double loop ileostomy help!

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xxblueeyesxx
New Member


Date Joined May 2011
Total Posts : 2
   Posted 5/21/2011 9:20 PM (GMT -6)   
I just got my double loop ileostomy about 2 weeks ago (2nd stage in j pouch procedure) and i have no idea how to put an appliance on it! with my old end ileostomy, the feces came out of the top, keeping the edges relatively clean. However, now the opening is right next to my skin so the feces go right under my wafer! I have a huge, bleeding rash that is very painful, please help! cry

Another UC wife
Veteran Member


Date Joined Jun 2007
Total Posts : 2111
   Posted 5/21/2011 11:06 PM (GMT -6)   
Someone who has this or has had this I am sure will give you some help as I am not familiar with this type of ileostomy.

Was nobody available to take some extra time to help you since this is a different type of set up to take care of until you have your take down surgery? What a shame that you didn't get the help you needed.

Hope you get this under control real soon.
64 yr old male suffered with UC & in May 06 had a severe flare & hospitalized 6 days...various prednisone treatments leading to steroid dependence and osteopenia, 12 asacol, 200 mg Imuran, failed remicade infusions Jan-May 2010 Dependence on pain meds. Made decision 6/10 to have surgery which was on 12/17/10 (total proctocolectomy & ileostomy - unable to have the j-pouch) and no longer in pain.

Clicky
Regular Member


Date Joined May 2008
Total Posts : 166
   Posted 5/22/2011 12:06 AM (GMT -6)   
I replied this in the UC forum too - just in case you dont see it!


I really struggled with the loop ileostomy. I also had the bleeding raw skin - a real nightmare. What I found to work was a convexity type (cone shaped inward towards the stoma) plate 2 piece system and I always needed to use an ostomy belt to keep it tight on me to stop the leaking. Good luck and I hope that all goes well for you!
Diag proctitis 97 - major flare and extension to left sided colitis Aug 2006 - present.

I bled every day from Aug 2006 (I quit smoking in June 2006) to Jan 2010.

Imuran (Azathioprine) game me liver damage. LDN no luck.  Asacol and mesalazine enemas - seemed to make worse. Lots of Prednisone :(  No luck on drugs!

JPouch, total colectomy and ileostomy (part 1) completed Jan 2010 :)
Takedown (part 2) April 15 2010.

UC no more!!!
 

2b ColonFree
Veteran Member


Date Joined Nov 2008
Total Posts : 2603
   Posted 5/22/2011 4:53 AM (GMT -6)   
blueeyes,

welcome to HealingWell! so sorry to hear about your problems. first of all you must ask an ostomy nurse to come to your house and take care of your skin immediately! i also have a loop ileostomy and mine is also VERY retracted - it goes under the skin! i had my surgery 10 mons ago and after 2 mons the stoma started to retract. what works for me is a convex wafer and hollister's adapt rings - those are a must! also, i reciently started using the ostomy belt - it helps SO much to make the stoma stick out so much more (relatively). i found hollister's belt is better than coloplast's. coloplast's belt falls off easily. i use coloplast's appliance with hollister's ostomy belt and it's great. the belt also helps to prevent developing a hernia.

so i think you must try the convex wafer + hollister's adapt rings (the adapt rings code is 7805) AND the belt. but FIRST you must have an ostomy nurse to see your skin and suggest the right treatment to heal it!! don't let it get worse w/o treatment. GOOD LUCK! let us know how it goes.

Another UC wife
Veteran Member


Date Joined Jun 2007
Total Posts : 2111
   Posted 5/22/2011 7:54 AM (GMT -6)   
The belt really does seem to make a difference. My husband needs the convexity in the wafer as his stoma did not protrude a lot...after about 4 months there is a noticeable difference now in that it is a much better defined protrusion than it was initially and I think wearing the belt 24/7 has helped in that regard.
64 yr old male suffered with UC & in May 06 had a severe flare & hospitalized 6 days...various prednisone treatments leading to steroid dependence and osteopenia, 12 asacol, 200 mg Imuran, failed remicade infusions Jan-May 2010 Dependence on pain meds. Made decision 6/10 to have surgery which was on 12/17/10 (total proctocolectomy & ileostomy - unable to have the j-pouch) and no longer in pain.
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