Burning around stoma.

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Ju330
Regular Member


Date Joined Dec 2009
Total Posts : 175
   Posted 11/15/2011 12:59 PM (GMT -6)   
Last night I did a change a few hours before I went to bed. The skin around my stoma looked good, except for one little tiny red spot at the 12 o'clock point. No big deal, I thought. I have not had any problems with leaking or skin irritation or anything so far- in fact, even after 4 days and a shower or two, I sometimes have trouble getting the flange unstuck from my skin. Anyway, I was just falling asleep when I felt this burning or stinging right around my stoma, like under where the Eakin Seal is. I reeaally didn't want to take everything off after having just put it on, but after a little while of the feeling coming and going (it was not constant), I figured better safe than sorry and I'd better have a look at what was going. So, off everything came, aaanndd... best I could figure, a teensy tiny bit of outpout had worked it's way under the flange and the Eakin Seal and was there on the edge of my stoma and my skin, on the bottom, 6 o'clock point. There were also a couple of red dots like that on the top, now on the bottom, but a couple of inches from the purported leak. Everything else looked absolutely fine. Got myself all set up and went back to bed. Now, today, I have had that same burning/stinging feeling a couple of times, and it hurt! It's gone now and I don't know what the deal is. I have a feeling it's not a leak, but my skin just being irritated where the red spots are. I have this powder stuff the ostomy nurse gave me, but she didn't explain how to use it... best I can figure out, I need Skin Prep in order to use it, or else the flange won't be able to stick on top of just the powder, right? I have Skin Prep coming in the mail in a couple of days.
 
Any advice on what might be going on? Do you think it's just skin irritation, or could there be some sort of leaking going on? Oh, by the way, I think last night I cut the flange a bit too big, which I thought explained how some output snuck out of there... I definitely made sure to make it smaller the second time, so nothing should be able to squeeze out of there, lol. I use Hollister two-piece, and, as I said, Eakin Seals.

summerstorm
Veteran Member


Date Joined Aug 2006
Total Posts : 6564
   Posted 11/15/2011 1:15 PM (GMT -6)   
Sometimes right after I change that happens, I don't know why. It usually goes away in a few hours or a day. The powder iis gonna lessen your wear time and cause you to change more often which is gonna lead to more irriation. I get those little red bumps sometimes too.
Wait it out and see if the burning goes away, and then when you change you will be able to see if there was a leak.
UC for 8 years, before finally kicking its butt and having a permanent ileostomy April 17 2007!
-I have gone to find myself, if i get back before i return, keep me here-
No matter what kind of day you are having, take five minutes to sing loudly and dance like a fool!

blueglass
Veteran Member


Date Joined Dec 2010
Total Posts : 3073
   Posted 11/15/2011 1:22 PM (GMT -6)   
I also find that sometimes it hurts right after I change the pouch.

You do need skin prep for the powder, it forms kind of a crust. But it can make the pouch not stick, so you have to be careful not to get much powder on.... I had this problem for a while and I just used a little prep on the area, without the powder, and that helped. You can also put some paste inside the Eakin seal if it doesn't fit well (got that idea from Blueheron, haven't tried it yet).
49 years old, female. Sick for way too long with Crohn's (or possibly UC) Proctocolectomy and permanent ileostomy in Feb 2011. Surgery for lingering perineal wound on Sept 26. Other than the wound, been feeling healthier than I have in years.

Jackie_0mg
Regular Member


Date Joined Sep 2011
Total Posts : 427
   Posted 11/16/2011 1:54 AM (GMT -6)   
i have that problem also i notice when i put a new waffer and everyhing else on my right side of my stomma it burns bad it eventually goes away do you have any "color" around your skin?? for me my skin is dark (im black [brown] theheheh lol) and it's like right around my stoma my skin is a lilttle and i ean a little bubbly and white i try to peel it off but it'sdefinetly my skin! my stoma nurses to use powder to and the spray skin bairrer stuff on it .it makes it look flakey at 1st it worked but i put a LOT of it on guess i shouldnt have according to blueglass advice :) and i deffinetly think its just skin irritation.
UC for 6 1/2 years
had colon removed Oct.10,2011 a laproscopic incession w/ ileo loop (2 surgeries in 1) , temp. ileostomy bag, due for final surgery in December but am going to get it at the end of the school year. use to take 12+ pills a day down to temp. imodium pills :) stoma named Mr.Wiggels

blueglass
Veteran Member


Date Joined Dec 2010
Total Posts : 3073
   Posted 11/16/2011 8:28 AM (GMT -6)   
Jackie have you tried the eakin seals (or adapt rings)? They are much easier to use than the powder/spray around your stoma and they work better too.

A little OT, but does it bother you that all the opaque ostomy bags are "flesh colored" for white people? That's something that's bugged me from the start, although they match my skin pretty well.... I talked to my nurse about it, and she was going to talk about it at a conference. I have a colleague whose niece had this surgery, and she is very dark skinned and had a hard time adjusting, and I just wonder if having a bag that was closer to her skin tone would help a tiny bit....
49 years old, female. Sick for way too long with Crohn's (or possibly UC) Proctocolectomy and permanent ileostomy in Feb 2011. Surgery for lingering perineal wound on Sept 26. Other than the wound, been feeling healthier than I have in years.

run4pancakes
Veteran Member


Date Joined Oct 2008
Total Posts : 938
   Posted 11/16/2011 9:40 AM (GMT -6)   
I have always used the stoma powder, but only on the skin directly around my stoma....not under the whole wafer area. I just sprinkle it on the skin right around my stoma and then blow off the excess. A small layer sticks to any red or open skin and the rest blows away. I used to out my adapt ring (similar to eakin) or paste right over top of this with no problems.

Now they have me using the powder as I described above, and then wiping over top of it with a cavilon wipe because my skin was getting bad with this new stoma. That does make sort of a crusty layer. Over that goes a washer I cut out of Hollihesive and then my convex pouch goes on with the paste.
UC dx 2/08

Done with the drugs. Step 1 (of 3) J-pouch surgery 3/22/11, Step 2 10/20/2011, Step 3 TBD
http://life-takes-guts.blogspot.com/

torranceboy
Regular Member


Date Joined Aug 2011
Total Posts : 125
   Posted 11/16/2011 4:35 PM (GMT -6)   
if you blow off the excess powder it shouldn't cause more changes. You really don't need much to help the skin.

Do you use stoma paste? I apply it right on the inside edge of the wafer ring before placing the pouch on me and it works great. almost never leaks.

The only other thing I can think of is maybe you're having an allergic reaction? Something to keep in mind if it gets worse. ;)
Diagnosed in 2003 with Crohn's
Colostomy in 2009
Currently on Cimzia

Ju330
Regular Member


Date Joined Dec 2009
Total Posts : 175
   Posted 11/16/2011 5:09 PM (GMT -6)   
Well, the burning was on and off for awhile yesterday, and then went away and I haven't felt it at all today. So I'm hoping it was just my skin reacting funny to the change or something. I'll probably try the powder just around the edge of my stoma, like under where I put the Eaking ring, next time and see if that helps. I don't use stoma paste, as I haven't had any problems with the wafer not staying on... quite the opposite, actually, I'm usually surprised at how well it's still sticking by the time I'm set to change.
Diagnosed with "moderate to severe" ulcerative colitis, affecting the entire colon, in 2000 when I was 10 years old.

I have taken... sulfasalzine, prednisone, 6mp, entocort, Pentasa, Humira, Asacol, Remicade.

Went into my worst flare ever this year in August, had first of 3-step J-Pouch surgeries on October 18. Recovering and looking forward to a new life!

torranceboy
Regular Member


Date Joined Aug 2011
Total Posts : 125
   Posted 11/16/2011 5:11 PM (GMT -6)   
the paste doesn't just help keep the wafer attached but it also fills in any cracks or creases you may have in the wafer to prevent and leakage. Boy, once a little amount gets under the wafer, your toast.
Diagnosed in 2003 with Crohn's
Colostomy in 2009
Currently on Cimzia

stripey
Veteran Member


Date Joined Feb 2011
Total Posts : 1008
   Posted 11/16/2011 5:46 PM (GMT -6)   
The stoma paste as also great at putting on top on little sore areas. It does sting/burn like hell for first 30 seconds but then goes and next time you change skin is perfect underneath. I used to use it but now use the mouldable wafers and so don't need rings or anything else as the 'turtle neck' on the mouldable bit fits really snugly around stoma and so stops leaks.
Crohn's, antiphospholipid syndrome, Crohn's arthritis, very low blood pressure, low kidney function, ezcema, asthma, ileostomy, numerous surgeries for abscessses & strictures. Humira - very bad permanent side effects incl joint pain, hair loss, fatigue & nreve damage. Azathioprine, immodium, simethicone, fludrocortisone, oxycodone, gabapentin, tramadol, amitriptyline, Folic acid, vit d & calcium.

summerstorm
Veteran Member


Date Joined Aug 2006
Total Posts : 6564
   Posted 11/16/2011 8:24 PM (GMT -6)   
If its still stuck that much then you could try waiting an extra day to change.
UC for 8 years, before finally kicking its butt and having a permanent ileostomy April 17 2007!
-I have gone to find myself, if i get back before i return, keep me here-
No matter what kind of day you are having, take five minutes to sing loudly and dance like a fool!
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