -6)   
oh yes being hungry makes it MUCH worse, never let yourself get hungry! It never fails, if i get hungry, as soon as i put something my mouth the gas starts!
UC for 8 years, before finally kicking its butt and having a permanent ileostomy April 17 2007! 
-I have gone to find myself, if i get back before i return, keep me here-


Allison77
Regular Member


Date Joined Feb 2005
Total Posts : 421
   Posted 3/25/2010 1:09 PM (GMT -6)   
I love pineapple, it dosen't give me gas, what happens..and im sorry everyone, this is going to be very graffic.....is the string bits get caught in Oscar, half in/half out of the stoma. I have to use tweezers (the big plastic kind) and pull them out. So gross. I think I'll try the chewing then spitting out. That way I get the flavour and none of the effects!! brilliant!! *hugs to summerstorm*

-Allie
RX Crohn's 1999, over 30 surgeries, 3 strokes, permanent colostomy and rectum removal.
 
"The most unfortunate thing that happens to a person who fears failure is that he limits himself by becoming afraid to try anything new."


esoR
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Date Joined Jan 2007
Total Posts : 4147
   Posted 3/25/2010 2:03 PM (GMT -6)   
WOW Allie, way to go on that description. :-) You are brave to even look at a pineapple in addition to all the after effects. :-) I think chewing and spitting out might be a plan. You gave me a laugh. Thanks, Rosemary

summerstorm
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Date Joined Aug 2006
Total Posts : 6571
   Posted 3/25/2010 6:52 PM (GMT -6)   
what was happenign to me with pineapple was, it was coming out in huge wads of string, and it hurt like freaking crazy!!! Thats when i decided to try that, lol.
I do it with oranges too!!!
Obviously, though, i dont eat those two things in public, lol.

Someone on here, i cant remeber who, ate an orange, andwhen she changed her pouch, half a piece of orange was stuck halfway out! She had to pull it the rest of the way out. YUCK!
UC for 8 years, before finally kicking its butt and having a permanent ileostomy April 17 2007! 
-I have gone to find myself, if i get back before i return, keep me here-


esoR
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Date Joined Jan 2007
Total Posts : 4147
   Posted 3/25/2010 7:21 PM (GMT -6)   
Yeah, I think I'll stick to my yogurt, scrambled eggs, croissants, ice cream, milk, dare I say Cadbury Cream Easter Eggs? Actually that last one was good. All kidding aside, thanks for the tips.

Rosemary

summerstorm
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Date Joined Aug 2006
Total Posts : 6571
   Posted 3/25/2010 9:39 PM (GMT -6)   
oh cadury cream eggs are the food of the gods!!!

Honestly i could live off those, i ate 4 in like an hour the other night!
UC for 8 years, before finally kicking its butt and having a permanent ileostomy April 17 2007! 
-I have gone to find myself, if i get back before i return, keep me here-


esoR
Veteran Member


Date Joined Jan 2007
Total Posts : 4147
   Posted 3/25/2010 10:59 PM (GMT -6)   
I ate 4 cadbury cream eggs in one day too. BURP! Rosemary

Wade457
Regular Member


Date Joined Dec 2008
Total Posts : 91
   Posted 3/27/2010 2:28 PM (GMT -6)   
no eggs - no gas.

One of Wade's rules of life for the past 2 1/2 years....

80sChick
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Date Joined Oct 2009
Total Posts : 1054
   Posted 3/27/2010 3:47 PM (GMT -6)   
OMG I am never eating an orange or a pineapple ever!! Pineapple juice is good for flavor though...I like it on ham :) Yum.

You guys are hilarious...I enjoyed a few Cadburys the other day too btw :) Yum.
Stephanie, 28 years old
Diagnosed with Crohn's Colitis March 2000
Possible diagnosis of IBS-D
Total Proctocolectomy and Permanent Ileostomy 3/18/10!
 
Tried: Asacol, Remicade, 6mp, Humira, Xifaxan, Apriso, Imuran, Rowasa Enemas, Colocort Enemas, Psyllium Seed Powder... Tried Probiotics: Align (with no change except bloating) and VSL #3 DS (AWFUL diarrhea).
 
Currently on: 20mg Prednisone, Prenatal Vitamin, Vitamin B 12 Complex, Vitamin D, Calcium, Vesicare (for urinary retention). 


esoR
Veteran Member


Date Joined Jan 2007
Total Posts : 4147
   Posted 3/27/2010 4:01 PM (GMT -6)   
Yep, we are not so gone that we can't have a few Cadbury's.

Wades rules do make sense. :-) RJ

summerstorm
Veteran Member


Date Joined Aug 2006
Total Posts : 6571
   Posted 3/27/2010 8:54 PM (GMT -6)   
80schick-eat them!!! just do what i said and spit out the stringy parts! Its kind of gross, but worth it! But like i said, dont do it except at home, lol.
UC for 8 years, before finally kicking its butt and having a permanent ileostomy April 17 2007! 
-I have gone to find myself, if i get back before i return, keep me here-

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