Eating before bed (emptying throughout the night)

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OzCrohnie
Regular Member


Date Joined Jan 2010
Total Posts : 61
   Posted 3/26/2010 7:10 AM (GMT -6)   
Having only recently been released from hospital, my main priority at the moment is eating. I lost a lot of weight (min=44kg), didn't eat for weeks at a time and ended up having to take TPN (total parenteral nutrition). So I am now encouraged to eat as much as possible as i'm really only just starting to get an appetite back.

I've been told by my STN not to eat before bed, but I get hungry and just cant sleep if im hungry. So the STN said food is my main priority and after I told her that i tried not eating a few times and still had to get up and empty throughout the night, she said that I might aswel eat anyway.

I currently find that I have to get up after 2.5 hours of going to bed and then after another 3 hours to empty my bag as it fills up. It's really annoying as I don't get much sleep. I'm seeing my surgeon in 3 weeks and if its still like it I may be able to take something (loperamide?) to slow it down at night.

Question: Does anyone else find they have to frequently wake up at night to empty there bags? I originally got my ileostomy on the 1st of Feb but it was redone about 4 weeks ago. I'm not sure how long it takes to 'settle down'.




Pet-peeve: Just wanted to say it: I always empty my bag before bed. It's always a nice feeling to have an empty bag. Even better when its a new empty one. But sometimes I'm sitting on the toilet finished emptying it and either cleaning it or just finished cleaning it and all of a sudden more poo comes out. Don't ya just hate that?! :p
Male, 22, diagnosed with Crohn's at 13.
Medication: Salofalk, Infliximab infusions, Humira injections.
On and off Prednisone for years.
I pop Loperamide (aka Gastro-Stop) like candy!
Have had one, two, three, four colonoscopies.
Getting a (permanent) bag in February!
Favourite Quote:  Unfortunately my quote (while perfectly acceptable in Australia) contains language that is considered unacceptable in some countries outside of Australia. I guess that's what happens when you comment on a forum used by many different cultures. So I've provided a link to the Wikipedia entry for the quote instead.


summerstorm
Veteran Member


Date Joined Aug 2006
Total Posts : 6571
   Posted 3/26/2010 10:43 AM (GMT -6)   
It will probably take about 2 months to slow down.
And yes thats sooo annoying when you empty, and then stand up and its got more poo in it, whats that about????

I would eat before bed if i was hungry, i do, and it doesnt seem to make a difference as to how many times i get up.
If you are hungry, and you dont eat, you will get lots of gas, then you will be up for that.

What i dont understand is, during the day my food is out within 2 hours. But, last night for example, i ate dinner at 530, then had lots of output about 7, all gone. Then i had some yogurt, one little cup, about 9, most of that came out. But like every other morning, when i woke up, i had lots and lots of output! i have to empty twice every morning, where they heck is that stuff coming from???
UC for 8 years, before finally kicking its butt and having a permanent ileostomy April 17 2007! 
-I have gone to find myself, if i get back before i return, keep me here-


crohnielass
Veteran Member


Date Joined Mar 2009
Total Posts : 1118
   Posted 3/26/2010 11:58 AM (GMT -6)   
Hi I always make sure I don't eat a big meal after 6.30pm. If I get the nibbles later in the evening will have a couple of crackers, bag of crisps. along with 2 lopermide before bed no need to empty through night, by morning bag isn't even a 1/4 full, but as summerstorm said it will be a few month to settle down good luck Bev x
Diagnosed with crohns at 13 now 43
Reversal of temp ileostomy finally have a date 7th April 2010
Meds: Iron syrup,Loperimide,Folic acid & Citalopram 60mg (for Anxiety.)


" I may not be there yet, but I'm closer than I was yesterday."


Wade457
Regular Member


Date Joined Dec 2008
Total Posts : 91
   Posted 3/27/2010 1:54 PM (GMT -6)   
One of the life-changing things I've learned is that eating after 6pm will insure I'm up at 3am to empty the bag.

Although I've also learned that my digestive system also tends to go to sleep in large part during the night. There is always something in it when I wake up, but as time has passed. NOT EATING AFTER 6pm has been the rule for me.

I'll eat a large breakfast.. a moderate lunch, and usually nothing more than a sandwich for dinner. That doesn't mean light snacks later in the evening are taboo. but generally the less that is in the system at bedtime, means the less that is in the bag at 3am...

The week before I had my first UC attack in January 2007, I weighed about 230 pounds. Dealing with UC all though 2007, and finally having my surgery in October 2007, I weighed 147 pounds in the hospital. Skin and bones was how my wife described me. I'm 6' even and now 2 1/2 years later I'm a healthy 180 pounds and my weight is relatively stable.

Like everything else with this disease , there is a lot you have to learn to live with. The most important part is that you learn how your body works, and that you take control of your life and not let the bag control what you do.

Take care and hopefully you'll be fine :)

Equestrian Mom
Veteran Member


Date Joined Mar 2008
Total Posts : 3115
   Posted 3/28/2010 6:36 PM (GMT -6)   
Everyone is different and I don't worry about not eating after a certain time...I am careful about the foods I eat and usually only eat unprocessed foods....which tend to stay with me longer. Soft foods post op tend to travel quicker through your system:(

I really believe it takes several months to get things back to normal...your body needs to adjust and heal from the trauma.
Crohn’s dx 1989
some terrible years before my
Proctocolectomy in 2008


sammies
Regular Member


Date Joined Feb 2008
Total Posts : 493
   Posted 3/29/2010 12:53 AM (GMT -6)   
It's 2:30am here and after 2 days of the big D and emptying the pouch incessantly, I had to eat just now.

I often eat before bed and, when first recovering from the surgery, ate before bed around 11pm, again around 3am, and then again at 6am. When not in this current D mode (goodness knows what happened this weekend), I was down to emptying around 2am, 4am and then when I got up--didn't matter if I ate before bed or not.

I need to eat at least 6 times a day and must eat something a few hours after dinner else I can't sleep, get gassy, and feel light-headed in the middle of the night.

Good luck to you!
24+ years with Crohn's/colitis; fistulizing crohn's; ileostomy and proctocolectomy; TPN, propranolol and xanax; anemia of chronic disease


ducridr
Regular Member


Date Joined Apr 2008
Total Posts : 139
   Posted 3/29/2010 10:27 AM (GMT -6)   
I am a person that always has to eat before bed. With my ileo (both end and loop) I was no different. If I don't eat right before bed I wake up hungry in the middle of the night. With my end ileo once my body started absorbing more water I would wake up once a night to empty. Since this was less than I had been up with UC I was happy.

I also found that what I ate before bed made a difference in how long I could go without waking up to empty. I often ate a couple of pieces of cheddar cheese as they were filling and not liquefying for me. I can tell you that my body adjusted to waking up in the middle of the night and I would get up, empty, and go back to sleep without it making to much of an interruption in my sleep.

I remember that in the beginning I didn't sleep well even when I slept because I was afraid of the bag blowing up and making a mess and me sleeping through it. I had a couple of blowouts in the hospital while I slept - but it turned out they were just part of getting the right appliance setup. I was also adjusting to not sleeping on my stomach because it hurt (I'm a lifelong stomach sleeper). Just as a note I did wear a 7" bag - I'm sure that I would have been able to sleep through the night (5-6hrs) if I'd been wearing a standard bag after a month or two if the weight of the filling bag didn't wake me. Are you getting good sleep when you are asleep?

I made it through all 7 months of my end and loop ileo's without ever taking any thickening drugs. I used my diet to thicken and thin my output as needed (sweet potato fries did some amazing things for thickening). If your output isn't thickening up try adding some of the thickening foods to your diet. Make sure that there's nothing in them (or in your diet) that would counteract their thickening properties. I found that a lot of the juices that I was drinking to get my daily fruits had grape juice and apple juice as their first 2 ingredients (oops!!).
Ducridr - 36 - female

Diagnosed w/ severe pancolitis 11/20/2007
Asacol - 6 (400mg) 2x/day, Xifaxin 2 (200mg) 2x/day, Prednisone 15 mg (started at 40mg Nov 08 - off June 09), multi-vitamin, calcium and vit d supplement, potassium supplement, B-12 supplement, Junel FE (BCP),metamucil capsule (1/day) Coumadin (for blood clot) 5mg/day, 1st Remicade treatment 2/4/2009, 2nd - 2/18/09. Currently getting Remicade every 4 weeks.

J-Pouch surgery #1 of 3 on 8/21/2009!!!
Surgery #2 on 1/4/2010
Surgery #3 scheduled for 3/23/2010


Allison77
Regular Member


Date Joined Feb 2005
Total Posts : 421
   Posted 3/30/2010 12:30 PM (GMT -6)   
A word of wisdom passed to me from my surgeon : Eat like a King at breakfast, eat like a lord at lunch and eat like a pauper at dinner.

-Allie
RX Crohn's 1999, over 30 surgeries, 3 strokes, permanent colostomy and rectum removal.
 
"The most unfortunate thing that happens to a person who fears failure is that he limits himself by becoming afraid to try anything new."


esoR
Veteran Member


Date Joined Jan 2007
Total Posts : 4147
   Posted 3/30/2010 12:45 PM (GMT -6)   
That is good advice from Allie. That is my method. ALso one of my surgeons held up his hands and said "Drink this much liquid" and he held his hands wide apart, and "eat this much solid" and he held his hands very close together. Am still trying to figure out if that was just post-surgical or did he mean for the long term?

Anyway, I just find eating big meal in mid-day and very lightly at night is the best for me.

Rosemary

summerstorm
Veteran Member


Date Joined Aug 2006
Total Posts : 6571
   Posted 3/30/2010 6:32 PM (GMT -6)   
post surgery, you can eat regular after a while!
Although you will find the more you eat, obviosuly the more output you will have. So it depends on how much you want to deal with at a time.
UC for 8 years, before finally kicking its butt and having a permanent ileostomy April 17 2007! 
-I have gone to find myself, if i get back before i return, keep me here-


Liza D
Regular Member


Date Joined Apr 2009
Total Posts : 166
   Posted 3/31/2010 3:41 PM (GMT -6)   
I hated that... and sorry to say after reconnection does not make sleep much easier. I get up about three times a night and have to "empty" still!

It will slow down. I tried eating mushy foods later to thicken and slow. Also, I was lucky enough to sleep during the day when I had to. Take time to recover and learn your new body.

Good luck!
UC (Pancolitis... 90%!) December 2001
Arthritis (2003)
Upper GI Ulcer (2006)
Osteopenia (2008)
Depression/Anxiety (2002)
J-Pouch May 2009/ Reversal November 2009/ Fistula correction March 2010

Check out my blog: shlookshlies.blogspot.com/


Ileostomyfree
Regular Member


Date Joined Mar 2010
Total Posts : 23
   Posted 3/31/2010 9:14 PM (GMT -6)   
Hi,
I had my ileostomy for 8 months and I also had to eat before bedtime. I always seemed to be really hungry at that time. I found that even if i didn't eat before bed I was still up and emptying my bag a few times a night. I didn't sleep well for those 8 months since I am a true belly sleeper and couldn't get used to sleeping on my back. It has only been 5 days since my reversal surgery. Still can't sleep on belly (incision) and still get up a few times a night to go to the bathroom. The good thing though is I do fall back to sleep because I'm not worrying about my bag leaking or getting too full. I wish you all well.

summerstorm
Veteran Member


Date Joined Aug 2006
Total Posts : 6571
   Posted 3/31/2010 9:26 PM (GMT -6)   
just so you know, once your belly heals, there is no reason you cant sleep on your stomach!
I have this waterproof pad that i have sewn a sheet on, so that it is soft, and as long as i have that under me i can sleep on my stomach just fine!
I think its more in my mind, cause if go somewhere and forget it, i cant sleep that way.
UC for 8 years, before finally kicking its butt and having a permanent ileostomy April 17 2007! 
-I have gone to find myself, if i get back before i return, keep me here-


Equestrian Mom
Veteran Member


Date Joined Mar 2008
Total Posts : 3115
   Posted 4/1/2010 4:45 AM (GMT -6)   
OzCrohnie~what size pouch do you use? I ask because yesterday I used a small pouch (I alternate the sizes sometimes) and I had to get up once around 3:30...usually I would have made it until 6am.

Maybe going to a larger one would help? If it's air, it might not, but it'd be worth a try!
Crohn’s dx 1989
some terrible years before my
Proctocolectomy in 2008


OzCrohnie
Regular Member


Date Joined Jan 2010
Total Posts : 61
   Posted 4/14/2010 7:58 AM (GMT -6)   
Wade457 said...
NOT EATING AFTER 6pm has been the rule for me.


Wow Wade4! I can't not eat after 6pm! I usually have dinner at 7pm, but even if I stopped eating after dinner i'd get hungry again. I'm not sure how soon after dinner you go to bed though, I usually go to bed around midnight (atleast). At the moment its been around 1-2am, it'l be the same once I start studying again too.

I'm not sure if I'm mistaken or not, but I've noticed when I eat a banana within the last hour or so of going to bed I am able to sleep for longer before having to get up and empty. May be just a few coincidences, so I'm guna keep testing it out... Although I cant have a banana every day, I'll get sick of them!

Ducridr said...
Are you getting good sleep when you are asleep?


Yer, I do get good sleep. I usually stay up at night doing uni work or (seeing as I decided not to do uni this semester) watching tv until I'm really tired and falling asleep. That way as soon as I hit the pillow I'm usually out pretty quickly, none of that staying awake in bed because my brain wont stop thinking about stuff :p So, basically I go back to sleep pretty quickly after I get up to empty... because I'm tired from staying up so late.

Ducridr said...
Make sure that there's nothing in them (or in your diet) that would counteract their thickening properties. I found that a lot of the juices that I was drinking to get my daily fruits had grape juice and apple juice as their first 2 ingredients (oops!!).


So wait, are you saying Apple Juice is an anti-thickening food? darn, I drink 2-3 mugs of apple juice every morning, i've done it for the last 13 years or so. I'm like one of those people who can't function without there morning coffee, except I can't function without my apple juice! Hopefully the toast and peanut butter counteract the apple juice I have for breakfast, because I dont really want to stop drinking it now.

Ducridr said...
I was afraid of the bag blowing up


Speaking of blow-outs, I woke up late last week with my bag full of air. And when I say full, I mean i poked the bag and it felt solid, if anymore air went in it'd probably blow. It was so weird walking to the bathroom with what looked like a small balloon under my shirt! haha


Summerstorm said...
just so you know, once your belly heals, there is no reason you cant sleep on your stomach!


Summerstorm, so it doesn't harm the stoma at all if you lay on your stomach? It only dawned on me recently that I may never be able to lay on my stomach again (and then I saw your post! :) . Wouldn't it squash the stoma? Or can you only do it on that soft pad you mentioned.

This is guna sound stupid, but... I was at a party last year and there was this hole at the bottom of the wall to my friends shed. Not sure how it happened, but someone mentioned that I couldn't fit through it. I said I could, started getting everyone in the room to start putting money in a pot to get me to attempt to go through. Once everyone emptied there wallets I went up to the hole laid on my stomach and in one swift move slid straight into my friends shed. They were all stunned, they couldn't believe it, I made a good $30 that night too. They knew I was incredibly skinny, but not skinny enough to do it without getting stuck! But basically I guess the reason I brought that up was that it was a cement floor. Do you think someone with a stoma on there stomach could lay flat on a cement floor? (I assume I wouldnt be able to drag myself along the ground either).

OHIO76 said...
OzCrohnie~what size pouch do you use?

To be honest I'm not sure what size it is. I'm looking at the box and it says it is a SenSura Coloplast brand, a 1 piece with a "Maxi - Soft Cover" (dunno whats soft about it!) and strangely it also says "10-76mm / 30 pcs" But I can assure you my bag is most definitly not 1cm by 7.6cm's haha!. How do you find out the size? I'm seeing my STN next week so will ask her exactly what it is. I do know my STN has told me there is a smaller size that if everything works out (output etc) I MAY eventually be able to use that (Fingers crosses).



I'm loving these quote things! :p
Male, 22, diagnosed with Crohn's at 13.
Medication: Salofalk, Infliximab infusions, Humira injections.
On and off Prednisone for years.
I pop Loperamide (aka Gastro-Stop) like candy!
Have had one, two, three, four colonoscopies.
Getting a (permanent) bag in February!
Favourite Quote:  Unfortunately my quote (while perfectly acceptable in Australia) contains language that is considered unacceptable in some countries outside of Australia. I guess that's what happens when you comment on a forum used by many different cultures. So I've provided a link to the Wikipedia entry for the quote instead.


OzCrohnie
Regular Member


Date Joined Jan 2010
Total Posts : 61
   Posted 4/14/2010 8:13 AM (GMT -6)   
I also have another 'party trick' I guess I wont be doing ianymore with a stoma. A friend of mine (whom throws the awesomest parties) has one of those giant exercise balls (and she has a three story apartment).

Well when I was younger we had one at home and I'd run and jump on top of it (lay on it really, on my stomach) and roll down the hallway (while still laying on top of it). It's because I was so tall I could stay on it for longer.

Anywho, so one drunken night at one of her parties I thought it was a brilliant idea to do it, while going down the staircase. She has a giant stand and tv at the bottom of the staircase too. It's all on video.... but somehow I managed to not only go down the flight of stairs on this ball without breaking my neck, but I also managed to somehow steer the ball away from the tv into her lounge room before crashing on the ground!

Ever since that particular night it's been tradition to do an re-enactment. I guess now theres less chance of ending up in hospital with broken bones :p
Male, 22, diagnosed with Crohn's at 13.
Medication: Salofalk, Infliximab infusions, Humira injections.
On and off Prednisone for years.
I pop Loperamide (aka Gastro-Stop) like candy!
Have had one, two, three, four colonoscopies.
Getting a (permanent) bag in February!
Favourite Quote:  Unfortunately my quote (while perfectly acceptable in Australia) contains language that is considered unacceptable in some countries outside of Australia. I guess that's what happens when you comment on a forum used by many different cultures. So I've provided a link to the Wikipedia entry for the quote instead.


Allison77
Regular Member


Date Joined Feb 2005
Total Posts : 421
   Posted 4/14/2010 11:35 AM (GMT -6)   
I sleep on Oscar all the time! I totally lay out and jump around on my belly on my yoga ball. Everyone gets a kick when I do the "star fish" on the yoga ball, imitating my friend's bulldog.

-Allie
RX Crohn's 1999, over 30 surgeries, 3 strokes, permanent colostomy and rectum removal.
 
"The most unfortunate thing that happens to a person who fears failure is that he limits himself by becoming afraid to try anything new."


summerstorm
Veteran Member


Date Joined Aug 2006
Total Posts : 6571
   Posted 4/14/2010 11:42 AM (GMT -6)   
oz-thats great! i would sooo do that! well if i were drunk enough, lol.
UC for 8 years, before finally kicking its butt and having a permanent ileostomy April 17 2007! 
-I have gone to find myself, if i get back before i return, keep me here-


Equestrian Mom
Veteran Member


Date Joined Mar 2008
Total Posts : 3115
   Posted 4/14/2010 11:51 AM (GMT -6)   
That's a good story!!

It's the length that is different...I am pretty sure Coloplast has a mini, midi and maxi...you may already be using the longest one.
Crohn’s dx 1989
some terrible years before my
Proctocolectomy in 2008


OzCrohnie
Regular Member


Date Joined Jan 2010
Total Posts : 61
   Posted 4/14/2010 11:35 PM (GMT -6)   
haha starfish! I might have to try that one next time!

OHIO76 said...
It's the length that is different...I am pretty sure Coloplast has a mini, midi and maxi...you may already be using the longest one.


You're right. I did some searching and actually found mine on the net! :D

Its either the large or medium one, definitely not the small one as thats a different shape...

www.coloplast.com/Products/Ostomy/SenSura/Products/Pages/SenSura1piece.aspx?PagePos=1

Although mine doesn't have the inspection window or the ability to fold it so it stays half its size (wish it did though). I'm hoping when/if my output decreases I can get that smaller one.


I'm kinda excited that I found my bag on the net!
Male, 22, diagnosed with Crohn's at 13.
Medication: Salofalk, Infliximab infusions, Humira injections.
On and off Prednisone for years.
I pop Loperamide (aka Gastro-Stop) like candy!
Have had one, two, three, four colonoscopies.
Getting a (permanent) bag in February!
Favourite Quote:  Unfortunately my quote (while perfectly acceptable in Australia) contains language that is considered unacceptable in some countries outside of Australia. I guess that's what happens when you comment on a forum used by many different cultures. So I've provided a link to the Wikipedia entry for the quote instead.


OzCrohnie
Regular Member


Date Joined Jan 2010
Total Posts : 61
   Posted 4/15/2010 9:46 AM (GMT -6)   
It's definitely the large one. I just noticed on a bag I was cutting the hole into that it says "Maxi". So you were right, it's the Maxi one! :)
Male, 22, diagnosed with Crohn's at 13.
Medication: Salofalk, Infliximab infusions, Humira injections.
On and off Prednisone for years.
I pop Loperamide (aka Gastro-Stop) like candy!
Have had one, two, three, four colonoscopies.
Getting a (permanent) bag in February!
Favourite Quote:  Unfortunately my quote (while perfectly acceptable in Australia) contains language that is considered unacceptable in some countries outside of Australia. I guess that's what happens when you comment on a forum used by many different cultures. So I've provided a link to the Wikipedia entry for the quote instead.


ducridr
Regular Member


Date Joined Apr 2008
Total Posts : 139
   Posted 4/15/2010 8:35 PM (GMT -6)   
OzCrohnie - Unfortunately for you, my list of stool thinning foods from my ileo book says alcoholic beverages, apple juice, grape juice, prune juice, and highly-spiced food. So yes - your morning apple juice is thinning your output and speeding up your transit time which is also probably reducing your absorption. The thickening list is applesauce, bananas, bread, cheeses, pasta, rice, creamy peanut butter, skinless potato, and tapioca. I'm not sure how apple cider would come into play if it would be thickening or thinning. Sorry - I wish I had better news for you.

BTW - My worry about bag the bag blowing up was because I had it become a balloon more than once and I rolled over onto it one night and it popped (which led to me not sleeping on my stomach). I also had a few moments where I had to be very careful getting out of bed because there was so much air in it that if I sat up I would have popped it.
Ducridr - 36 - female

Diagnosed w/ severe pancolitis 11/20/2007
Asacol - 6 (400mg) 2x/day, Xifaxin 2 (200mg) 2x/day, Prednisone 15 mg (started at 40mg Nov 08 - off June 09), multi-vitamin, calcium and vit d supplement, potassium supplement, B-12 supplement, Junel FE (BCP),metamucil capsule (1/day) Coumadin (for blood clot) 5mg/day, 1st Remicade treatment 2/4/2009, 2nd - 2/18/09. Currently getting Remicade every 4 weeks.

J-Pouch surgery #1 of 3 on 8/21/2009!!!
Surgery #2 on 1/4/2010
Surgery #3 scheduled for 3/23/2010


OzCrohnie
Regular Member


Date Joined Jan 2010
Total Posts : 61
   Posted 5/9/2010 6:41 AM (GMT -6)   
ducridr said...
your morning apple juice is thinning your output a

You are absolutely 100% correct. I did some experimenting and you were right. Output has been heaps better since I stopped drinking apple juice every morning! thanks! (although I do kinda miss it :p ).

OHIO76 said...
what size pouch do you use? I ask because yesterday I used a small pouch (I alternate the sizes sometimes) and I had to get up once around 3:30...usually I would have made it until 6am.


So after recently seeing my STN I tried a smaller size bag which I'm now happily using. It's the 'midi' one (I was using the "maxi" one).
I'm also happy to report I don;t get up as frequently (even with the smaller bag). Although I think what I do may be a tad risky:

I used to occasionally set my alarm to make sure I'm up before the bag fills up too much. Now I dont worry about it. I just empty right before I want to go to sleep. Then I somehow wake myself up to empty (usually about 2 hours or so before Im meant to be up). I think its because my bag gets full. I probably shouldn't let it happen as i know it increases the chance of leaks, but yer It fills right up and then i somehow wake up then I empty and fall back to sleep.
My surgeon told me i can take loperamide before I go to bed to stop me from having to get up every few hours like I was before. I think they worked, but I just haven't been taking them. Although when I have someone sleeping over or if im not at home I think I will just incase. As it looks odd when you have a full bag, and it'd be even weirder if you have one and your sleeping with someone.

Allison77 said...
I sleep on Oscar all the time! I totally lay out and jump around on my belly on my yoga ball.


Ohh, I ended up asking my STN about the whole laying/crawling/dragging myself along the ground on my belly thing. She said yer, its fine! Just probably dont do it with a full bag. But as far as damaging the stoma, it all should be fine.

Although, after she told me this I ended up having to get something from under my bed. So remembering what the STN said, I laid on my stomach and dragged myself under to grab it. But it felt so weird... After grabbing what I was after, I ended up backing out from under the bed with my stoma in the air and not touching the ground... it just feels... weird how its like poking... :s Did you's just get used to this? I'm fine laying on my stomach on my bed, but yer my carpeted floor felt weird, so i doubt i'll be crawling along a cement floor through a hole in a wall again anytime soon!
Male, 22, diagnosed with Crohn's at 13.
Permanent ileostomy in February 2010.

Medication: Salofalk, Infliximab infusions, Humira injections .
On and off Prednisone for years. Currently only at 5mg
Loperamide (aka Gastro-stop) when needed.


Favourite Quote: Unfortunately my quote (while perfectly acceptable in Australia) contains language that is considered unacceptable in some countries outside of Australia. I guess that's what happens when you comment on a forum used by many different cultures. So I've provided a link to the Wikipedia entry for the quote instead.

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