I'm so sorry that you are going through so much. I have UC and am having ileostomy surgery on March 1st. So, I know how it feels to be scared, you are not alone. I to have a RVF, that I got during the delivery of my son. It can be very aggravating and embarrassing. My doctors are always telling me it isn't a life threatening problem, so they brush it off like no big deal. Ha! They aren't the ones who have to live with it. I have had two surgeries trying to repair the RVF, but the first one only lasted a day and the second one lasted four days. It is hard for these injuries to heal with someone like us, who have IBD. I don't have an ostomy yet, but I have spoken with many people (especially on here) and they have all encouraged me that it isn't absolutely horrible. I haven't been able to be intimate with my husband for a year (because of the RVF), so with getting an ostomy, I am looking forward to being intimate with my husband again. If the man in your relationship loves you, he will look past having an ostomy. Actually, from the research I have done online, it seems like most men can very easily look past having an ostomy. My husband is a very caring man, who loves me a lot and has no problem with the idea of me wearing an appliance. I know this is a scary time for you, it's scary for me too. All I can really say is that you are not alone and that there is always someone here for you to speak to. I wish you the best of luck in your future surgeries and relationship.
29 year old female
Ulcerative colitis- 13 years
Current meds- sulfasalzine
Meds tried- suppositories, enemas, asacol, prednisone, lialda, immuran, sulfa, remicade
End ileostomy surgery- March 1st