Pain around stoma

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racerwife15
New Member


Date Joined Jun 2010
Total Posts : 12
   Posted 6/20/2010 7:47 PM (GMT -6)   
Does anyone have any tips for soreness and pain around your stoma? I have a skin/wound that is very sore and I don't know if this is causing pain around the stoma or if it's something else. My pain meds are not helping very much. Had loop ileostomy surgery almost 6 wks ago and I am still feeling very yucky, hot flashes, cramps, fatique....any tips would be greatly appreciated. Is this normal?
Exploratory surgery Sept/2009 after having "female issues", the doctor found a diverticula abscess, the "not so confident doctor" kept sending me all over town for ultrasounds and doing nothing. In the meantime, I am still wondering around in severe pain. I ended up finally getting a new gynecologist who is the greatest! She saw good reason for a hysterectomy and once in the OR, found I had severe diverticulitis and called in the greatest surgeon ever! Severe diverticulitis had buried itself underneath my uterus and had completely turned my insides to "concrete", my organs were unidentifiable. The surgeon had to "chisel" his way in just so I could have the hysterectomy. I came out of surgery with a colostomy which was NOT expected. 6 months later, May/2010, they went in to do the the colostomy take down and I still had a leak in my large intestines and now I have an ileostomy hopefully for only 6-8 weeks. This is the "short version" of my story.


Anthony1977
Regular Member


Date Joined Jan 2009
Total Posts : 413
   Posted 6/20/2010 8:43 PM (GMT -6)   
wow, you seem to be going through the same stuff I have. Is it a sore around the stoma? I had a lot of pain around mine from one, was given some antibiotics, used some powder and it seems to be manageable now. Did you talk to your stoma nurse about it? Just make sure you are not running a fever, which I was. I had a slight infection around the area which is kinda obvious because the stuff that comes out around that area is like battery acid. It is nasty stuff.

Equestrian Mom
Veteran Member


Date Joined Mar 2008
Total Posts : 3039
   Posted 6/21/2010 5:26 AM (GMT -6)   
Definitely have the skin looked at...there are many avenues you can try, but you need to make sure the skin issue doesn't have to be treated first.

Are you eating? Do you WANT to eat?

Are you running fevers over 100?

We all recover from surgery differently but 6 weeks is a long time to still feel crummy. Have you seen your doctor for your follow up?
Crohn’s dx 1989
some terrible years before my
Proctocolectomy in 2008


racerwife15
New Member


Date Joined Jun 2010
Total Posts : 12
   Posted 6/21/2010 1:21 PM (GMT -6)   
I have tried the Eakin seals, every time I use them I get leaks. I use the paste but it stings and used to work better when I had a colostomy, but the skin wound is so wet that it doesn't seal good with this ileostomy. I have tried the Friar's Balsam that someone recommended, it burns and doesn't appear to be helping very much, the stoma powder also. Nothing seems to be helping, I just don't know what else to try. When I had the colostomy, everything fell right into place and I only had like one leak in the entire 6mths but this ileostomy is just unbearable I have to change my bag everyday. I have not been having any fever and I have had a few follow up dr's appts but they do not seem to be too concerned. I do eat pretty much what I want but not very much of it. I have lost nearly 20 lbs over the last 5-6 wks.

Thanks for any responses.
Exploratory surgery Sept/2009 after having "female issues", the doctor found a diverticula abscess, the "not so confident doctor" kept sending me all over town for ultrasounds and doing nothing. In the meantime, I am still wondering around in severe pain. I ended up finally getting a new gynecologist who is the greatest! She saw good reason for a hysterectomy and once in the OR, found I had severe diverticulitis and called in the greatest surgeon ever! Severe diverticulitis had buried itself underneath my uterus and had completely turned my insides to "concrete", my organs were unidentifiable. The surgeon had to "chisel" his way in just so I could have the hysterectomy. I came out of surgery with a colostomy which was NOT expected. 6 months later, May/2010, they went in to do the the colostomy take down and I still had a leak in my large intestines and now I have an ileostomy hopefully for only 6-8 weeks. This is the "short version" of my story.


Anthony1977
Regular Member


Date Joined Jan 2009
Total Posts : 413
   Posted 6/21/2010 1:55 PM (GMT -6)   
Do you have a stoma nurse you can get in touch with?

mom_2 JnJ
Regular Member


Date Joined Nov 2009
Total Posts : 146
   Posted 6/21/2010 4:40 PM (GMT -6)   
when I had my temp ileo I had tons of pain from the thing leaking. The ostomy nurse was usless wanting me to make these little L's which did not work one bit. My mother who is a RN went back home and asked the ostomy nurse there and she told my mom about these seals. They were these O seals that were pliable for irregular stoma's. It was what save me for the rest of the time I had that ileostomy. I cant for the life of me remember the name but my mom said it was in the online catalog she went to.

Equestrian Mom
Veteran Member


Date Joined Mar 2008
Total Posts : 3039
   Posted 6/21/2010 6:52 PM (GMT -6)   
mom_JnJ~those are either the Eakin or the Adapt rings:)

racerwife15~you need to get a second opinion about your skin...does your doc have special WOC Nurses? Or is it just their regular office nurse? If they aren't WOC Nurses (ET Nurse) you need to find one in your area.

If your skin is weeping, you won't get a good seal, no matter what you try:( I am sorry you are going through this, but please don't stop until you get the help you need right now!!! There are many hospitals that have WOC Nurses...where are you located?
Crohn’s dx 1989
some terrible years before my
Proctocolectomy in 2008

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