Skin around stoma irritated!!!

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sno92c
Regular Member


Date Joined Sep 2009
Total Posts : 73
   Posted 1/5/2011 11:45 PM (GMT -6)   
Hello,

I have been having the worst time healing the skins around my stoma. I try to make sure I fit the wafer on correctly and also use an eakin seal. I powder the open wounds up and everything and my skin doesn't seem to want to heal up. Any suggestions on what to do or on what other medicines I can use to speed up the healing time?
Diagnosed in 2004 with Crohn's disease. Resection in 2009. Have tried almost every medication and nothing has worked. Total proctocolectomy June 16, 2010

polishdan
Veteran Member


Date Joined Mar 2010
Total Posts : 1472
   Posted 1/7/2011 4:13 PM (GMT -6)   
sno
I never use powders. The wafer cannot stick to the powder. You will have a built in leak and more irritation. I use Friars Balsam Compound Benzoin Tincture. I get it from Canada. Smeone else has found it in Florida. It comes in a 100 ml bottle. You put it on with a Qtip. When it dries it is sticky. BURNS LIKE H*** on open skin....but it works.
company website www.rougier.com
phone # 866 470 6886
It's about $35 for the bottle, but it lasts a long time.
I put it on with every change as maintenance.

Dan

comitoex
Regular Member


Date Joined Jan 2011
Total Posts : 23
   Posted 1/9/2011 3:24 AM (GMT -6)   
I also have issues its like a bad heat rash that will oose then dry and flake . Is this simmilar or do you have open wounds . will that compound work on a large area?
diagnosed w/ crohn's 1995 , hospitalized 1999 blood loss 8 units recieved, perferated illuim 2000 Illostomy as a result. May 2010 to June 2010 emergency surgery for 3 hernias 1 pinched and blocking. Then another blockage then infection yes 3 surgeries. From then hospitalized for 4 times for blockages, infections and kidney stones. been on many meds and waiting for another hernia surgery.

polishdan
Veteran Member


Date Joined Mar 2010
Total Posts : 1472
   Posted 1/9/2011 7:44 PM (GMT -6)   
I have been trying a different pouch and have been having a lot of itch and irritation. Weirdbeard uses a similar product and he covers the whole wafer area. So I tried it with my Friars....coated the whole area with a cotton ball. Worked magnificantly. I have no itch or irritation. I am on my second wafer with the Friars and it feels great. The first one came off clean with no residue. The Friars came off with the wafer except under the tape.

Dan

80sChick
Veteran Member


Date Joined Oct 2009
Total Posts : 1053
   Posted 1/9/2011 9:43 PM (GMT -6)   
My Tincture of Benzoin is a spray from Smith and Nephew and is much cheaper than $35/bottle. I haven't used it yet because of my yeast infection CRAP, but I will hopefully be able to someday.

Sno, have you seen a WOCN?
Stephanie, 28 years old
Diagnosed with Crohn's Colitis March 2000
Possible diagnosis of IBS-D
Total Proctocolectomy and Permanent Ileostomy 3/18/10! :)
Blockage/Ileo revision 6/8/10 :/
 
Tried: Asacol, Remicade, 6mp, Humira, Xifaxan, Apriso, Imuran, Rowasa Enemas, Colocort Enemas, Psyllium Seed Powder... Tried Probiotics: Align (with no change except bloating) and VSL #3 DS (AWFUL diarrhea).
 
Currently taking: Prenatal Vitamin, Vitamin B 12 Complex, Biotin, Vitamin D, Calcium, Flomax (for urinary retention). 

rumple
New Member


Date Joined Jan 2011
Total Posts : 12
   Posted 1/23/2011 1:48 PM (GMT -6)   
80's chick... what prental do you take? I want to take one (plan to try getting pregnant soon) and have an ileostomy too. the dha fish oil in some stinks! and many are so big... What do you take?
Thanks
:)

Disneynut66
Veteran Member


Date Joined Apr 2009
Total Posts : 586
   Posted 1/23/2011 5:52 PM (GMT -6)   
I use the powder then spray it with 3M spray. It really did the trick.
Diagnosed 2006. 1st step of 2 step j-pouch 1/3/11. 2nd step will be in April! So done with this disease.

dart
New Member


Date Joined May 2006
Total Posts : 12
   Posted 1/23/2011 11:43 PM (GMT -6)   
I use the Friar's Balsam (thanks to polishdan) all around and touch up the open sore with powder. That sore is slowly shrinking. DON'T FORGET TO KEEP THINGS DRY before applying your ring and pouch.

Hope you feel better tomorrow than today!

betsaronie
Regular Member


Date Joined Oct 2007
Total Posts : 318
   Posted 1/24/2011 10:21 PM (GMT -6)   
ditto on the Friar's balsam! That stuff is great!! I bought mine through Amazon; they have a smaller bottle it's only $8 I think. But you don't need much at once. I usually blow dry the area after and then let it sit for about 20 min if I have time and I feel like I won't have any movements. Hope you have some luck with one of these things!
-diagnosed with UC Dec 2006 at 22
-allergic or intolerant to all 5ASAs, sulfa and 6-mp
-emergency transverse colostomy on 9/13/10 from perforated colon
-J-pouch surgery TBD (hopefully in January!)

leepu
New Member


Date Joined Jan 2011
Total Posts : 8
   Posted 1/30/2011 5:28 AM (GMT -6)   
hello sno. if you have skin problem , you can use colostomy belt, where no need to past on your skin, there is separate bag where u can change any time

coppertone
New Member


Date Joined Feb 2011
Total Posts : 1
   Posted 2/1/2011 9:24 PM (GMT -6)   
I had this same problem when I first got my colostomy. I went to a dermatologist and tried alot of prescription topical creams, but what works well for me is CeraVe cream. Also I quit using the alcohol based wipes. I still have irritation now and again but not like in the begining. I also have noticed that the more I sweat, the worse the flare-ups

80sChick
Veteran Member


Date Joined Oct 2009
Total Posts : 1053
   Posted 2/2/2011 6:44 AM (GMT -6)   
I don't actually take a prenatal anymore...needed to update my signature. I take Flintstones multivitamins chewables or gummy.
Stephanie, 29 years old

March 2000-Diagnosed Crohn's Colitis
(Tried every drug imaginable, but lived 10 years with daily diarrhea)
March 18, 2010-Total Proctocolectomy and Permanent Ileostomy! :)
(Now med free, 4 subsequent procedures to correct blockages at stoma site)

Stoma named Zoe...She's my best bud!! :)

lolipop
New Member


Date Joined Jan 2011
Total Posts : 2
   Posted 2/2/2011 11:42 AM (GMT -6)   
Hi Comitoex , I have had the same trouble as you for the last 8 years ...Its very frustrating , I seen a dermatoligist and she gave me a perscription for Ectosone Scalp Lotion 0.1% ....It works extremely well , when needed...My insurance even covers the cost..Hope this helps.. wink
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