I am sorry about the leaks, but it seems to be the norm and especially since the stoma size is changing, it will settle down. I had loads of leaks, and still worry about it alot. I use the soft convex bags and what really seemed to have settled the skin irritation was cavilon spray. It also allows the bags to stick, and you do not have to wiat for the spray to dry because as soon as you spray it on it dries withing seconds and then stick your bag on. I also had stools in the rectum and I still feel like going thru there. The docs say it is ok and just sit on the loo. At first I had to use supositories, but check with you doc first. I change my bag every other day, I do not wait for the seals to break down. I hope this will help you.
Hey Sharon, I use a lite comvex puoch and the eakin seals. The eakn seal hole is bigger than my stoma too but i just kinda form it a little to make it smaller, It works good and it has helped alot with the leaks. Do you have insurance that will pay for them? I know they are pretty expensive, iF not I can send you a few to try, that way you wouldnt be wasting money if they dont work out. Just let me know. also you can get samples to try too.
I have stool that comes from the rectum too, It irrates the fistulas to death. but it wont be long I wont have that problem, ther are taking out my colon and probably my rectum because the fistulas are so bad and they wont heal.
I use the holister wafers that are thin that feel soft and flexable with a fabric like material. Around my stoma is not flat either and the stomadhesive paste did not work with my iliostomy either. I use the eakin seals (they have 2 sizes) I use the smaller one. My stoma is 3/4" round and I have to stretch the eakin seal a little. Make sure to measure every time before as the size will change and cut away a little at a time because you cant make it smaller if you cut away too much. Make sure you pouch it very close and between it and the eakin seal you should be fine.
Also, don't put any lotions other than those reccomended by holister or such that is made to put under the wafer because the lotions could cause it to come loose quicker. One more thing. After you put the Eakin seal on and the wafer, be sure and press down on the wafer just around the opening of your stoma really good and around the floating flange on the wafer to ensure you have a good seal.
I hope this helps.
My wife had an ileostomy in nov 2004 and subsequently developed a "sliding prolapse" which made getting a bag to stick on, a bit of a problem!! to say the least.
As the Stoma varied in diameter from 25mm to 35 mm depending on it's mood, as well as varying in length from 5 mm to 80 mm, when it goes for a walk!
Initially we had bags falling off or leaking after only 5 hours and the skin became inflamed around the Stoma. However, the use of the Eaken Seal, combined with the evaluation of virtually all the bags on the market, has resulted in a good outcome.
We now use either the Convatec or Holister two part bags with the hole prepunched to 35 mm (1 3/8 inch) and rely on the Eaken Seal to take up the gap.In most cases my wife fits the new back plate when the Stoma is retracted and only about 25mm (1 inch ); making the seal a neat fit around the Stoma.
The back plate or wafer normally stays on for about 4 days and is then replaced. Both of these bag systems have very flexible backing plates compared to the other manufacturers.
However , whilst we have now standardised on the Hollister system,we had early problems with the seal on the bottom of the bag letting go and dumping the contents on the floor. However i have made a small plastic clip that has completly solved this problem and given my wife her confidence back !!
Post Edited (Mossmi33) : 4/27/2013 12:06:36 AM (GMT-6)