i come bearing hellos and thanks for moderatings from the UC board. Im glad to see you on here, though not so glad that you have to have an ostomy too.
I had 10 years of its all in my head. Apparently bleeding out my bum just wasnt at all physical, i t meant i was mental case. It all started at 12 years old, so after years of pain, no treatment, no friends, thinking i was a freak of nature, i finally graduated from Notre Dame (no clue how i made it going to the bathroom 20 times a day) and went off to Boston. Where i finally saw a new gastro, who knew right away, and God Bless Beth Israel Deaconess Med Ctr is all i have to say. So i moved home for some help from my mom and after having to go back to the evil GI because of insurance, wound up worse (who could have called that one) and in the hospital, where once again, i was making it up. Darn me and my mental disease!
I went to U of Chicago where i had the first step of the j-pouch operation done on November 16, 2004. I had a pouch-vaginal fistula open a week and a half after (1% get it, dontchaknow?) they say from trauma from surgery (not CD), and two major blockages that kept me in the hospital off an on, mostly on, for the first month. Now the fistula, after much hemming and hawing, has apparently miraculously decided to heal, and if it stays that way for another month, i will be having reconnection surgery to hook me up to my new plumbing and rid me of Clyde, my beloved, but not-so-well-behaved temporary loop ileostomy. The adjustment was horrid, but its gotten better, and now 5 months and 1 week out, im doing okay. I am going to be 24 on May 24, the day after my tentative reconnection surgery, so ill be in the hospital, but i just cant think of a much better birthday present than a chance at a whole new life, can you?
It will always get better...always
J-Poucher; 1st step 11/16/04, 2nd step scheduled for 05/23/05...pouch-vaginal fistula...healed?!
I finally feel FREE!!!!
Please donate to keep Healingwell growing!