End Ileo - Output Frequency

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NiRo
Regular Member


Date Joined Aug 2009
Total Posts : 198
   Posted 3/31/2010 12:04 PM (GMT -6)   
Hi All,

I am just curious as to how many times most of you end up having to empty the bag in a day if you have an end ileo (and if you don't mind, if you can distinguish between during the day and during the night when you have to wake up while sleeping)? I am not in need of the surgery anytime soon (I hope), but I am just curious. turn

Thanks...
Diagnosed with Pancolitis (Moderate in 4/5th of the colon, Mild in 1/5th) in July 2009
Lialda 4x a day (2x in the morning, 2x at night)
Rowasa Enema 3x a week (M,W,F)
Align (Probiotic) 1x a day
Fish Oil 4x a day
Multi-Vitamins (includes B-12, Vitamin D, Vitamin C) 1x a day


summerstorm
Veteran Member


Date Joined Aug 2006
Total Posts : 6571
   Posted 3/31/2010 6:51 PM (GMT -6)   
it depends on what, and how much you eat, but as a general rule, i empty when i go pee, which is all the time, lol. But i only need to empty about 4-6 times a day.
And usually once at night.
UC for 8 years, before finally kicking its butt and having a permanent ileostomy April 17 2007! 
-I have gone to find myself, if i get back before i return, keep me here-


esoR
Veteran Member


Date Joined Jan 2007
Total Posts : 4147
   Posted 3/31/2010 8:10 PM (GMT -6)   
Hi,

Same answer as Summerstorm 4-6 times per day and once at night. Rosemary

Equestrian Mom
Veteran Member


Date Joined Mar 2008
Total Posts : 3115
   Posted 4/1/2010 4:54 AM (GMT -6)   
I am a lot like summerstorm and esoR except that I usually don't get up at night to empty. There are also different sized pouches that you can use to increase/cut down on the emptying...which I figured out last night as I got up to empty...the small ones aren't good to sleep through the night!!
Crohn’s dx 1989
some terrible years before my
Proctocolectomy in 2008


Shaz032
Forum Moderator


Date Joined Feb 2003
Total Posts : 1245
   Posted 4/1/2010 6:08 AM (GMT -6)   
I usually empty around 4 - 6 times a day (depending on what I have or haven't eaten). First thing in the morning, around mid morning at work, just before I leave work and then before dinner and then before bed. These days I'm usually up peeing in the middle of the night (happens with age lol) so just empty then as well (otherwise I'd probably sleep through without emptying most nights) :) So basically, when I pee, I empty :)
Ileostomy for 33 years due to UC

Moderator of the Ostomy and Psoriasis Forums

_______________________________________________

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crohnielass
Veteran Member


Date Joined Mar 2009
Total Posts : 1118
   Posted 4/1/2010 12:24 PM (GMT -6)   
Hi, I agree that it depends how much you eat throughout the day although whatever I eat is normally in the bag within two hours so I have to eat little and often and won't eat after 6pm I then don't have to empty at night but during the day will empty 3 times. Bevx
Diagnosed with crohns at 13 now 43
Reversal of temp ileostomy finally have a date 7th April 2010
Meds: Iron syrup,Loperimide,Folic acid & Citalopram 60mg (for Anxiety.)


" I may not be there yet, but I'm closer than I was yesterday."


Wade457
Regular Member


Date Joined Dec 2008
Total Posts : 91
   Posted 4/1/2010 12:34 PM (GMT -6)   
I just routinely empty the bag about once an hour or so during the day. Normally I don't get active until after lunch (as breakfast has found it's way though me), then it tapers off about 11pm or so. I'll wake up about 3 or 4 in the morning and empty it then.

Yes, I know it's a lot. Maybe it's just me for not wanting to carry around a lot of effluent... but that's just me. When I'm traveling it's not as often, as it's usually not as convenient. Also I eat a large breakfast, moderate lunch and a very light dinner so I front-load all of the food each day.. which, in turn, makes me empty more often in the afternoon and early evening.

One of the life-changing things you'll go though if you need the ilo is that you'll pay a lot more attention to when, how much and what you eat. as all of those things will determine when, how much and how often you'll be emptying a bag, as well as the viscosity of what goes in the bag...... It sounds complex, but it's really not. you just learn all of it and you go on with a normal life. The difference being is that you control what comes out of you .. instead of your UC controlling it...

NiRo
Regular Member


Date Joined Aug 2009
Total Posts : 198
   Posted 4/4/2010 9:16 AM (GMT -6)   
Thanks all for the responses, it is much appreciated.
Diagnosed with Pancolitis (Moderate in 4/5th of the colon, Mild in 1/5th) in July 2009
Lialda 4x a day (2x in the morning, 2x at night)
Rowasa Enema 3x a week (M,W,F)
Align (Probiotic) 1x a day
Fish Oil 4x a day
Multi-Vitamins (includes B-12, Vitamin D, Vitamin C) 1x a day

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