Post Edited (pelztier86) : 7/5/2010 7:05:10 PM (GMT-6)
Sorry for the delay...I got lost with our previous thread being locked, and this one starting. Apparently I really rely on those e-mail alerts! Whoops.
Lizzie may be going home today. That hasn't been 100% confirmed yet. They stopped TPN and her PICC fluids a couple nights ago; currently she is on only enough fluids to keep the PICC line open. Great news is that she is off the fluids, her labs are holding steady, and she is not dumping! Being without TPN and fluids is exhausting, though, so pray for strength and stamina as her body readjusts to being without those, and having to take everything by mouth. She still has some pain, so we will see what the doctors have to say about that. Keep praying!
Carly- Welcome, sunshine!! I am 24, and I was your age when my health really tanked. I had a total colectomy with ileorectal anastomosis almost three years ago (at 21). Soooooo much better; still have significant systemic motility problems and a mess of a rectum and pelvic floor that the biofeedback therapist is trying to fix. You're in the right place...ask away! And keep smiling!
Has anyone heard from Hodaya? Surgery is getting close...
Have a great day, everyone! Off to biofeedback (yay?)
Love to all,
06/05/2007 - STARR procedure
colonic inertia w/pelvic floor dysfunction
08/16/2009 - total colectomy w/ileorectal anastomosis
Sarah- I did get your e-mail, so sorry for the delay...the weekend got a little nuts. I just sent you a reply, and if I did my time difference math correctly, hopefully you'll get it before you leave for your immunoglobulin therapy. Many prayers!!
Rosemary- Hope the sundae went well :)
Hodaya- While I do not have an ostomy, I have a feeling that you will find this surgery so freeing, and I can't wait to hear how it all goes, and all the new hobbies you will have time for! Have fun getting your bullseye! They put one on me before surgery just in case my surgeon found the need for an ileo. Praying for you; keep us posted!
Tracy- Love hearing that you are doing so well! Remind me again, do you have motility issues with your stomach or small bowel?
Keep praying for Lizzie, everyone! They did not discharge her today, as they are trying to get a better handle on her pain. Pray that she would be encouraged, and that her strength and stamina would multiply!
Love and prayers to all!