Ileostomates prone to kidney stones and gall stones too?

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esoR
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   Posted 12/16/2011 2:11 PM (GMT -6)   
I know we with ileos or those without the use of our colons are more prone to kidney stones due to dehydration that is why we have to drink drink drink. But I also read that we are prone to gall stones and the anti-gallstone diet says don't eat too much fatty stuff and don't eat eggs, etc, etc. then they proceded to list all the stuff I can eat with an ileostomy.

Though some can I can't do green leafies, salads, etc, all the roughage type veggies and fruits that are in the non-fat category.

The dairy I eat and drink I make sure is low fat or no fat such as skim milk etc.

BUT, this is a catch 22. Are there any long time ileostomates or those without colon who have had issues with either kidney or gall stones?

Or is this one of those things that MIGHT happen, but also might not type of things.

Rosemary

suebear
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Date Joined Feb 2006
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   Posted 12/16/2011 2:16 PM (GMT -6)   
Yes, it's true. We are more likely to have both of those problems but it doesn't necessarily mean we will. I have been without my colon/rectum for 11 years, have not had kidney stones nor gall bladder issues. I don't eat or drink to prevent either, nor do I often think about it.

Sue
dx proctitis in 1987
dx UC in 1991, was stable until 1998

1998 started prednisone, asacol, pentasa, nortriptylene, ativan, 6MP, rowasa enemas and suppositories, hydrocortisone enemas, tried the SCD diet, being a vegetarian, omega 3s, flax, pranic healing, yoga, acupuncture, probiotics

2000 lost all my B-12 stores and became anemic

2001 opted for j-pouch surgery- now living life med-free

esoR
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   Posted 12/16/2011 2:23 PM (GMT -6)   
Sue, That is really good to hear. I have Gall Bladder history in my family. mother and her brother and father and one of his sisters. I guess I just do the best I can. I am the one who had all the small bowel adhesions and lost the use of colon and rectum and small intestine in an unneeded GYN surgery (later found out unneeded). Lucky to be alive with ileo as small bowel could be saved as another doc got the adhesions off. BUT I KNOW I'm not a candidate for any more surgery with all my adhesions. Sure hoping I don't go down this road.

Before all this happened I literally lived on fruits, veggies, lean meat, now I have to eat rice cereal, dairy products, yogurt, cottage cheese, eggs all the stuff that will pass through my stoma but hardly fat free. Catch 22, if you know what I mean.

Thanks for reply Rosemary

Shaz032
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   Posted 12/16/2011 11:13 PM (GMT -6)   
I haven't had either in 35 years of living with my ileo (and I KNOW I don't drink nearly as much as they say ileostomates should - oops!)
Ileostomy for 34 years due to UC. I had my surgery at 10 years of age.

Moderator of the Ostomy and Psoriasis Forums

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esoR
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   Posted 12/17/2011 1:18 PM (GMT -6)   
good news. Rosemary

healthydiva
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Date Joined Dec 2011
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   Posted 12/21/2011 3:43 PM (GMT -6)   
I was recently asking about this because my doctor told me to stop eating green leafy vegetables of any kind because I could get kidney stones. Has anyone else been told this?
43 year old african-american female; diagnosed severe UC Jan 2010; ileostomy Feb 2010; j-pouch Oct 2010; still have flare ups in 2 cm of rectum I have left; canasa suppositories; lomotil 4 x day; will be taking VSL#3 in 2012.

blueglass
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   Posted 12/21/2011 4:12 PM (GMT -6)   
I had to be careful w/green leafy vegetables when I was on coumadin after I had a blood clot -- had to eat the same amount every day, but that was about vitamin K... wasn't told that for kidney stones, sounds harsh. Is there a reason why you are particularly prone to kidney stones, or does your doc say that more generally?
49 years old, female. Sick for way too long with Crohn's (or possibly UC) Proctocolectomy and permanent ileostomy in Feb 2011. Surgery for lingering perineal wound on Sept 26. Other than the wound, been feeling healthier than I have in years.

esoR
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Date Joined Jan 2007
Total Posts : 4147
   Posted 12/21/2011 6:56 PM (GMT -6)   
I think the green leafies have oxylates in them. But I think the basics of having an ileostomy and being prone to kidney stones is that we don't reabsorb water due to not having use of our colons.. There fore some docs might advise to avoid foods with oxylates, uric acid and no actual calcium supplements just to not add to the risk we have of stones. But that risk is only 20%. 80% of us won't have the issue. But the real bottom line is that we just need to drink water until we pee out 2 quarts of urine per day. That's all I've been able to dig up on this whole thing. Rosemary

Brian84
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Date Joined Mar 2005
Total Posts : 433
   Posted 12/21/2011 10:55 PM (GMT -6)   
about 6 months after I got my Ostomy, I was at a christmas party. I started having pain and no output. I kept feeling like I had to pee, but nothing would come out. It kept getting worse and I was for sure that it was a blockage. Now I have had a very high pain tolerance since I had crohns disease. I don't go to the hospital for anything. This just kept getting worse and worse so I had someone drive me to the ER. I was rollin around and had to get out and throw up from the pain. Got to the ER and they made me wait like 30 minutes and had to make multiple trips to the bathroom to throw up. Finally they made me wait in a bed and after rolling around for longer, they gave me Dilaudid. What a relief. Going from the worse pain in my life, to not feeling anything within 30 seconds. Turns out I had kidney stones. I had about 3 more after that, but started drinking tons of water. Haven't had any in almost a year.

esoR
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Date Joined Jan 2007
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   Posted 12/21/2011 11:08 PM (GMT -6)   
Brian,

I had read that the ostomy output stops when one has a kidney stone. I never could quite grasp this concept as the ostomy has to do with the bowels. Did they explain to you why a kidney stone would stop ostomy output? Just curious.

Glad you have not had any more stones. So far so good with not having any at all but I really have to get back to drinking that ton of water per day like we are supposed to. I hear lemon in the water even further helps prevent stones.

Rosemary

esoR
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Date Joined Jan 2007
Total Posts : 4147
   Posted 12/21/2011 11:09 PM (GMT -6)   
Brian,

Why did the ER make you wait so long? Sometimes going by ambulance you can avoid that whole waiting thing. Rosemary
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