I don't have a J pouch but I did have a colon resection and temporary ostomy. Once the ostomy was reversed I found myself living in the bathroom as well. I went online and read how a low residue diet is recommended for people going thru chemo and experiencing D and multiple bm's a day. Their symptoms lined up with mine, although I didn't need chemo for my cancer (Stage I). Long story short, I went on the LRD, kept a food diary (recording every single thing I ate or drank), at small meals, as opposed to 3 large ones. I began my day eating a light breakfast by 7 am, and stopped eating solids by 7 pm each night. If hungry after 7 pm I would drink 1 to 2 full glasses of water, to trick my stomach into thinking I had eaten. It worked, by the time bedtime rolled around I was pretty much done having bm's because I hadn't eaten in hours. I was able to sleep almost straight thru the night, at least 6 hours w/o needing a bm. I also slept flat on my back, to stop or slow down the sensation to have a bm (if necessary but by not eating after dinner I didn't need a bathroom thru the night. Over time I figured out the foods that agreed with me and made sure I ate them. I finally had formed stool and didn't experience D. But I did continue to have multiple bm's, still do (that's for life, I lost the bottom part of my colon, called the sigmoid). But by eating a plain diet, you may be able to solidify the stool and possibly cut down on the number of times you do go. Also, I would highly recommend the eating for 12 hours within a 24 hour period suggestion. You should be able to catch more than sleep than an hour at a time.
Finally, I like my am coffee as well but any drink with caffeine induces colon contractions and bm's. If you could eliminate coffee and the like, you may see improvement. Then down the road you may be able to introduce coffee again but right now I'd refrain from it.
- Rectal CA 4/29/99, Stage I, 90% sigmoid/15" of colon/GB removed, temporary colostomy, reversed 6-26-99
- Chronic IBS/D symptoms, multiple bm's, on low residue diet
- Colace 50 mg, twice daily + Probiotic: Renew Life/Ultimate Flora/Critical Care/80 Billion daily