Ostomy Belt/Guard Survey! Please respond!

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T. R.
Regular Member


Date Joined Mar 2012
Total Posts : 144
   Posted 3/25/2012 12:16 AM (GMT -6)   
Hey guys!
I've spent the last couple of days looking at different ostomy accessories, such as the standard hollister belt, the stealth guard, and stomaplex's ostomy guard, to name a few. I know that I want some extra protection for when I rejoin the world soon - but I really just don't know what to expect from all these different products!

So if you could fill out this little survey I'd be very appreciative ;D

1. How active of a lifestyle do you lead?
2. Have you ever tried some type of ostomy belt/guard?
3. If yes, which product(s) did you try? If no, why not?
4. What did you like or dislike about the product(s)?
5. If you kept one, how often do you wear it? During certain events?
6. Is there anything special that I should consider when choosing a product?
Proctitis dx: Dec 2010 & Pancolitis dx: Dec 2011
Emergency subtotal colectomy with end-ileostomy: Feb 2012

blueglass
Veteran Member


Date Joined Dec 2010
Total Posts : 3102
   Posted 3/25/2012 9:36 AM (GMT -6)   
I am moderately active and I haven't used any of those products. What is it that you're looking for extra protection from?

I know a lot of people like belts to help hold the pouch on better. I have heard of some people liking the guards because of where their stoma hits the seat belt in the car. Otherwise, I think of the guards as being for contact sports and such (which I don't participate in).
49 years old, female. Sick for way too long with Crohn's (or possibly UC) Proctocolectomy and permanent ileostomy in Feb 2011. Surgery for lingering perineal wound on Sept 26. Other than the wound, been feeling healthier than I have in years.

summerstorm
Veteran Member


Date Joined Aug 2006
Total Posts : 6571
   Posted 3/25/2012 12:59 PM (GMT -6)   
I don't wear any of them, I've actually never understood the need for them.
I guess if you are a football player or something.
I don't know how active I am, I do the insanity workout, I go dancing, I chase a 6 year old,lol.
If you just want to hold your bag down, tape the top to your stomach, holds it flat. If you want more, get a belly band or tube top.
UC for 8 years, before finally kicking its butt and having a permanent ileostomy April 17 2007!
-I have gone to find myself, if i get back before i return, keep me here-
No matter what kind of day you are having, take five minutes to sing loudly and dance like a fool!

Equestrian Mom
Veteran Member


Date Joined Mar 2008
Total Posts : 3071
   Posted 3/25/2012 7:12 PM (GMT -6)   
I run, ride horses, swim, kayak, cut the grass, clean the house...there is more but you get the picture!

The only time I've worn a belt (Hollister) was post op when half my wafer was unattached due to my incision. I did buy a cover about 12 years ago but never used it more than a few times...just impractical.

I do swear by Sure Seals (www.alpglobal.com) and wouldn't go a day without one! I just tuck the tail of my pouch under the cloth like cover and put the pouch inside my undies...holds in place no matter what I'm doing.

It's personal so try a few things but don't think you have to spend a lot of money on "ostomy" products. You'd be surprised at things you can make or even buy at walmart/target that work better!
formally known as OHIO76 ~ honoring my daughter's passion!
Crohn’s dx 1989
some terrible years before my temporary ileo in 2001
Proctocolectomy w/end ileo in 2008
...wish I knew then what I know NOW!

Another UC wife
Veteran Member


Date Joined Jun 2007
Total Posts : 2111
   Posted 3/25/2012 8:00 PM (GMT -6)   
Like Ron my husband uses the 1" belt 24/7 and feels it gives the pouch the extra support and has had no leaking issues at all. Whether or not that helps or not I can't testify but he feels it helps and it does not bother him to wear it.

(He had one blowout a few months after surgery food related and one other time due to a pancake type situation he knew he needed to change before it became a problem that one day.)

He does have a 4" Nu Hope belt that he wears on the days he golfs just to give him extra support. He will also use that wider belt if we are doing a lot of strenuous work around the house, yard work and our attic taking christmas stuff up and down just to be on the safe side...more for extra support and to hopefully ward off a hernia situation.
Wife of 64 yr old male suffered with UC & in May 06 had a severe flare & hospitalized 6 days...various prednisone treatments leading to steroid dependence and osteopenia, 12 asacol, 200 mg Imuran, failed remicade infusions Jan-May 2010 Dependence on pain meds. Made decision 6/10 to have surgery which was on 12/17/10 (total proctocolectomy & ileostomy - unable to have the j-pouch) & now pain free

T. R.
Regular Member


Date Joined Mar 2012
Total Posts : 144
   Posted 3/26/2012 7:10 PM (GMT -6)   
well I had my first leak at night a few days ago :/ so that's what got me thinking about the belts. also, although I don't really mind the 'something is hanging off of me' sensation - how can I? when my ostomy has saved me from so much UC pain! - but if a belt would minimize that sensation I think I'd feel a lot more normal walking around in the real world and whatnot.

blueglass - my ostomy is pretty close to my belt line - I find that if I wear jeans, when I sit down I have to be very careful that I don't let them ride up & on top of my ostomy because I find that rubbing motion to be pretty uncomfortable... same thing with the seat belt. I've only been a passenger since surgery, but I imagine when I start driving again the added seat belt will just complicate that further.

summer - I've already seen and used the tape trick :P it just doesnt help enough for me

Ron - how did you make your own guard? I know I can get the standard belt free through insurance, but not any guards.

EQ mom - thanks (: I'll look into those Sure Seals too. It looks like Edgepark provides them... and I do like trying free stuff. :3 Although my insurance might not like me to. xD

UC wife - I think a 4" belt would sure be better than a wrap!
Proctitis dx: Dec 2010 & Pancolitis dx: Dec 2011
Emergency subtotal colectomy with end-ileostomy: Feb 2012

Crosby99
Regular Member


Date Joined Nov 2011
Total Posts : 86
   Posted 3/26/2012 10:04 PM (GMT -6)   
I have one of those Stealth Belts (http://www.stealthbelt.com/) because I'm a sucker and I was desperate to not feel that stupid bag hanging off of me after my first surgery. You put it on and it feels perfect! But considering I am a woman and have hips and curves, it didn't seem to stay in place. It slid up when I wore pants or basically moved around too move, which made me nervous because then it would pull on my stoma sight, very uncomfortable. But I believe this stealth belt would work great with men since they have no curves.

Since I stopped wearing the stealth belt I have just been pulling off yoga pants and skirts and black leggings paired with long shirts to cover the sight. I am very short, only 5'2 and have a tiny torso so I still try different ways to hide my pouch since my stoma is right on my hips and pant line. I am moderately active, and have just come to the conclusion that I won't be able to pull off jeans anymore. But who cares, leggings and yoga pants are way more comfortable anyway!
UC diagnosis at age 7
Was in and out of remission for years
Total colectomy October 2011
Returning Feb 2012 to get the j pouch
Returning May 2012 to this bag taken off forever and be normal and healthy for once, can't wait!

torranceboy
Regular Member


Date Joined Aug 2011
Total Posts : 125
   Posted 3/26/2012 11:54 PM (GMT -6)   
1. How active of a lifestyle do you lead?

With my ostomy i had every opportunity to lead a semi active lifestyle but no matter what, the bag affected me socially and mentally in ways i didn't expect.

2. Have you ever tried some type of ostomy belt/guard?

I did use a belt and it may have been the hollister belt. it was just a simple elastic band but it helped me mentally, giving me a sense of security that the bag wouldn't go anywhere.

4. What did you like or dislike about the product(s)?

After a while i could begin to feel the constriction of wearing the belt that i grew to dislike. but it was a small price to pay for the security i felt with it.

5. If you kept one, how often do you wear it? During certain events?

I wore it all the time except in the shower.

6. Is there anything special that I should consider when choosing a product?

Comfort. Just make sure you take comfort into account when deciding
Diagnosed in 2003 with Crohn's
Recovering from Feb 2012 takedown surgery...
www.myjpouchstory.com

T. R.
Regular Member


Date Joined Mar 2012
Total Posts : 144
   Posted 3/27/2012 2:26 PM (GMT -6)   
Crosby - leggings and yoga pants for the win!!! fortunately for me I fell in love with yoga pants shortly before my surgery... with all the lying around and rushing o the bathroom from my UC pain I felt like they were a life saver. so comfy and easy to move in (and pull down! lol) but still look good. ^^

Torrance - mental security is very important to me too. it sounds like you've had your takedown already - I'm happy that you don't have to be uncofortable any more!

Ron- the plexiglass shaping would be beyond my ability ): but it sounds like you just improvised your own stomaplex. although you can't post a picture here, perhaps you could post a link to it? I use tinypic.com for quick free image hosting. and do you have any ideas of what might work besides plexiglass?
Proctitis dx: Dec 2010 & Pancolitis dx: Dec 2011
Emergency subtotal colectomy with end-ileostomy: Feb 2012

T. R.
Regular Member


Date Joined Mar 2012
Total Posts : 144
   Posted 3/27/2012 2:28 PM (GMT -6)   
Oh and also:

Crosby- thanks for mentioning that the stealth belt does not agree with curves!! I will definitely not buy one now. my hips are very wide-set... I can just picture it riding up all day.. not good xp
Proctitis dx: Dec 2010 & Pancolitis dx: Dec 2011
Emergency subtotal colectomy with end-ileostomy: Feb 2012

blueglass
Veteran Member


Date Joined Dec 2010
Total Posts : 3102
   Posted 3/27/2012 3:39 PM (GMT -6)   
Ron, I am impressed. How did you heat up the plexiglass? Is that a hard project? Just curious....
49 years old, female. Sick for way too long with Crohn's (or possibly UC) Proctocolectomy and permanent ileostomy in Feb 2011. Surgery for lingering perineal wound on Sept 26. Other than the wound, been feeling healthier than I have in years.

ENIGMAWRAP
Regular Member


Date Joined Nov 2010
Total Posts : 346
   Posted 3/30/2012 1:44 AM (GMT -6)   
NASCARRon:

You've got to show us that picture..and tell us how to make it! LOL!

I too have looked at belts...I'm glad my insurance company paid for a few, but it was a waste of money.....i'm looking at the stomaplex and stoma armor, but going to get a commitment from the makers that if it doesn't work, I get my money back....my stoma is near my belt-line, and I would love to wear jeans again, but they want to move down on top of my stoma, and it just doesn't feel right...

val11
Regular Member


Date Joined Mar 2012
Total Posts : 28
   Posted 3/30/2012 6:53 AM (GMT -6)   
Hi Everyone New here at this forum.I am a very active 56 year old woman with a colostomy for almost 3 years. I use a 1 pc Sensura by Coloplast. I am very confident about my issues with nothing else put the pouch.I have Chrons disease and always have runny stool.The pouches I use are very sensitive on the skin. As far as how often I change the pouch usually every 3-4 days or at the first sign of itching.Hope this helps If you are new at this it takes awhile and it was frustrating trying to figure it all out so hang in
.I found the advise I was given in the hospital was not the best.
 

windy city
Veteran Member


Date Joined Dec 2010
Total Posts : 579
   Posted 3/30/2012 12:02 PM (GMT -6)   
I lead an active lifestyle. I exercise daily and do as much physical activity as possible.....marathons, cycling tours, walks, volleyball, on the go with 2 growing children.

5 months post op, with steady weight gain, I had to switch from using the stomahesive paste to eakin. This gave me couple more days wear time but wasn't enough for me. Called Convetec and spoke with a WOCN. She gave me their belt, it's rather soft and thin. I got about 5-7 days MORE weartime. I even wear it under my swim suit, it's pretty colorful so you can't see the indentation of the belt.

When wearing jeans, I instituted Summerstorms suggestion last year of taping down the top. It works for me, didn't like the ballooning effect coming through my shirt ontop of my waistband.

Crohnie68
New Member


Date Joined Mar 2012
Total Posts : 1
   Posted 3/30/2012 5:53 PM (GMT -6)   
Windy city,

What type of tape do you use to tape your bag at the waistline? That is exactly what I need to do as it shows through my clothes! I am just a week out from surgery and any advise is greatly appreciated!

Trigirl
Veteran Member


Date Joined Jan 2006
Total Posts : 764
   Posted 3/30/2012 7:28 PM (GMT -6)   
I am VERY active. Teach fitness classes,train for triathlon, running everyday and biking and swimming every other day. I couldn't seem to keep appliances on more than one swim day and the next day and then change.

I now use the belt that works with my hollister appliance and find it holds thnigs in place a lot better. I definitelly wear it swimming, yoga and running, anything where body might twist a lot.

Sure seal is great but keeps moisture in underneath if not careful.

Make one of Ron's contraptions and that keeps stoma from getting smashed with big overnight back pack that sits close to stoma (Bubbles is her name)

Tom1
Regular Member


Date Joined Mar 2007
Total Posts : 172
   Posted 3/31/2012 10:02 AM (GMT -6)   
I use the Hollister two piece system along with the Eakin Seal...sideways.
 
Some time ago I learned about tubetops.  They're available at tubetops.net and cost about $20 ea.  Cut a hole at the right location  and then step into the tube bringing the top edge to your waist.  Pull the pouch through the hole then fold the bottom of the tube up making an envelope.
 
The result is comfort and visually discreet..

polishdan
Veteran Member


Date Joined Mar 2010
Total Posts : 1476
   Posted 3/31/2012 12:10 PM (GMT -6)   
Theresa
My stoma does not stop me from doing anything I want. I live on a lake in Michigan. I put the dock in in the spring and out in the fall by myself. I swim whenever I want. I shower every day and change about once a week. I do not wear a belt or anything extra. I feel no need.

Dan

T. R.
Regular Member


Date Joined Mar 2012
Total Posts : 144
   Posted 3/31/2012 7:08 PM (GMT -6)   
Very clever, and quite professional looking, Ron! I'm impressed. Nothing I manage to make will look anything like that, surely. xP
Proctitis dx: Dec 2010 & Pancolitis dx: Dec 2011
Emergency subtotal colectomy with end-ileostomy: Feb 2012

bob2613
New Member


Date Joined Apr 2012
Total Posts : 1
   Posted 4/10/2012 7:59 AM (GMT -6)   
The guard is quite impressive. I've had a lot of luck bending plexiglass just popping it in the oven at 300 for 5 min to soften it up depending upon the thickness of the glass, oven mitts and a bit of bending or applying it to a mold. quick and easy. I think this will be a project shortly !

Thanks for the idea !

Another UC wife
Veteran Member


Date Joined Jun 2007
Total Posts : 2111
   Posted 4/11/2012 8:36 AM (GMT -6)   
Theresa my sister also has a permanent ileostomy. She uses the underwear from Ostomy Secrets and likes them very much. They are pricey but there are several different manufacturers out there. The inside area the pouch rests into takes the weight of the pouch and displaces it somewhat when it is filled and needs to be emptied.

I was told about this company by our dermatologist and I checked into it before hubby's surgery. As luck would have it I went on ebay (I am an Ebay and Mail order queen...lol) and found the men's briefs there. I ordered 2 pairs and when he came home after surgery used them and liked them a lot. The place I ordered these from on ebay had a supply in his size so I struck a deal and got them very cheap. He has underwear to last him a lifetime now...lol.
Wife of 64 yr old male suffered with UC & in May 06 had a severe flare & hospitalized 6 days...various prednisone treatments leading to steroid dependence and osteopenia, 12 asacol, 200 mg Imuran, failed remicade infusions Jan-May 2010 Dependence on pain meds. Made decision 6/10 to have surgery which was on 12/17/10 (total proctocolectomy & ileostomy - unable to have the j-pouch) & now pain free

kazygirl
Veteran Member


Date Joined Sep 2007
Total Posts : 955
   Posted 4/19/2012 2:01 AM (GMT -6)   
i am new to this ileostomy thing and am curious.... if you wear a belt or a wrap type thing, wouldn't the pressure of the belt holding the bag in tight next to your body restrict or prevent the poo from dropping into the bag. wouldn't it just cake up around the stoma and get stuck there.

how is there any free room for poos to go into the bag?
stephanie ~ gold coast, australia ~ 36
UC since 2003 ::: lots of blood, lots of pain, hard to manage flares, never more than 2 months remission at a time.
emergency life saving surgery in march 2012 ::: total colectomy and ileostomy

reversal planned for aug-sept 2012 ::: 2 more surgeries required to complete j-pouch

T. R.
Regular Member


Date Joined Mar 2012
Total Posts : 144
   Posted 4/19/2012 3:39 AM (GMT -6)   
A belt attaches to belt tabs on the underside of the bag so that it is still free to fill as it wants to.

A guard goes over the bag and consists of a hard piece of plastic/etc with soft foam underneath - and a channel is cut into the foam so that stuff is free to floe down into the bag.
Proctitis dx: Dec 2010 & Pancolitis dx: Dec 2011
Emergency subtotal colectomy with end-ileostomy: Feb 2012

T. R.
Regular Member


Date Joined Mar 2012
Total Posts : 144
   Posted 4/19/2012 3:41 AM (GMT -6)   
I tried a belt and was unhappy with it. I've resigned mysel to the fact that my hips are so prominent that with my stoma at belly-button level, nothing will fit comfortably. My hips push the belt to my waist - which is much higher than my belly button.
Proctitis dx: Dec 2010 & Pancolitis dx: Dec 2011
Emergency subtotal colectomy with end-ileostomy: Feb 2012

kazygirl
Veteran Member


Date Joined Sep 2007
Total Posts : 955
   Posted 4/19/2012 4:36 AM (GMT -6)   
my stoma is even with my belly button as well. is that undesirable?
stephanie ~ gold coast, australia ~ 36
UC since 2003 ::: lots of blood, lots of pain, hard to manage flares, never more than 2 months remission at a time.
emergency life saving surgery in march 2012 ::: total colectomy and ileostomy

reversal planned for aug-sept 2012 ::: 2 more surgeries required to complete j-pouch
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