j-pouch, diet and weight gain

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mantis
New Member


Date Joined Jul 2010
Total Posts : 8
   Posted 7/24/2010 10:42 PM (GMT -6)   
Hello fellow survivors,
I am new here with very little experience with UC( no symptoms then diagnosed with advanced dysplasic UC and tumor) and 19 months experience with colectomy and j-pouch recovery.
Sparing you,and me, the details of an arduous journey...here is my issue.
After the colectomy, I lost 55 pounds. Yes I was pretty gaunt! Now  I am gaining more than is healthy! My waist is bigger than my hips! Also I am sleepy, and in the bathroom about 15 times a day. My poor bottom!
My take down was 8 months ago.
I wouyld appriciate input on weight issues and foods tolerated. Thanks

Equestrian Mom
Veteran Member


Date Joined Mar 2008
Total Posts : 3071
   Posted 7/26/2010 5:25 AM (GMT -6)   
Welcome to the forum!

Unfortunately, we have to monitor our food intake and exercise, just like a 'normal' person! You can keep a food journal to track what foods are making you go more frequently.

You may find that eating less will decrease your bathroom trips, too!

Good Luck
Crohn’s dx 1989
some terrible years before my
Proctocolectomy in 2008


mantis
New Member


Date Joined Jul 2010
Total Posts : 8
   Posted 7/26/2010 8:26 AM (GMT -6)   
Thanks for your input and support Ohio 76. I will keep a journal as you suggest.
I met someone yesterday who told me that my diet was "Too healthy" ! She eats alot of beef and rarely consumes fruits or veggies. Can't imagine for myself.

suebear
Forum Moderator


Date Joined Feb 2006
Total Posts : 5419
   Posted 7/26/2010 9:15 AM (GMT -6)   
It seems that some jpouchers avoid fruits and veggies to keep their frequency down and some avoid those foods because they make them uncomfortable. I have had my jpouch for 9 years and I eat everything. Not only do I prefer a diet higher in fruits and vegetables, but the increased frequency is not a problem for me. Yes, regaining my health after UC has meant that my wieght is higher post surgery. I'd love to lose 10lbs but am not motivated at the moment. I do engage in regular cardiovascular exercise as I feel it's important for overall health. You can meet more jpouchers at www.jpouch.org

Sue
dx proctitis in 1987
dx UC in 1991, was stable until 1998

1998 started prednisone, asacol, pentasa, nortriptylene, ativan, 6MP, rowasa enemas and suppositories, hydrocortisone enemas, tried the SCD diet, being a vegetarian, omega 3s, flax, pranic healing, yoga, acupuncture, probiotics

2000 lost all my B-12 stores and became anemic

2001 opted for j-pouch surgery- now living life med-free


mantis
New Member


Date Joined Jul 2010
Total Posts : 8
   Posted 7/26/2010 11:30 AM (GMT -6)   
Suebear,
I love your name...the bear is the symbol for healing!

Thanks for your input. I am omiting a few foods to see what happens. Are you still a vegitarian?

suebear
Forum Moderator


Date Joined Feb 2006
Total Posts : 5419
   Posted 7/26/2010 1:39 PM (GMT -6)   
Thanks! I did not know that bear is the symbol for healing?

I am not a vegetarian but I do eat a primarily vegetarian diet. I only eat meat items when I dine out which is about 1X per month. Mostly I live on fresh fruit and fresh vegetables. But you can meet vegetarian jpouchers at the jpouch site. Kathy, on that site, is a vegetarian and has had her jpouch for 18-19 years.

Sue
dx proctitis in 1987
dx UC in 1991, was stable until 1998

1998 started prednisone, asacol, pentasa, nortriptylene, ativan, 6MP, rowasa enemas and suppositories, hydrocortisone enemas, tried the SCD diet, being a vegetarian, omega 3s, flax, pranic healing, yoga, acupuncture, probiotics

2000 lost all my B-12 stores and became anemic

2001 opted for j-pouch surgery- now living life med-free


honestwoman50
Veteran Member


Date Joined May 2009
Total Posts : 833
   Posted 7/29/2010 11:34 AM (GMT -6)   
mantis
Do you have a internal J-pouch?
 
Leslie
Leslie King
 
  1984 Tubligation  1992 Diagnosed with Thyroid tumor    
1993 Gallbladder Removed  1997 Hysterectomy  1998 Carpol Tunnel 
 1999 Spinal Cord Surgery for a Anacroid Syst
2001 Lower Lumbar Fusion L4-5  
2003 Sigmoid Colon Resection
 2006 Right Knee Replacement 2005 Breast Reduction
 2008 RE-did the Lower Lumbar Fusion/ lamanoctomy
2010 DX: colonic Inertia/ Pelvic Floor Disorder
2010 Total Colectomy ABD W/O proctectomy; w/Ileosto
 
  


mantis
New Member


Date Joined Jul 2010
Total Posts : 8
   Posted 7/29/2010 12:03 PM (GMT -6)   
hi leslie,
yes, I had a colonectomy Feb 2009 and a take down Nov 2009.

I was useless for a year but I am doing pretty well now except for huge appitite and weight gain . While my scar is almost invisable, my belly looks like my rear with two fat bulges.
My waist is bigger than my hips! and I am easily tired.
I see by your history that you are no stranger to suffering. Hope all is well now. Dw/Mantis

mantis
New Member


Date Joined Jul 2010
Total Posts : 8
   Posted 7/29/2010 12:03 PM (GMT -6)   
hi leslie,
yes, I had a colonectomy Feb 2009 and a take down Nov 2009.

I was useless for a year but I am doing pretty well now except for huge appitite and weight gain . While my scar is almost invisable, my belly looks like my rear with two fat bulges.
My waist is bigger than my hips! and I am easily tired.
I see by your history that you are no stranger to suffering. Hope all is well now. Dw/Mantis

NewShinyCD
Regular Member


Date Joined Oct 2009
Total Posts : 474
   Posted 7/29/2010 12:51 PM (GMT -6)   
I have a loop ileo and I wish I could gain my weight back :(

I used to weigh 175ish now I'm only 120lbs. I'm eating lots of protein and carbs but it's like it doesn't even faze my body.
21 y/o male livin' in Georgia. Diagnosed with Left-Sided Colitis in 2002; re-diagnosed with Pancolitis in Nov. 2009.
June 2010 I beat UC by having surgery.
Drugs tried: Just about every 5ASA medicine, enemas, prednisone, turmeric, fish oil, Remicade, psyllium seed powder, Metamucil.
Unable to take 6MP.
Step one of Jpouch surgery - 6/2/2010
Readmitted back to hospital because of blockage (my fault cause I ate Steak n Shake 3 days after being released from surgery) - 6/10/2010
Step two of Jpouch surgery - 9/?/2010


mantis
New Member


Date Joined Jul 2010
Total Posts : 8
   Posted 7/29/2010 7:14 PM (GMT -6)   
I was a scarecrow before my "take down". Now I am gaining like crazy.
Bet you will be back to your desirded weight in no time after September!

KDelphi
New Member


Date Joined Aug 2010
Total Posts : 6
   Posted 8/1/2010 11:23 PM (GMT -6)   
I have gained almost 60 lbs since my j pouch (10 yrs ago) , even when I have been in the hospital on all fluids...drs cant explain it. I see alot of cheerleading about j pouches, which is all well and good, but I think that drs misrepresent how well they work for most...if it wouldnt involve major surgery, I would have it reversed.

summerstorm
Veteran Member


Date Joined Aug 2006
Total Posts : 6571
   Posted 8/1/2010 11:44 PM (GMT -6)   
newshinycd-try icecream for breakfast, nachos for lucnh, and baileys for dinner, its guaranteed to pack on the pounds! :D
UC for 8 years, before finally kicking its butt and having a permanent ileostomy April 17 2007!
-I have gone to find myself, if i get back before i return, keep me here-
No matter what kind of day you are having, take five minutes to sing loudly and dance like a fool!
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