Why is my bag leaking out the seal again?

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B'derech
Regular Member


Date Joined May 2011
Total Posts : 31
   Posted 6/12/2011 12:31 PM (GMT -7)   
Hi,
I thought I had gotten the perfect, reliable bag systm together, using a convex-light with a protection ring from Eaken. worked reliably for weeks, except for about on seal leak week.
But today it happened three times. The first two I was in public and luckily I always carry supplies wherever I go.
Could this happen because I cut the hole two small?
It looks like stool piles up on top o the stomal and stays there without dropping down. It jams up and when more stool comes out, it does't move, but forcs fluids downwards, compromising the seal an leaking out.
It's the weekend, and I can cope. But I work during the week and am terrified this will happen at work. It's a new job, and I'm not telling anyone about the stoma.
Could this happen because I ate marzipan last night? I heard that marzipan clumps together in the small intestine and could block.
Did anyone have this experience and is there a way to  guarantee the bag better than I am?
Best,
B'Derech

Another UC wife
Veteran Member


Date Joined Jun 2007
Total Posts : 2111
   Posted 6/12/2011 1:57 PM (GMT -7)   
My husband's only bad leak (almost a blowout) did come as a result of eating too much - shrimp chow mein, fried rice and a bunch of green olives for a snack a few hours later. As good as he chewed those foods and the quantity were too much and kind of backed up.

Are you drinking a lot of water/fluids? Maybe now that you are feeling better you're eating things that are clumping up and too thick for transit?

You definitely want the hole cut the right size and not too large either.

My husband was having a leaking issue after he gained some weight. He no longer needed the eakin seal or adapt ring in addition to the convex wafer. Once we eliminated that the convex wafer was enough. His crease also filled out so he didn't need paste any longer on each side either.

Not sure if that info will help you but that is what I kind of figured out and we tried it and it worked.

Go very easy on what you are eating - go with more safer stuff to have your output looser to see how that works so you can go to work and not be stressed out worrying about it.

Before you apply a wafer and the pouch check them really thoroughly to make sure there is no manufacturing defect possibly affecting the seal or lack thereof. Good Luck.
Wife of 64 yr old male suffered with UC & in May 06 had a severe flare & hospitalized 6 days...various prednisone treatments leading to steroid dependence and osteopenia, 12 asacol, 200 mg Imuran, failed remicade infusions Jan-May 2010 Dependence on pain meds. Made decision 6/10 to have surgery which was on 12/17/10 (total proctocolectomy & ileostomy - unable to have the j-pouch) & now pain free

polishdan
Veteran Member


Date Joined Mar 2010
Total Posts : 1476
   Posted 6/12/2011 2:03 PM (GMT -7)   
B'derech
Tell us more. Do you use powders, skin barriers, etc. Is your stoma retracted? Why do you use convex wafers? What else do you do?

Dan

answers4me2
Veteran Member


Date Joined Dec 2008
Total Posts : 1163
   Posted 6/12/2011 2:31 PM (GMT -7)   
I have been having the same issues. My output seems to pile up and this causes a leak. I try to pay attention and shake the output down, but that doesn't always work. I had a leak yesterday, luckily I was at home, and I think this is because I cut the hole too small. But, this has happened several times and the hole was definitely not cut too small. If you figure out how to prevent this, please let me know.

Another UC wife
Veteran Member


Date Joined Jun 2007
Total Posts : 2111
   Posted 6/12/2011 3:53 PM (GMT -7)   
My husband's output seems to be more on the looser side rather than thicker. I'm forming the opinion that looser is better in that it seems to not collect and cake up at the top therefore gravity makes it drop down easier??? Just thinking out loud here. (He has an ileostomy)

If so then is this more a diet type issue and maybe not enough liquids?? I'd be inclined to try to go a few days with foods and liquids to keep output thinner and see if that makes any difference. If so then there needs to be a happy medium with the combination of foods being eaten possibly or definitely amp up the amount of water intake to try to thin out the thicker output??
Wife of 64 yr old male suffered with UC & in May 06 had a severe flare & hospitalized 6 days...various prednisone treatments leading to steroid dependence and osteopenia, 12 asacol, 200 mg Imuran, failed remicade infusions Jan-May 2010 Dependence on pain meds. Made decision 6/10 to have surgery which was on 12/17/10 (total proctocolectomy & ileostomy - unable to have the j-pouch) & now pain free

B'derech
Regular Member


Date Joined May 2011
Total Posts : 31
   Posted 6/13/2011 1:17 AM (GMT -7)   
Hello all who answered and thank you,
 
I have to admit I was lazy about drinkin enough this weekend. Instead of drinking the 3 liters, I drank barely 2. S that's what happens...
I have a one-piece  (no wafer), drainable bag, convex light, and I press an Eaken ring around the hole before putting it on. It works fine, until yesterday. The last thing I ate, yesterday afternon, was chocolate icecream, so everything was much more liquid-y, and the last bag I applied lasted just fine through the night, is still on, until I change it.
I use the convex light, because it corrected the leakage problems I was having April-May, although my stoma is not refracted. I use stoma powder only when the skin right around the stoma starts to get irritated.
Yesterday around 1 pm we were at a cultural carneval, and I ate a big plate of grilled lamb with rice and peanut sauce (African tent, it was delicious). Usually meat and rice cause no problem. I think the problem was the night before, when I ate several pieces of marzipan, and that I didn't drink enough during the day.
 
What works: I also try to remember to drink a glass of butter milk mornings and evenings. It also keeps things from clumping, keeps things loose, but I think I'm getting too much dairy because I've gotten pimples on my chin.
 
Generally, I don't eat large meals. The other day there was an event at work, with a large lunch. I had no problems, but later I had passed a large piece of cooked carrot into the bag, so I know I need to  chew more carefully.
 
I have the stoma since April 5th, so I could have the second OP beginning of October. I just started my new job on June 1, so I will wait six months from that point and have the OP beginning of November, and possibly have a working j-pouch in January.
 
These leaks make me feel like nothing is under control and I am a bit shaken. If it happens at home or on the weekend, but if it happens at work I feel quite a bit more shaken. I just started the job this month and I don't want anyone to know.
 
All the best,
B'Derech

2b ColonFree
Veteran Member


Date Joined Nov 2008
Total Posts : 2603
   Posted 6/13/2011 3:07 AM (GMT -7)   
which company are you using? i had the very same problem when i used hollister's appliance. my stools is mostly thick and piles up on top of the stoma and when more of that thick stools came out, it actually pushed the wafer and separated it from my skin and everything fell apart. like you, i got really stressed about it. it also happened to me at work and made me really shaky too. so i tried coloplast and with coloplast, no matter how much thick stools piles up, it never beats the wafer, so ever since i've been very happy  smilewinkgrin  
 
one more thing is that lately i've started wearing an ostomy belt and that seems to help so much more, helps to keep the whole thing to stick closer and tighter agaisnt my body. are you wearing those belts?

Post Edited (2b ColonFree) : 6/13/2011 3:10:28 AM (GMT-6)


B'derech
Regular Member


Date Joined May 2011
Total Posts : 31
   Posted 6/13/2011 4:14 AM (GMT -7)   
I'm not wearing a belt, I don't see how that could help from leakage flowing out of the stoma and under the seal.
I don't use a wafer, so I only have one part, and it never falls off or comes lose, the only bad thing that can happen is leaking.
I am using Coloplast too. I had no problem with the Hollister convex light, actually, it held really well after week eight, when my stoma stopped changing. But I am now using Coloplast because they make a midi size convex light, and Hollister only makes maxi. I use maxi most of the time, but I carry the midi size with me  and use them on the weekends. The maxis are good while I work, because I don't have to think about emptying so often.
I know many of us on the forum will have the ostomy forever, but I am due to have pouch operations in the winter and I really cannot wait to be rid of ths bag! I feel it all the time, and it makes me feel so un-free with my body.

2b ColonFree
Veteran Member


Date Joined Nov 2008
Total Posts : 2603
   Posted 6/13/2011 8:57 AM (GMT -7)   
well i guess if it's liquidy and leaks, maybe the belt won't help. have you ever tried hollister's adapt rings? someone once told me they are more durable than the eakins. maybe it's worth a try. refuah shlema :)
Hodaya
06/05/2007 - STARR procedure
colonic inertia w/pelvic floor dysfunction
08/16/2009 - total colectomy w/ileorectal anastomosis
07/08/2010 - loop ileostomy

B'derech
Regular Member


Date Joined May 2011
Total Posts : 31
   Posted 6/13/2011 9:55 AM (GMT -7)   
It leaks when it's not liquidy, because it comes out of the stoma and stays there. Then more comes and can't get out, so the liquid seeps down and dissolves the seal.
But toda raba, I'm going to ask my stoma nurse to get me some samples of the Hollister rings and see how they work!

run4pancakes
Veteran Member


Date Joined Oct 2008
Total Posts : 938
   Posted 6/13/2011 10:28 AM (GMT -7)   
Definitely talk to your stoma nurse, they are really good at trouble shooting this kind of stuff. The Hollister Adapt rings were really good for me for months, and then randomly started failing me. My ET nurse asked me a bunch of questions and then suggested I switch from the rings to the paste that comes in a tube. Somehow, it has magically worked for me. I also had to cut my hole a little bigger because I was passing output through the secondary opening of my loop ileo. Your nurse will be a great help at getting this mystery solved and helping you to be comfortable again. I understand being shaken up by leaks....it's an awful feeling.
UC dx 2/08

Done with the drugs. Step 1 (of 3) J-pouch surgery 3/22/11, Steps 2 & 3 TBD
http://life-takes-guts.blogspot.com/

B'derech
Regular Member


Date Joined May 2011
Total Posts : 31
   Posted 6/13/2011 10:45 AM (GMT -7)   
Hi run4,
 
I actually don't have the brightest stoma nurse and generally have to figure things out myself, which isn't a bad thing.
I have an illeostomy, which is less complicated. It seems I will get a leak when I'm wearing something up against the stoma. This time I am also willing to consider that I hadn't drunk enough for two days. And I ate a bunch of marzipan friday night.
 
The Hollister rings might work better than the Eakin, although the Eaken are not bad. I'd still like to have a more reliable feeling.
 
I read a bit of your blog. You have a new fan...!

run4pancakes
Veteran Member


Date Joined Oct 2008
Total Posts : 938
   Posted 6/13/2011 10:55 AM (GMT -7)   
Thanks! :-)
UC dx 2/08

Done with the drugs. Step 1 (of 3) J-pouch surgery 3/22/11, Steps 2 & 3 TBD
http://life-takes-guts.blogspot.com/

B'derech
Regular Member


Date Joined May 2011
Total Posts : 31
   Posted 6/13/2011 11:06 AM (GMT -7)   
Run4
Just read a bit more of your blog. I went through a very similar experience with UC and prednisolon, it made things quite dramatic for me emotionally but in the end didn't even do the trick with inflammation. I had the first of three surgeries nine days after you had yours. The GI profession is finding that doing the procedure in three steps works out better. I tell myself that when I start submerging in self-pity about having to be cut open three whole times, even with the laproscopy it takes the starch out of you for weeks.

2b ColonFree
Veteran Member


Date Joined Nov 2008
Total Posts : 2603
   Posted 6/13/2011 12:34 PM (GMT -7)   
good luck with the adapt rings! :) hope it's your answer.
Hodaya
06/05/2007 - STARR procedure
colonic inertia w/pelvic floor dysfunction
08/16/2009 - total colectomy w/ileorectal anastomosis
07/08/2010 - loop ileostomy
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