stoma growing?

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tryingtokeepmyheadup
Regular Member


Date Joined Nov 2010
Total Posts : 215
   Posted 8/16/2011 9:59 PM (GMT -7)   
My stoma is longer now all of a sudden after 2 months??  My hole used to be in the middle now it's drooping down.  did I break it?  my stomach hurts everytime I move now.
DX 2/10 UP. DX 07/10 UC. Pancolitis. tried: Canasa, Asacol, Bentyl, Imodium, Imuran, Prednisone, Flagyl, Cipro, Remicade, Codeine, Tramadol, Xanax, Morphine, Vicodin, Prozac, ~ nothing worked. 1st surgery 6/8/11! 2 more to go!

summerstorm
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Date Joined Aug 2006
Total Posts : 6571
   Posted 8/16/2011 10:44 PM (GMT -7)   
I don't think you broke it they change shape over time. They can shrink and grow for the first 6 months.
It depends on what kind of hurt you have, you may want to call the dr and ask if its a new pain.
UC for 8 years, before finally kicking its butt and having a permanent ileostomy April 17 2007!
-I have gone to find myself, if i get back before i return, keep me here-
No matter what kind of day you are having, take five minutes to sing loudly and dance like a fool!

Serenitee
Regular Member


Date Joined Apr 2011
Total Posts : 447
   Posted 8/16/2011 11:31 PM (GMT -7)   
Tryingtokeepmyheadup,

I am sorry to hear that your stoma is growing & your stomach pain. Have you called your Surgeon's Office yet? How long has this been going on? Is your's temporary?

I had my ileostomy in May, and my stoma is perfectly round & it has gotten smaller the last past couple weeks. I was using the 1 1/8th measuring circle & now 1"...My next appt. is in September & we will then discuss making it permanent. I definitely want it permanent & my large intestines + rectum removed. I just don't want my stoma to change cuz its perfect right now.

I really hope your pain goes away & you don't have any complications. Pleez call your Doctor and keep us posted on your outcome. You will be in my thoughts & I truly hope it is all fine.

Your Healingwell Friend,
Serenitee

Loop ileostomy May 2011, Pelvic/Bladder Trauma & dysfunction, 15-surgeries from internal to knees/shoulder.

Subzeromambo
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Date Joined Sep 2009
Total Posts : 1143
   Posted 8/17/2011 1:49 AM (GMT -7)   
tryingtokeepmyheadup,
My stoma is suddenly wider and longer and more painful after four months. I'll get an opinion for the surgeon next week. The pain has increased but I thought it was because I am targeting abdominal muscle groups with workouts in bed. I wonder if the backbends aren't pushing the stoma out a bit. I alternate beteen back flexes/arches and five types of gentle crunches. The program is from Lance Armstrong's Livestrong website. I found a lot of good information on how to reclaim and rebuild our bodies after postabdominal surgery.
I treat the pain with heated bucky bags. Bubky bags are filled with buckwheat hulls and have a special outer fabric that retains heat for many hours. I use lavender sachets in the bags for a relaxing smell. Microwave no more than 2 minutes. They are better than oxycdone!
Pain is keeping me in bed for a couple of days per week but I am getting stronger!
Diagnosed 1987 with lower left colitis. Hospitalized often. Mega toxic pan colitis Dec. 1999. Perforated colon and total colectomy April 2011.

2b ColonFree
Veteran Member


Date Joined Nov 2008
Total Posts : 2603
   Posted 8/17/2011 2:51 AM (GMT -7)   
how long is longer? could be a prolapse, esp if you say your stomach hurts. call your surgeon.
Hodaya
06/05/2007 - STARR procedure
colonic inertia w/pelvic floor dysfunction
08/16/2009 - total colectomy w/ileorectal anastomosis
07/08/2010 - loop ileostomy

qwerty1
Regular Member


Date Joined Feb 2009
Total Posts : 402
   Posted 8/17/2011 4:03 AM (GMT -7)   
I was worried when my stoma started getting considerably longer and wider about 2 months after surgery. It has stopped now and turned out to simply just be 'the norm' after surgery. I do think you need to get your pain looked into as soon as you can...doesn't sound too fun :(
 
24 y/o female from UK dx with UC (Proctitis) Jan 08. Never fully been in remission, resistant to nearly all meds tried. Also dx with IBS. Proctocolectomy+pouch surgery with temp loop ileostomy 9th April 11.
Currently taking daily:Tramadol, 20mg MSR (slow-release Morphine), 40mg Loperamide, Cyclizine, 60mg Seroxat (anti-anxiety), Multivitamins+Iron

Equestrian Mom
Veteran Member


Date Joined Mar 2008
Total Posts : 3075
   Posted 8/17/2011 6:11 AM (GMT -7)   
I agree with Hodaya...it sounds like it could be prolapsed. Let your surgeon know.
formally known as OHIO76 ~ honoring my daughter's passion!
Crohn’s dx 1989
some terrible years before my temporary ileo in 2001
Proctocolectomy w/end ileo in 2008
...wish I knew then what I know NOW!

tryingtokeepmyheadup
Regular Member


Date Joined Nov 2010
Total Posts : 215
   Posted 8/17/2011 7:39 AM (GMT -7)   
well I have my next pre op tomorrow so I'll ask my surgeon then. I guess if there is a problem, they can fix it when I go in for step 2 on 9/7..
DX 2/10 UP. DX 07/10 UC. Pancolitis. tried: Canasa, Asacol, Bentyl, Imodium, Imuran, Prednisone, Flagyl, Cipro, Remicade, Codeine, Tramadol, Xanax, Morphine, Vicodin, Prozac, ~ nothing worked. 1st surgery 6/8/11! 2 more to go!

2b ColonFree
Veteran Member


Date Joined Nov 2008
Total Posts : 2603
   Posted 8/17/2011 12:43 PM (GMT -7)   
oh that's great you're seeing him tomorrow. let us know what he sais.
Hodaya
06/05/2007 - STARR procedure
colonic inertia w/pelvic floor dysfunction
08/16/2009 - total colectomy w/ileorectal anastomosis
07/08/2010 - loop ileostomy

tryingtokeepmyheadup
Regular Member


Date Joined Nov 2010
Total Posts : 215
   Posted 8/17/2011 12:47 PM (GMT -7)   
its only about 1/2 inch longer maybe Im just being paranoid, will see!
DX 2/10 UP. DX 07/10 UC. Pancolitis. tried: Canasa, Asacol, Bentyl, Imodium, Imuran, Prednisone, Flagyl, Cipro, Remicade, Codeine, Tramadol, Xanax, Morphine, Vicodin, Prozac, ~ nothing worked. 1st surgery 6/8/11! 2 more to go!

torranceboy
Regular Member


Date Joined Aug 2011
Total Posts : 125
   Posted 8/17/2011 2:16 PM (GMT -7)   
i had prolapsing issues after my original colostomy. after about 5 weeks it began to come out and a year later it would prolapse out a total of 12 inches. The only reason it didn't go further is because it would hit the bottom of the bag and stop.

I then had corrective surgery at the cleveland clinic and dr stocci fixed it but after a few months it started again. as of today it prolapses about 3-4 inches. For the most part its not that big of an issue in my day to day life. But when it comes time to change the pouch its a major problem.

As far as the pain, I never experienced pain but i did have what felt like a bad stomach ache when it would prolapse all the way out. the only way to make it better was to either lay down or sit in some kind of reclined position. And when it prolapsed that bad i couldn't do much but sit or lay down to make the discomfort go away.

The surgeon will probably tell you that a little prolasping is normal and not a concern but if it continues then you'll want to do something about it.
Diagnosed in 2003 with Crohn's
Colostomy in 2009
Currently on Cimzia

run4pancakes
Veteran Member


Date Joined Oct 2008
Total Posts : 938
   Posted 8/17/2011 9:52 PM (GMT -7)   
Could be prolapse, or the pain could maybe be a hernia? I'm glad they are seeing you so soon so that you'll have an answer. The orientation of the opening of my stoma changed after a couple of months, too. It was centered, but now is more toward the top. That part seems normal to me. :-)
UC dx 2/08

Done with the drugs. Step 1 (of 3) J-pouch surgery 3/22/11, Steps 2 & 3 TBD
http://life-takes-guts.blogspot.com/

tryingtokeepmyheadup
Regular Member


Date Joined Nov 2010
Total Posts : 215
   Posted 8/19/2011 2:45 PM (GMT -7)   
Well, who knows! My surgeon didn't seem too worried about it. It is bleeding all the way around the base! My wafer isn't too tight either that I can tell! No one seemed to care since I'm getting a loop in a few weeks UGH!
DX 2/10 UP. DX 07/10 UC. Pancolitis. tried: Canasa, Asacol, Bentyl, Imodium, Imuran, Prednisone, Flagyl, Cipro, Remicade, Codeine, Tramadol, Xanax, Morphine, Vicodin, Prozac, ~ nothing worked. 1st surgery 6/8/11! 2 more to go!
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