Back from my post op appt!

New Topic Post Reply Printable Version
[ << Previous Thread | Next Thread >> ]

80sChick
Veteran Member


Date Joined Oct 2009
Total Posts : 1054
   Posted 4/7/2010 11:46 AM (GMT -6)   
Hey all!
I'm back from my post op appt with my surgeon, 3 weeks after my proctocolectomy...he says I'm doing great! He's really pleased with my recovery and said my colon was the worst he's ever seen! GOOD RIDDANCE!!! He says I have no restrictions on what I can do, which is INSANE to me just 3 weeks after surgery. He gave me the ok to to back to work, but I am not strong enough to dance in 4 shows a day yet. I will give myself a few weeks to gain back my strength and also gain some weight (since I was so sick before the surgery...I'm like a skeleton...gross), and then it's off to work I go!! Wow. These 3 weeks have really gone fast. I'm tapering off my pred too--awesome! I've been on 40 for like 10 months and now I'm down to 15! Hooray!
Stephanie, 28 years old
Diagnosed with Crohn's Colitis March 2000
Possible diagnosis of IBS-D
Total Proctocolectomy and Permanent Ileostomy 3/18/10!
 
Tried: Asacol, Remicade, 6mp, Humira, Xifaxan, Apriso, Imuran, Rowasa Enemas, Colocort Enemas, Psyllium Seed Powder... Tried Probiotics: Align (with no change except bloating) and VSL #3 DS (AWFUL diarrhea).
 
Currently on:15 mg Prednisone, Prenatal Vitamin, Vitamin B 12 Complex, Vitamin D, Calcium, Flomax (for urinary retention). 


Collicat
Veteran Member


Date Joined May 2009
Total Posts : 827
   Posted 4/7/2010 12:17 PM (GMT -6)   
This is great new!...enjoy your new found health...soon you will have more energy than you can ever remember having...and "good ridence" to the pred...HURRAY

Allison77
Regular Member


Date Joined Feb 2005
Total Posts : 421
   Posted 4/7/2010 12:56 PM (GMT -6)   
YAY Stephanie!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!

-Allie
RX Crohn's 1999, over 30 surgeries, 3 strokes, permanent colostomy and rectum removal.
 
"The most unfortunate thing that happens to a person who fears failure is that he limits himself by becoming afraid to try anything new."


honestwoman50
Veteran Member


Date Joined May 2009
Total Posts : 833
   Posted 4/7/2010 1:43 PM (GMT -6)   
Stephanie
 
     Hi, so glad that your doing so well, that's great!!!  Keep well..
 
Leslie
Leslie King
 
  1984 Tubligation  1992 Diagnosed with Thyroid tumor    
1993 Gallbladder Removed  1997 Hysterectomy  1998 Carpol Tunnel 
 1999 Spinal Cord Surgery for a Anacroid Syst
2001 Lower Lumbar Fusion L4-5  
2003 Sigmoid Colon Resection
 2006 Right Knee Replacement 2005 Breast Reduction
 2008 RE-did the Lower Lumbar Fusion/ lamanoctomy
2010 DX: colonic Inertia/ Pelvic Floor Disorder
2010 Total Colectomy ABD W/O proctectomy; w/Ileosto
 
  


Hischildvalda
Regular Member


Date Joined Feb 2010
Total Posts : 175
   Posted 4/8/2010 6:28 AM (GMT -6)   
That is just fantastic Stephanie! Going back to work after your surgery in only three weeks is incredible. Congrats!

val
1999 Fibromyalgia and all the fun stuff that goes with it came to live with me.
 


80sChick
Veteran Member


Date Joined Oct 2009
Total Posts : 1054
   Posted 4/8/2010 8:48 AM (GMT -6)   
Oh, I'm not going back to work yet even though he said I could. I'm shooting for the end of April. In the meantime I'm exercising and lifting weights and stuff to get my stamina and strength back!
Stephanie, 28 years old
Diagnosed with Crohn's Colitis March 2000
Possible diagnosis of IBS-D
Total Proctocolectomy and Permanent Ileostomy 3/18/10!
 
Tried: Asacol, Remicade, 6mp, Humira, Xifaxan, Apriso, Imuran, Rowasa Enemas, Colocort Enemas, Psyllium Seed Powder... Tried Probiotics: Align (with no change except bloating) and VSL #3 DS (AWFUL diarrhea).
 
Currently on:15 mg Prednisone, Prenatal Vitamin, Vitamin B 12 Complex, Vitamin D, Calcium, Flomax (for urinary retention). 


flchurchlady
Veteran Member


Date Joined Jul 2007
Total Posts : 2765
   Posted 4/10/2010 5:50 PM (GMT -6)   
Hooray!! So glad you're doing well. yeah What kind of cool job do you have where you get to dance 4 shows a day? Sounds like fun!

I agree that Pred is evil devil and needs to be stopped (or tapered) asap! smilewinkgrin

Take care,

Cecilia

P.S. - my surgeon said my colon was the worst she had seen, too! GOOD RIDDANCE!!
Dx'd Crohn's in '99 at age 28. Proctocolectomy and permanent ileostomy in '06.
Disease-free and medicine-free since surgery and very thankful to be healthy again.


80sChick
Veteran Member


Date Joined Oct 2009
Total Posts : 1054
   Posted 4/10/2010 9:29 PM (GMT -6)   
I work at the Magic Kingdom at Disney World. I'm scared to go back when it's this time of year--I'm going to be thrust into doing shows when it's SO HUMID AND HOT!! I'll be sure to drink LOTS.

10 mg of pred as of yesterday!!! WAHOO!!!! Too good to be true.
Stephanie, 28 years old
Diagnosed with Crohn's Colitis March 2000
Possible diagnosis of IBS-D
Total Proctocolectomy and Permanent Ileostomy 3/18/10!
 
Tried: Asacol, Remicade, 6mp, Humira, Xifaxan, Apriso, Imuran, Rowasa Enemas, Colocort Enemas, Psyllium Seed Powder... Tried Probiotics: Align (with no change except bloating) and VSL #3 DS (AWFUL diarrhea).
 
Currently on:10 mg Prednisone, Prenatal Vitamin, Vitamin B 12 Complex, Vitamin D, Calcium, Flomax (for urinary retention). 


esoR
Veteran Member


Date Joined Jan 2007
Total Posts : 4147
   Posted 4/10/2010 10:23 PM (GMT -6)   
Steph,

GOOD FOR YOU !!!! But do drink LOTS of water as dancing in humid weather without absorption capacities of your colon to draw water back into your system could leave you dehydrated. I'd wait if I could until the worst of humidity is over. If possible. Again congrats on great recovery. Rosemary

80sChick
Veteran Member


Date Joined Oct 2009
Total Posts : 1054
   Posted 4/11/2010 7:43 AM (GMT -6)   
LOL, if I wait until the worst is over I'll be going back to work in November. I'll be careful.
Stephanie, 28 years old
Diagnosed with Crohn's Colitis March 2000
Possible diagnosis of IBS-D
Total Proctocolectomy and Permanent Ileostomy 3/18/10!
 
Tried: Asacol, Remicade, 6mp, Humira, Xifaxan, Apriso, Imuran, Rowasa Enemas, Colocort Enemas, Psyllium Seed Powder... Tried Probiotics: Align (with no change except bloating) and VSL #3 DS (AWFUL diarrhea).
 
Currently on:10 mg Prednisone, Prenatal Vitamin, Vitamin B 12 Complex, Vitamin D, Calcium, Flomax (for urinary retention). 

New Topic Post Reply Printable Version
Forum Information
Currently it is Wednesday, August 23, 2017 11:15 PM (GMT -6)
There are a total of 2,859,205 posts in 313,743 threads.
View Active Threads


Who's Online
This forum has 155318 registered members. Please welcome our newest member, Lucky Lady.
458 Guest(s), 2 Registered Member(s) are currently online.  Details
Pnwgrl79, kellyinCali


Follow HealingWell.com on Facebook  Follow HealingWell.com on Twitter  Follow HealingWell.com on Pinterest
Advertisement
Advertisement

©1996-2017 HealingWell.com LLC  All rights reserved.

Advertise | Privacy Policy & Disclaimer