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answers4me2
Veteran Member


Date Joined Dec 2008
Total Posts : 1321
   Posted 3/30/2010 5:30 PM (GMT -6)   
Ok, I have spoken to Lizzie through text. She is not doing well at all. She is having extreme joint pain and said she feels like she is dying. I am so sad for her and have no idea what is wrong with her. Even the doctors don't know. Her k-pouch is working fine thankfully. So, if anyone has any thoughts on what could be wrong with her, please reply. Also, please keep her in your prayers.

Chasblah
Veteran Member


Date Joined Feb 2007
Total Posts : 788
   Posted 3/30/2010 7:49 PM (GMT -6)   
oh no. i thought she was doing well. sad
i will pray for her.
Chassity
28 yrs. old. married with one beautiful daughter (born 11/20/07)
-diagnosed with severe pancolitis u/c 2002 had total colectomy 12/19/08; emergency surgery due to abscess-had to redo ileostomy and switch to left side 12/25/08; 2/15/09 found blood clot in superior mesenteric vein (prob. from inf. and surgery inflammation)
i only take vitamins now, when I WANT to. :)
(temporary ileostomy....maybe)

"Things turn out the best for those who make the best of the way things turn out."


2b ColonFree
Veteran Member


Date Joined Nov 2008
Total Posts : 2603
   Posted 3/30/2010 9:13 PM (GMT -6)   
oh my gosh.... i'm so sorry to hear that :( will keep her in my prayers.

Hodaya

06/05/2007 - STARR procedure

colonic inertia w/pelvic floor dysfunction

08/16/2009 - total colectomy w/ileorectal anastomosis


esoR
Veteran Member


Date Joined Jan 2007
Total Posts : 4147
   Posted 3/30/2010 9:23 PM (GMT -6)   
Tracy, Thanks for updating us on this thread. I did find another thread where Lizzie gives her update. I will have to check and see which topic. I think it was total colectomy 30+ (I forget what number we are up to now.) Things don't sound good from what she said. Prayers go out to Lizzie.

Best wishes for your upcoming appointment. Sounds like you got a good doc, Dr. Singh. You have done a good job doing your "homework".

Rosemary

esoR
Veteran Member


Date Joined Jan 2007
Total Posts : 4147
   Posted 3/30/2010 9:27 PM (GMT -6)   
It was total colectomy part 33 where Lizzie gives her update as of 3/25/10. It's hard to believe that she has been in so much difficulty for these past few years. The 20's are supposed to be the best years of a person's life. Looking back from 54, I see the 20's as being a "teenager." So unfair all of this is for her. I really hope the best for our friend. Rosemary

honestwoman50
Veteran Member


Date Joined May 2009
Total Posts : 833
   Posted 3/30/2010 10:39 PM (GMT -6)   
answers4me2
  OMG that is just terrible to hear, that really breaks my heart and I don't really know a thing about her.  But my thoughts and prayers are with her.
 
Leslie
Leslie King
 
  1984 Tubligation  1992 Diagnosed with Thyroid tumor    
1993 Gallbladder Removed  1997 Hysterectomy  1998 Carpol Tunnel 
 1999 Spinal Cord Surgery for a Anacroid Syst
2001 Lower Lumbar Fusion L4-5  1998 Carpol Tunnel Right Hand
2003 Sigmoid Colon Resection
 2006 Right Knee Replacement 2005 Breast Reduction
 2008 RE-did the Lower Lumbar Fusion/ lamanoctomy
2010 DX: colonic Inertia/ Pelvic Floor Disorder
2010 Total Colectomy ABD W/O proctectomy; w/Ileosto
 
  


Gilda
Regular Member


Date Joined May 2009
Total Posts : 194
   Posted 3/30/2010 11:13 PM (GMT -6)   
I think about Lizzie almost every day. We have to all keep praying for a miracle! They do happen and Lizzie certainly deserves one. I really think she can still get better! Lizzie if you read this and there is anything I can do for you, please let me know. I realize you don't know me but I have been following "your story" for quite a while now and praying for you. We have a few things in common; I am also from Grand Rapids, I was 20 when all of my "motility problems" started and I truly know how this illness can sap the life from a person. I am now 57 yr. old and altho things aren't perfect; they are quite a bit better. My doctor said that finally more attention is being paid to gastro-intestinal problems such as colonic inertia, psudo-obstruction, etc.. I think an answer for you is close; please try to keep faith and know that miracles do happen. We all love you and really want you to get well!

Gilda

Equestrian Mom
Veteran Member


Date Joined Mar 2008
Total Posts : 3115
   Posted 3/31/2010 4:48 AM (GMT -6)   
I have been thinking about her a lot...It sounds like the pouch is fine but her body is fighting something else...I hope the docs can find it soon.
Crohn’s dx 1989
some terrible years before my
Proctocolectomy in 2008


esoR
Veteran Member


Date Joined Jan 2007
Total Posts : 4147
   Posted 3/31/2010 7:35 AM (GMT -6)   
Gilda,

You are a good connection for Lizzie. I hope she finds your post. Rosemary

honestwoman50
Veteran Member


Date Joined May 2009
Total Posts : 833
   Posted 3/31/2010 11:25 AM (GMT -6)   
Gilda  Wow, you guys live in Michigan?  I was born in Roseville Mich. and moved to Oregon when I was 9.  Hope Lizzy gets feeling better, sounds like she has been through a lot..
 
Leslie
Leslie King
 
  1984 Tubligation  1992 Diagnosed with Thyroid tumor    
1993 Gallbladder Removed  1997 Hysterectomy  1998 Carpol Tunnel 
 1999 Spinal Cord Surgery for a Anacroid Syst
2001 Lower Lumbar Fusion L4-5  1998 Carpol Tunnel Right Hand
2003 Sigmoid Colon Resection
 2006 Right Knee Replacement 2005 Breast Reduction
 2008 RE-did the Lower Lumbar Fusion/ lamanoctomy
2010 DX: colonic Inertia/ Pelvic Floor Disorder
2010 Total Colectomy ABD W/O proctectomy; w/Ileosto
 
  

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