takedown ileostomy

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vetman
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Date Joined Jun 2010
Total Posts : 8
   Posted 6/23/2010 9:57 PM (GMT -6)   
Hi, I had a takedown ileostomy 2wks ago. I go to the bathroom about 15 or more times a day. The Dr. says he might have to go in there and dilate the colon so that more stool is coming out at once. He thinks there might be some scar tissue in the colon from the resection that was done. Has anyone had the same thing happen to them and if so what was the outcome? Thanks

Equestrian Mom
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Date Joined Mar 2008
Total Posts : 3071
   Posted 6/24/2010 6:52 AM (GMT -6)   
vetman~welcome to the forum!

Are you in pain? Two weeks is still early and our bodies have to readjust after being reconnected...did you doc give you instructions for Imodium or Metamucil?

Has you doc done any tests to see if you have a stricture? Yes, dilation can take care of that...I haven't had it done but I believe others on the forum have and should be along.

What was the reason for your temporary ileostomy? Do you have UC or Crohn's?
Crohn’s dx 1989
some terrible years before my
Proctocolectomy in 2008


firstrozier
New Member


Date Joined Jun 2010
Total Posts : 7
   Posted 6/24/2010 4:50 PM (GMT -6)   
I too had a takedown ostomy two weeks ago (I'd had the ostomy for 15 years). My doctor had prepared me to expect many many trips to the bathroom following the reversal as my "system begins trying to remember what to do." We are controlling it as best we can with meds and he told me to expect it to get better a little at a time, but to know it would be a couple of months before things are sort of "normal". As I am on a low residue diet eating no fiber, he pointed out that once we can add that back it will help as well. P.S. The constant visits to the bathroom produced a very raw and painful bottom. My doctor told me about "anti-monkey butt powder" (yes, there really is such a product!) and it has been a miracle worker for me. Just thought I'd share that too.

vetman
New Member


Date Joined Jun 2010
Total Posts : 8
   Posted 6/27/2010 12:44 PM (GMT -6)   
thanks for the feed back everyone. as too why I had the ileostomy, I had a tumor in my colon, it was precancer and it was removed and I had a temp ileostomy for 8 wks, I see the Dr. Tuesday for a checkup then we will see what he has to say then, bm's are still about 15 or more a day, Dr. told me to take milk of mag if I get constipated but that was it.Sincerly Vetman

Equestrian Mom
Veteran Member


Date Joined Mar 2008
Total Posts : 3071
   Posted 6/28/2010 1:35 PM (GMT -6)   
Good luck at your appointment tomorrow...definitely ask for remedies for your diarrhea and bulking agents. If you are having problems with a sore bottom you can use calmoseptine lotion and there is even a recent post that 'monkey butt' helps with that, too.
Crohn’s dx 1989
some terrible years before my
Proctocolectomy in 2008


Anthony1977
Regular Member


Date Joined Jan 2009
Total Posts : 413
   Posted 6/28/2010 5:27 PM (GMT -6)   
haha, anti-monkey butt powder!!

vetman
New Member


Date Joined Jun 2010
Total Posts : 8
   Posted 7/6/2010 7:55 AM (GMT -6)   
go in on thursday for another procedure. Dr is going to dilate the rectum where I had my resection done.Hopefully this will work and cut down on the bathroom visits.15 to 20 or more visits a day is just crazy

vetman
New Member


Date Joined Jun 2010
Total Posts : 8
   Posted 7/11/2010 5:28 PM (GMT -6)   
had the dilation procedure done on thursday, didnt hava a BM until Sunday so far about 10 or more time today this is really getting me worried that i went through all of this for nothing, now i am having really bad dizzy spells and almost blackouts:(

answers4me2
Veteran Member


Date Joined Dec 2008
Total Posts : 1161
   Posted 7/11/2010 5:34 PM (GMT -6)   
Vetman, are you losing alot of fluid? Could you be dehydrated? I think you need to call your doctor because being dizzy and almost black outs is not normal.
Diagnosed with colonic inertia, anismus, rectocele, and intussusecption

Surgery June 21, 2010-subtotal colectomy, rectopexy, and a temporary loop ileostomy

Take down-TBA


firstrozier
New Member


Date Joined Jun 2010
Total Posts : 7
   Posted 7/11/2010 8:41 PM (GMT -6)   
 
I know it's worriesome as I have been feeling the same way.  Mine is (as my doctor promised) slowly getting better.  Here are some tips about what is happening, along with a few things I'm doing that are helping:
 
First, remember your intestines are having to re-learn how to function, and what they are suppose to do with this "stuff" coming through them.  Most importantly they've forgotten they are suppose to absorb excess water from your stool, which is a big part of the diarrhea.  You have help them in the meantime with these tricks:
 
Metamucil (not FiberOne, Citracel, ect., but Metamucil) - Metamucil is the only one that contains psyllium fiber, which acts as a sponge to soak up excess water.  Directions say 3 times per day, my doctor told me I can go up to 6 if I want. 
 
Ghar (sp?) gum fiber capsules - like Metamucil, this type of fiber thickens and gets gummy in the intestine, helpings to slow movement.  This can also be taken 3 times per day.
 
Immodium (not Lomotil) - this slows the contractions in the intestines which are what force the food through fast.  My doctor told me to take 3-4 capsules every four hours.  Between adding the fiber that soaks up the water and using immodium which slows the contracting and pushing through of food, there is a good bit of relief.  
 
Lastly, TIME.  Time has to pass and healing has to happen.  I continue to 3-4 months will have to pass before i start feeling confident and somewhat normal, and up to a year to truly be like others.  But in the five weeks since my surgery I've slowed from about 45 movements in a 24 hour period (literally every 15-20 minutes) to about 10 per day, which all now happen in two 2-3 hour periods each day (about 5 times each time over a 2-3 hour period).  My doctor assured me I can't overdose on these things as they too are all passing through me and out; they are just slowing things down.  I'd start out with less dosages of each, play with them and figure out what works for you.  I keep a long of all meds, time I took them, what I ate, and how I do each day.  This has helped me establish a pattern.   I'm taking something every hour in the morning, and gradually move to every 2 hours in the afternoon/early evening.  But there is improvement!  I too was beginning to wonder "what have I done" but I'm not feeling that way now.   Good luck and hang in there. 

vetman
New Member


Date Joined Jun 2010
Total Posts : 8
   Posted 8/1/2010 12:49 PM (GMT -6)   
Thankyou for your imput Firstozier!
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