Developing new allergies/autoimmune problems after colectomy?

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elddiReMsihT
Regular Member


Date Joined Nov 2010
Total Posts : 111
   Posted 4/7/2011 10:29 PM (GMT -7)   
I swear I never had sensitive skin before surgery! Now I feel like I'm allergic to everything. :(
 
This is embarrassing, but I just got my period for the first time since surgery, and I'm using the same brand of pads I've used for my entire menstruating life, and I swear I've become allergic to them. The entire *ahem* area they touch is all itchy and broken out... I am so uncomfortable. :(
 
I'm worried that by getting my colon removed, I've only removed my immune system's favorite punching bag, and now it's moving onto different parts of me. My surgeon says he's never heard of this happening, but I'm still so scared!
 
Anyone had problems with this? I'm hoping maybe it's just the post-surgery stress on my body, but I think that'd be over by now... my surgery was in January.
Diagnosed with UC in 2007
Flare in 2007 causing anemia requiring blood transfusions, eventually controlled by asacol and 6-MP.
Flared again in 2009 as 6-MP lost effectiveness, went on TPN and received more blood. Started Remicade, which induced remission.
Flared 2010; Remicade no longer effective.
Had 1st surgery of 3 step j-pouch at CC on 1/19/11. 2nd slated for April, and j-pouch in July!

Post Edited (elddiReMsihT) : 4/7/2011 10:32:38 PM (GMT-6)


2b ColonFree
Veteran Member


Date Joined Nov 2008
Total Posts : 2603
   Posted 4/8/2011 3:50 AM (GMT -7)   
poor thing that sounds aweful. right after my colectomy my whole perineum area was red as a tomato and swollen x5 than usual. but it wasn't ichy or painful at all. my surgeon said it was hematoma, but he did say he's never seen anything like what i had. it went down within few days with anibiotics.

but what you describe sounds totally different and i'm sorry i have no idea what it is. you should def consult with a dermatologist and an allergy/immunologist dr. good luck!
Hodaya
06/05/2007 - STARR procedure
colonic inertia w/pelvic floor dysfunction
08/16/2009 - total colectomy w/ileorectal anastomosis
07/08/2010 - loop ileostomy

blueglass
Veteran Member


Date Joined Dec 2010
Total Posts : 3152
   Posted 4/8/2011 6:50 AM (GMT -7)   
What a drag! I don't know much about it, but nothing to be embarrassed about. Health food stores sell pads made from organic cotton -- expensive, but I'd try them and see if they're any better.

I was having all kinds of crazy immune reactions before my surgery, including some gyn issues.... it's not clear that surgery fixed them, although fortunately I haven't had problems to date.

Were you on prednisone before? Other drug changes? Could it be that the allergies are a separate problem, that drugs you were on before were keeping in check? Just a thought.
48 years old, female.
2004 dx indeterminate colitis. Many drugs, minimal success.
2010-11 Official dx Crohn's colitis. Crazy complications -- cutaneous Crohn's, Erythema Nodosum, marginal keratitis, high fevers. Out of good drug options, tired of scary drugs.
Feb 2011 -- proctocolectomy with permanent ileolostomy; abscess, blood clot. Still healing, still glad for the surgery

Another UC wife
Veteran Member


Date Joined Jun 2007
Total Posts : 2111
   Posted 4/8/2011 7:10 AM (GMT -7)   
Funny you should mention this..........with all the immune suppressant stuff hubby was on he never got a cold and seemed to stay healthy except for the UC overall. We were careful too and if any friends were sick they would stay away. Got the flu shots and did all we could to try to stay healthy.

Well a month or so after the surgery he did get a cold with a cough no less which was annoying and worried us insofar as developing a hernia. He would support the stoma when coughing and fortunately that lasted only a few days.

The pollen is very high right now so he takes sneezing fits...never bothered him before...lol. So of course he is holding onto the stoma area with the sneezing fits. Murphy's Law!

Plus after the surgery it was winter and quite cool here so he wore slippers which he never does...always the flip flops..feet were cold as he was in the house recuperating. Got a darn infection in his big toe which has not responded to the first round of antibiotics and is now on a 2nd round. If it is not gone he will see a Podiatrist. Threw out those slippers which were new but obviously a breeding ground for germs.

Nothing earth shattering but just so weird that these things have happened now that he is off the immune suppressant drugs which kind of confuses us.
64 yr old male suffered with UC & in May 06 had a severe flare & hospitalized 6 days...various prednisone treatments leading to steroid dependence and osteopenia, 12 asacol, 200 mg Imuran, failed remicade infusions Jan-May 2010 Dependence on pain meds. Made decision 6/10 to have surgery which was on 12/17/10 (total proctocolectomy & ileostomy - unable to have the j-pouch) and no longer in pain.

blueglass
Veteran Member


Date Joined Dec 2010
Total Posts : 3152
   Posted 4/8/2011 8:15 AM (GMT -7)   
Aren't allergies when the immune system overreacts? So it makes sense that immune suppressant drugs would help them and that they'd get worse w/out the drugs.... I love the way my lungs feel on pred..... never really had allergies, but I breathe more clearly when I'm on it.

Of course, I hope to never be on it again.....
48 years old, female.
2004 dx indeterminate colitis. Many drugs, minimal success.
2010-11 Official dx Crohn's colitis. Crazy complications -- cutaneous Crohn's, Erythema Nodosum, marginal keratitis, high fevers. Out of good drug options, tired of scary drugs.
Feb 2011 -- proctocolectomy with permanent ileolostomy; abscess, blood clot. Still healing, still glad for the surgery

suebear
Forum Moderator


Date Joined Feb 2006
Total Posts : 5429
   Posted 4/8/2011 8:37 AM (GMT -7)   
Everyone with IBD will always be at risk for developing other AI conditions. Just because you have a colectomy and rid yourself of UC does not mean that you will necessarily avoid rheumatoid arthritis, lupus, etc. Of course you may never develop anything other AI condition either. No one can say for sure.

Sue

betsaronie
Regular Member


Date Joined Oct 2007
Total Posts : 318
   Posted 4/9/2011 9:01 PM (GMT -7)   
yeah ditto what Sue said; one autoimmune disease makes you more vulnerable to others. (Sucks doesn't it?) Of course you can also develop allergies at any point in your life, so maybe it was just your time to develop them, lucky you! Hopefully you can find a replacement pad that won't give you the itches because that's got to be awful! my "lady bits," as it were, swelled tremendously after my colostomy so I know how uncomfortable anything being off down there can be. Try comparing the labels, I'm sure they say something about what they are made of. It maybe that your using a scented one and that is a common culprit. Hope you find help soon!
-diagnosed with UC Dec 2006 at 22
-allergic or intolerant to all 5ASAs, sulfa and 6-mp
-emergency transverse colostomy on 9/13/10 from perforated colon
-J-pouch surgery step 1 of 2 3/21/11

stripey
Veteran Member


Date Joined Feb 2011
Total Posts : 1008
   Posted 4/10/2011 11:43 AM (GMT -7)   
May sound stupid but could it be thrush which can attack when body is low after surgery.
Crohn's dx 1989, loop ileo 1992, end ileo 1992. Arthritis developed 1990 Stoma abcess 1995. Azathioprine started 1995. Panprocolorectomy 1999. Stillbirth 2000, antiphospholipid syndrome dx 2000. Flare up 2004, stoma abcess and strictoplasty 2004. Low blood pressure dx with impaired kidney function 2006, fludrocortisone pres. flare up 2010, steroids, Humira, codeine.

esoR
Veteran Member


Date Joined Jan 2007
Total Posts : 4147
   Posted 4/12/2011 7:10 PM (GMT -7)   
Yep, since not having the use of my colon any more, I catch a lot of stuff. Rosemary

Christine1946
Veteran Member


Date Joined Aug 2008
Total Posts : 5533
   Posted 4/14/2011 12:49 PM (GMT -7)   
     Thirty years ago I had terrible allergies and took shots for them.   After about five years or so, the allergies subsided and I thought..the heck with the shots.  This year I am starting to sneeze and have a runny nose rolleyes .   Great, it's been about twenty five years since the allergy attacks.  Maybe being on prednisone for such a long period of time kept things at bay.  My arthritis has been really bad too.  Oh well.  I'm going to be 65 in August, so guess something will always be acting up.  At least it won't be the UP yeah .
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