Recovery time after total colectomy

New Topic Post Reply Printable Version
[ << Previous Thread | Next Thread >> ]

Tigerlily25
Regular Member


Date Joined Nov 2011
Total Posts : 67
   Posted 12/4/2011 10:52 PM (GMT -6)   
I'm new here, and I apologize if this has been asked a million times.  I had a total colectomy 11/17/11 and am still suffering from sporadic abdominal pain and weakness.  Is this normal?  I keep reading that it can take months to feel completely normal, but how long has it taken y'all to just get up and around the house?  I can walk, but feel winded when I do.  I can climb a few stairs, but more than a flight seems impossible.  Even just getting up from bed or a couch hurts.  Is this normal?  I had a severe pancolitis flare that lasted about a year, but was very active and healthy beforehand and would love to get back to that.  Any advice?  Thanks everyone!

Female, 24 yr
Diagnosed with UC Jan 2011, symptoms for years
Currently taking: Asacol, Warfarin, Multivitamin, Folic Acid, Iron, Calcium
Previously: Prednisone, Mesalamine enema and suppository, Imuran, Remicade
Colectomy 11/17/11

flchurchlady
Veteran Member


Date Joined Jul 2007
Total Posts : 2764
   Posted 12/4/2011 11:42 PM (GMT -6)   
Welcome, beachgirl. You had major surgery less than 3 weeks ago, so it's completely normal to feel pain and winded when you get up to walk around the house. Your body is healing, which takes a lot of energy. Take it slow, give yourself time to rest, and your strength will return little by little.

Doctors say it takes a good 6 weeks to heal from any surgery, and this wasn't just "any surgery". After my proctocolectomy, it took me about 10 weeks before I felt normal again.

Take care and keep us posted on how you're doing!

:-) Cecilia
Dx'd Crohn's in '99 at age 28. Proctocolectomy and permanent ileostomy in '06.
Disease-free and medicine-free since surgery and very thankful to be healthy again.

Alibee
Regular Member


Date Joined Oct 2010
Total Posts : 286
   Posted 12/4/2011 11:50 PM (GMT -6)   
Hello Beachgirl,

I had my total colectomy on 11/08/11. And I am STILL sore every day. Moving certain ways, getting out of bed...still can't sleep comfortably. Taking a shower is still a major effort for me. I have been getting out of the house and running errands during the day but by late afternoon my whole body hurts and I just have to go lie down in my bed for a while.

I think what you're feeling is very normal, I feel it too!

Good luck and happy healing!

blueglass
Veteran Member


Date Joined Dec 2010
Total Posts : 3095
   Posted 12/5/2011 8:45 AM (GMT -6)   
Welcome. Agree with the others, normal.

You were very sick for a long time and you had major surgery, so please be patient with yourself. How long has it been since you took the pred? That can slow things down too.

I found that it was important to make myself walk a little more every day. For a while after surgery I was barely doing anything, but the walking did help me get some stamina.

Hang in.... you are very likely to bounce back quite well, you're young, much better times are ahead.
49 years old, female. Sick for way too long with Crohn's (or possibly UC) Proctocolectomy and permanent ileostomy in Feb 2011. Surgery for lingering perineal wound on Sept 26. Other than the wound, been feeling healthier than I have in years.

Tigerlily25
Regular Member


Date Joined Nov 2011
Total Posts : 67
   Posted 12/5/2011 9:38 AM (GMT -6)   
Thanks to all of you!  Everyone here is so nice.  I was on Pred for about 9 months and have only been off it since late October, so I guess that's playing a part too.  I've been trying to make myself walk, so thanks for the advice bluegrass.  And I hope you feel better soon Alibee!
Female, 24 yr
Diagnosed with UC Jan 2011, symptoms for years
Currently taking: Asacol, Warfarin, Multivitamin, Folic Acid, Iron, Calcium
Previously: Prednisone, Mesalamine enema and suppository, Imuran, Remicade
Colectomy 11/17/11

suebear
Forum Moderator


Date Joined Feb 2006
Total Posts : 5418
   Posted 12/5/2011 9:41 AM (GMT -6)   
Your symptoms can also be attributed to hydration. Are you staying hydrated? You need to be drinking more than just water and increase your salt intake so that you absorb more fluids.

Sue

B'Dereh
Veteran Member


Date Joined Jun 2011
Total Posts : 1912
   Posted 12/5/2011 4:36 PM (GMT -6)   
Going off the pred could have dramatic symtoms or side effects. When I got down to 5 mg, which was about 3-4 weeks after my colectomy, I suffered a very unusual, intense fatigue, and then weeks 5 or 6 got a whopping cold like I'd never had, for the next three weeks. Then came several months of pimples. I was the pred for four months, including tapering time, so after nine months I could imagine you'd really be having some bouts of weakness.
I have to echo the advice about walking. It helped me a lot, as soon as I could after surgery, up and down the hall, and then going to the supermarket when I got home (as long as you go home as soon as you are tired), and then over the next weeks increasing the walking to over an hour a day, especially in the woods if there are any nearby.
Hope you are feeling better.

windy city
Veteran Member


Date Joined Dec 2010
Total Posts : 579
   Posted 12/5/2011 5:41 PM (GMT -6)   
I ditto the walking advise, it is so very important in your recovery! Eat well, drink enough water and incorporate a gatorade a day. Don't push your body, let it talk to you, but do increase your abilities as it increases your stamina. I couldn't wait to finally be rid of my jello legs! It was a major surgery, take things in stride. Your young and will get better as each week goes by. Best of wishes-Christine

Tigerlily25
Regular Member


Date Joined Nov 2011
Total Posts : 67
   Posted 12/5/2011 8:30 PM (GMT -6)   
Thank you all so much! I hadn't thought of the Pred side effects too much, that's probably affecting me a lot. And I'll try to walk more! Sounds like a step in the right direction
Female, 24 yr
Diagnosed with UC Jan 2011, symptoms for years
Currently taking: Asacol, Warfarin, Multivitamin, Folic Acid, Iron, Calcium
Previously: Prednisone, Mesalamine enema and suppository, Imuran, Remicade
Colectomy 11/17/11

run4pancakes
Veteran Member


Date Joined Oct 2008
Total Posts : 938
   Posted 12/6/2011 9:34 AM (GMT -6)   
It was weird, but around six or seven weeks, I felt like someone had flipped a switch and I suddenly felt better. Not 100% by any means, but I had just that extra bit of energy that I could walk on my treadmill or make a light trip to the store won't it feeling totally wiped out. I was able to build up from there and by around ten weeks or so felt great, was running again, etc. Just give it time and try to patient (I know it's hard). Don't get discouraged....recovery doesn't happen at the same rate every day. You might have several days where you feel no improvement at all and then it seems like overnight you make a big leap forward. It will come. For now, get lots of rest, eat as well as can, walk as you are able, and keep well hydrated. :-)
UC dx 2/08

Done with the drugs. Step 1 (of 3) J-pouch surgery 3/22/11, Step 2 10/20/2011, Step 3 TBD
http://life-takes-guts.blogspot.com/

eyesblue12
New Member


Date Joined Jan 2012
Total Posts : 1
   Posted 1/15/2012 5:24 PM (GMT -6)   
I had a total colectomy due to colon cancer in april 2011. I also had a kidney tumor that they had to freeze/ablate in july 2011. Crummy year. but my tummy was hard to forecast for months. Now I actually find two things that have helped (1) eating a white food diet - no roughage, no fresh veggies or fruits, no nuts/dried fruits. And not really any red meat or processed meats ..hot dogs and such. (2) keeping hydrated and taking 3 immodium a day and 2 servings of benefiber a day help the stool get a little firmer and stop the diahrrea runs.
New Topic Post Reply Printable Version
Forum Information
Currently it is Wednesday, October 22, 2014 2:56 AM (GMT -6)
There are a total of 2,248,131 posts in 250,087 threads.
View Active Threads


Who's Online
This forum has 157383 registered members. Please welcome our newest member, Froglet.
249 Guest(s), 5 Registered Member(s) are currently online.  Details
garylouisville, GC1pink, paulroy, JUBEE, xy123


Follow HealingWell.com on Facebook  Follow HealingWell.com on Twitter  Follow HealingWell.com on Pinterest  Follow HealingWell.com on YouTube
Advertisement
Advertisement

©1996-2014 HealingWell.com LLC  All rights reserved.

Advertise | Privacy Policy & Disclaimer