Advice on rash?

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T. R.
Regular Member


Date Joined Mar 2012
Total Posts : 144
   Posted 4/27/2012 12:38 AM (GMT -6)   
I /hate/ rashes. With a passion.

I never get rashes. I only had hives twice when I was younger (penicillin allergy) so I can't even remember that.

But this rash under my wafer... My GOD is it horrible. It started 3 weeks ago. Stoma nurse said it is a yeast infection so I started putting Nystatin powder on with each change (every 3 days). It looked like it was getting better... but last weekend (why I it alway a weekend?!) I noticed that it was much much redder so I started taking Diflucan too. A few days ago the rash started oozing yellow liquid and now I can't get the bag to stick no matter what I do!! And its also spreading now all over my chest and to my face! Arggghhhhh this is miserable.

The itchiness is killer. It wakes me up multiple times each night >:-( I've been taking Benadryl around the clock but it isn't helping in the least.

Tomorrow I'll hear back from the doctor but until then...

What can I do?! How do you cope with these nasty yeast rashes?!

I want this bag gone. I need my skin back :x
Proctitis dx: Dec 2010 & Pancolitis dx: Dec 2011
Emergency subtotal colectomy with end-ileostomy: Feb 2012

Another UC wife
Veteran Member


Date Joined Jun 2007
Total Posts : 2111
   Posted 4/27/2012 9:20 AM (GMT -6)   
Oh Theresa I was going to suggest the ostomy nurse before I read your post.

My husband only had a minor run in with his skin and it was due to the outer adhesive on the wafers that his skin just didn't like. Switching to the Coloplast Sensura system turned things around for him.

I am sure you will get some good advice from fellow ostomates who have had to contend with this.

I know the layering of the medicated powder lightly and skin adhesive several times will help in the overall healing but of course you need the wafer to stick and stay stuck too!

Are you a candidate for a reversal or j-pouch down the road?

Insofar as a protective skin barrier...having tried quite a few.....we find that the Smith and Nephew in a spray pump container works very well.

Good Luck and so sorry you are so miserable with all this going on right now.
Wife of 64 yr old male suffered with UC & in May 06 had a severe flare & hospitalized 6 days...various prednisone treatments leading to steroid dependence and osteopenia, 12 asacol, 200 mg Imuran, failed remicade infusions Jan-May 2010 Dependence on pain meds. Made decision 6/10 to have surgery which was on 12/17/10 (total proctocolectomy & ileostomy - unable to have the j-pouch) & now pain free

T. R.
Regular Member


Date Joined Mar 2012
Total Posts : 144
   Posted 4/27/2012 3:37 PM (GMT -6)   
They all keep going back and forth and back and forth D:

Gastro says it looks like an allergic reaction
Stoma nurse says it looks like yeast
Gastro agrees its probably yeast
Dermatologist says it looks like an allergic reaction
Gastro says "We'll treat it for both" and is sending me to a second derma next week.

All I know is that I'm itchy and miserable and don't want to go on oral prednisone again. So it's steroid cream + antifungal powder + oral yeast medicine. Going to call my ostomy product supplier to see if I can get Coloplast and Convatech samples... and going to cut my nails to the quick so I can't do any damage with them.


Luckily I am a J pouch candidate :) Though I like the idea of the Kock pouch better as it means nothing would ever come out of my bottom again.
Proctitis dx: Dec 2010 & Pancolitis dx: Dec 2011
Emergency subtotal colectomy with end-ileostomy: Feb 2012

Another UC wife
Veteran Member


Date Joined Jun 2007
Total Posts : 2111
   Posted 4/27/2012 6:27 PM (GMT -6)   
If you need to apply any kind of topical medication you are better off if it is in gel form I remember reading awhile back. Creams no matter how well you rub it in will affect the adherance of the wafer. Gels I guess disappear and evaporate better than creams.
Wife of 64 yr old male suffered with UC & in May 06 had a severe flare & hospitalized 6 days...various prednisone treatments leading to steroid dependence and osteopenia, 12 asacol, 200 mg Imuran, failed remicade infusions Jan-May 2010 Dependence on pain meds. Made decision 6/10 to have surgery which was on 12/17/10 (total proctocolectomy & ileostomy - unable to have the j-pouch) & now pain free

uc_free
Veteran Member


Date Joined May 2007
Total Posts : 645
   Posted 4/27/2012 7:54 PM (GMT -6)   
I just battled this!!  I don't want to jinx myself, but I think I may (finally) be winning another battle with my skin since my surgery in November.  My ostomy nurse also told me my insanely itchy rash was fungal, but when I applied the powder, it did NOTHING.  If anything, the rash got worse. 
 
Out of desparation I tried Lotrimin cream, which is an antifungal and strong at that.  It knocked the rash, which had already started spreading to my torso and behind my ears, right down.  Once I noticed a big improvement in the rash, I applied the powder instead.  Now things seem much better. 
 
One problem with the cream though, believe it or not, is that it makes the wafer stick too well, making it VERY hard to remove.  This is part of why I stopped using it after a few applications.  What you could try is the cream, with some pats of stomahesive powder on top.  I have heard of a few people doing that and it seems to work better. 
 

T. R.
Regular Member


Date Joined Mar 2012
Total Posts : 144
   Posted 4/27/2012 8:13 PM (GMT -6)   
Hmm I never thought to ask about a gel form... Right now I have:

steroid ointment (vaseline-like stuff) for body
steroid cream for face & under stoma
hydroxyzine pills (for itchiness)

But if the medicated gel is anything like the aloe vera gel that I've put on sunburns I'm sure that would work much better! That aloe stuff is sticky.

uc_free- What did your rash look like? Under my wafer the skin is angry red and my torso/face are covered in red pimples. I'll have to ask about lotrimin cream on Tuesday if the derma agrees that it's fungal - I really hope it works, thank you!!
Proctitis dx: Dec 2010 & Pancolitis dx: Dec 2011
Emergency subtotal colectomy with end-ileostomy: Feb 2012

uc_free
Veteran Member


Date Joined May 2007
Total Posts : 645
   Posted 4/28/2012 8:00 AM (GMT -6)   
My rash looked like razor rash. The parts that were itchiest looked like little bumps with discharge coming out of them. The stuff that spread outside the wafer was more pinkish and not nearly as irritated looking.

80sChick
Veteran Member


Date Joined Oct 2009
Total Posts : 1053
   Posted 4/28/2012 8:32 AM (GMT -6)   
I am the queen of this. I battle frequent fungal issues under my wafer. The only thing I've tried that is REALLY helpful is a probiotic supplement that changes the fungal amount in your body. It's a drink that's like a thick yogurt and it's called Bio-K. Let me know if you want more info.
Stephanie, 30 (!!) years old

March 2000-Diagnosed Crohn's Colitis
(Tried every drug imaginable, but lived 10 years with daily diarrhea)
March 18, 2010-Total Proctocolectomy and Permanent Ileostomy! :)
(Now med free, 4 subsequent procedures to correct blockages at stoma site)

Stoma named Zoe...She's my best bud!! :)

Blueheron
Veteran Member


Date Joined Feb 2010
Total Posts : 710
   Posted 4/28/2012 8:48 PM (GMT -6)   
Someone had posted a skin question on another forum a couple days ago and I typed the response below. Since typing this... my rash is completely gone and my skin looks perfect. I am glad I didn't just assume it was an allergy.

From the other post:
Has anyone mentioned the possibility of bacterial folliculitis to you? I too had a rash start with just a small area in January. Over the months it grew to be under most of the top and right side of my wafer.... but just under the tape part, not under the inner circle of Durahesive. The rash never extended to the bottom of my wafer or the left side, meaning it was never under the whole tape part. This made me think it wasn't an allergy. My rash was itchy... but not horribly. It looked like razor burn and a few of the bumps had white-head like tips.

My rash seemed to coincide with starting to do more rock climbing and yoga in January. My stoma nurse originally thought it was a yeast infection, but the anti-fungal powder did nothing for me, and the rash just kept persisting and slowly got worse.

Several years ago, before I had an ostomy, I had a similar rash develop on my knee. Over a period of weeks, it spread to my arms and the rest of my legs. My regular doctor at that time was stumped, but a dermatologist diagnosed my problem in about a minute because it is very common. Turns out I had a type of bacterial folliculitis that probably started in a shaving nick and then spread to other hair follicles on my body. It was cured with a round of antibiotics. Well, the rash I was now experiencing under my wafer looked exactly like that past rash. To top it off, I had developed a little patch on the opposite side of my stomach now, no where near my wafer. When I told my doctor this, she thought folliculitis could be a possibility and prescribed me keflex. I have now been on the antibiotic for 1 week and my rash is almost entirely gone.

I have also been trying to let the area get lots of air, so I actually cut the tape part off the right side and top of my wafer, just leaving the circle of Durahesive in that area. Then I put little strips of somewhat stretchy 3M Medipore tape in a few areas for extra reinforcement (the tape strips on my wafer look a bit like rays on a sun). I am fortunate in that the circular Durahesive part of my wafer sticks really well even without tape, but the little strips give me some added confidence. I had also used this method when I thought I had an allergy or yeast infection, but the rash never went away. I had to do this in combo with the Keflex to see the results which to me confirms that I had a bacterial infection of the hair follicles.

So my theory on how this all began is that as I started to do yoga and climbing, which includes a lot of stretching and bending movements, my wafer was unable to stretch with my body causing damage to my skin underneath. I am thin and have a narrow body, so the tape part of my wafer extends past my midline on the left side and over my hip bone on the right side. My worst rash was right where my hip bone bends, and the other bad spot was on the top where my belly creases a bit when I bend. As the skin was damaged, I am thinking a bacterial follicultis infection set in. Once it set in, it started to spread over a period of several months... eventually getting into some follicles away from my wafer.

Today I am experimenting with a tapeless wafer to see if this will help now that everything is healed. I don't want to damage the skin again. The footprint of the tapeless it is slightly smaller than my tape Convatec wafers, so I am hoping it doesn't extend so far towards my hip so that I am able to bend more freely. If not, I will probably just cut the tape off the hip side of my regular Convatec wafers and use my "sunburst" tape method indefinitely since that worked great this week... even at the pool. Other brands don't work that well for me, so I am hoping to be able to stick to the Convatec. I had even worse issues with Coloplast because their plastic wafers are really rigid and don't bend well at all for me towards my hip.

Anyway... good luck and make sure to ask about a bacterial hair follicle infection if medications for a yeast infection aren't working.

-Heidi
-39 years old
-Officially diagnosed with UC in 2006, symptoms since 1999
-Took Asacol, Rowasa, Canasa and various rounds of Prednisone, tried 1 dose of Remicade but had excruciating joint pain and discontinued
-Had mild/moderate UC continuously until severe flare in autumn 2010 which led to permanent ileostomy surgery 11/8/201
-Visit my blog at http://ostomyoutdoors.wordpress.com/

T. R.
Regular Member


Date Joined Mar 2012
Total Posts : 144
   Posted 5/1/2012 4:18 PM (GMT -6)   
Wheeee the specialtist agrees its an allergy but we have no idea what it was to. So I get prednisone -.-

I switched from the Hollister to a Convatech pouch but it's only spread more to fill in the difference (Convatech wafer is bigger than my hollister was)

I better still get my surgery even though I'll be on pred :(
Proctitis dx: Dec 2010 & Pancolitis dx: Dec 2011
Emergency subtotal colectomy with end-ileostomy: Feb 2012
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