pressure and feeling like i have to poo - out my backside!!! what the...

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kazygirl
Veteran Member


Date Joined Sep 2007
Total Posts : 955
   Posted 5/10/2012 12:12 AM (GMT -6)   
okay, since the surgery, in hospital and at home for 2 or so weeks, i had some anal discharge. some mucousy/liquidy type stuff that i was told is perfectly normal.
ok, all good.
now, it has been a month that i have not had anything coming out of my bum at all. but last night i had the feeling of urgency and needing to poo out my bum really bad.
i sat on the toilet for like 45 freakin minutes!!!
a tiny bit of liquid came out every now and then during that time. then when i peed the pressure and urgency feeling finally went away.
i kept pushing but was afraid of pushing too hard. i don't know why i was afraid.... didn't want my rectum to come outside the hole i guess. i don't know. maybe just an insane subconcious fear i felt about reallly pushing.
anyhoo, i pushed a bit and little bits kept coming out.

now today i just now had that urgency feeling and still while i write this. when i went just after surgery it didn't feel this urgent and there wasn't this much pressure. no pain, just uncomfortable pressure.

is this normal?
is there something that can be done about it?
or do i just live with it?
how long does it last?
will go away or keep coming back or get worse...?
steph ~ gold coast, australia ~ 36
UC since 2003 :: lots of blood & pain, hard to manage flares, never more than 2 months remission at a time.
emergency life saving surgery in march 2012 :: total colectomy & ileostomy

felt great to throw away ALL my meds!
reversal planned for aug 2012 :: 2 more surgeries required to complete j-pouch

upsadaisy
Regular Member


Date Joined Apr 2012
Total Posts : 45
   Posted 5/10/2012 3:04 AM (GMT -6)   
you should make an appointment with your gastro doc, Like you i had the urgency to go only clear discharge coming out, I got to the stage where i would wake up soaked from the discharge, they sent me for the camera test and told me that the last 20cm that they had left was infected with UC, I decided to have it removed rather than be on medication again. You wont know why your having this urgency unless you see your gastro doc. I hope this helps.
Ireland- Female- 36 UC diagnosed Jan 99 Aged 23, never in remission longer than 2mths then lost a baby Jan 05 at 37wks, put me on imuran in remission for just over a year, when things got bad in out of hospitail until I got a blood clot in left leg, then had emergency op on 4th august 06 ileostomy formed, rectum, anus removed on 18 july 08 as they were still infected with UC.

allbluezoo
Regular Member


Date Joined Feb 2012
Total Posts : 446
   Posted 5/10/2012 5:55 AM (GMT -6)   
I have Crohn's so I got a Barbie butt and haven't experienced what you described, I just wanted to say I am sorry you are having to deal with that. I remember the last time I went #2 at home I came out of the bathroom dancing and singing "I'll never wipe my butt again!!" only to arrive for surgery and have to do 2 fleet enemas bahahah! So, the last time I wiped my butt was in the hospital, oh well :) Hope you can get someone on the phone at least and figure out what is going on.

windy city
Veteran Member


Date Joined Dec 2010
Total Posts : 551
   Posted 5/10/2012 8:00 AM (GMT -6)   
I had my colectomy July 2010, going on 2 years now. From the beginning, I experienced extreme rectal pain. Never asked what and why and what can I do....I'm the type that just deals with it and never complains. The pain would last few minutes to about half an hour. Sometimes multiple times a week, once a week, to very seldom. Sometimes I waken in my sleep.

Initially I would just pace back and forth, walking off the pain. Then I had an idea to sit on the toilet, relaxing the muscles. Felt better. Then I read posts on here. As I still have my rectum, it's going through atrophy and it will secrete mucous and reabsorb. So, now I actually sit on the toilet and let it secrete. I don't strain. By doing this, I don't suffer as long waiting for it to reabsorb. The consistency can be very thin, little pebbles, to more formed. I though have never had bleeding.

I did inquire and this is all normal. I have never leaked or had extreme discharge, if I ever do, I will make an appointment. As I have my rectum, my experience might be different from yours, so maybe you should phone in your concerns!

kazygirl
Veteran Member


Date Joined Sep 2007
Total Posts : 955
   Posted 5/10/2012 8:32 AM (GMT -6)   
i still have my rectum as well. and i don't have pain so much as it is just uncomfortable pressure to go to the toilet. i went again today after my post. had to run. almost like my UC urgency, but when i sat only a little discharge came out then i was all better after sitting there for about 15 minutes.

there is no blood and it was the only time since yesterdays episode.
i have never had leakage. or accidents.

i will call my gastro dr tomorrow and i see my surgeons on the 21st. it's probably nothing and completely normal. it was just weird that it has been almost a month since i had discharge out me bum! ha! so i was not expecting it and thought something might be wrong. still new to all this!
steph ~ gold coast, australia ~ 36
UC since 2003 :: lots of blood & pain, hard to manage flares, never more than 2 months remission at a time.
emergency life saving surgery in march 2012 :: total colectomy & ileostomy

felt great to throw away ALL my meds!
reversal planned for aug 2012 :: 2 more surgeries required to complete j-pouch

ByeByeUC
Veteran Member


Date Joined Feb 2011
Total Posts : 2830
   Posted 5/10/2012 12:01 PM (GMT -6)   
Hi kazygirl,
It's normal and its just mucus coming out. It happened to me the entire time I had my ileo before my j pouch was hooked up. If you have a loop ileo, you can even pass small amounts of stool sometimes. When I had my temporary loop ileo, the first time that happened to me I freaked out because my surgeon never mentioned that you will have mucus passing out your bum from time to time. They really need to tell people these things before they leave the hospital!
Marianne

DX UC - in 2005 when I was 37
Tried every drug-even Remicade-Tried diets-nothing worked-wanted my life back!
Step 1: J-pouch surgery (Laparoscopic restorative proctocolectomy w/ temporary diverting loop ileostomy) 6-25-10
Step 2: Take down surgery (Ileostomy reversal) 10/8/10
No more UC and no more drugs!! Very happy with my results of this surgery-got my life back! :)

Post Edited (ByeByeUC) : 5/10/2012 12:04:34 PM (GMT-6)


blueglass
Veteran Member


Date Joined Dec 2010
Total Posts : 3062
   Posted 5/10/2012 1:34 PM (GMT -6)   
Kazy, understand why it was scary, but I have read lots of posts of people being freaked out as you were and then finding that it's normal. I think the nerves get a bit messed up too, trying to figure out what signals to send w/the new anatomy. I am also sewn shut (love the "Barbie butt" phrase, allblue), but I had some "phantom rectum" after surgery where I would swear I had to go, and there was no way.....
49 years old, female. Sick for way too long with Crohn's (or possibly UC) Proctocolectomy and permanent ileostomy in Feb 2011. Surgery for lingering perineal wound on Sept 26. Other than the wound, been feeling healthier than I have in years.

twiggs
Veteran Member


Date Joined Mar 2012
Total Posts : 734
   Posted 5/10/2012 1:59 PM (GMT -6)   
Kazy, This is off topic but, I was looking back on the posts in the UC forum and saw something about a tripple antibiotic therapy at the time said worked for you which I beleive was back in 2007. Can you explain how it all went after and how you ended up with Surgury? I am very curious and would love to hear from you on it. Did the therapy at the time work then in time symptoms come back or?

Steve

kazygirl
Veteran Member


Date Joined Sep 2007
Total Posts : 955
   Posted 5/10/2012 5:13 PM (GMT -6)   
it worked temporarily and then did not work at all the second time i did it. actually everything i've ever tried, be it medical or some internet miracle cure, worked once and only once. i never got anything to get rid of a flare a second time. could be just me i guess. i flared for a minimum of a few months at a time to over a year. and i never went more than a few months in remission at a time either. this all since 2005. the only that ever nipped a flare in the bud was prednisolone. unfortunately. cuz that stuff sucks!
even methotrexate only worked temporarily then i flared for 7 months before CMV destroyed me because of the methotrexate. ambulence, hospital, hemoraging, blood transfusions, scopes, hospital transfers, crashing, more blood transfusions then emergency surgery to save my life. woke up with a bag and no colon! now here i am. of course that is the short story, but all in all, no therapies ever really worked more than once or for very long with me.
if you want any more details or specifics let me know. i've tried it all except for the infliximab / humera injections. for some reason i was not eligible. don't understand how i can almost die but not be sick enough to be eligible for meds. strange!
steph ~ gold coast, australia ~ 36
UC since 2003 :: lots of blood & pain, hard to manage flares, never more than 2 months remission at a time.
emergency life saving surgery in march 2012 :: total colectomy & ileostomy

felt great to throw away ALL my meds!
reversal planned for aug 2012 :: 2 more surgeries required to complete j-pouch

Crosby99
Regular Member


Date Joined Nov 2011
Total Posts : 86
   Posted 5/10/2012 5:53 PM (GMT -6)   
This actually happened to me. My surgeon told me it was nothing to worry about. I've had reversal since and everything seems to be working okay so I don't think it should freak you out too much. It will get easier.

mystique2
Regular Member


Date Joined May 2012
Total Posts : 204
   Posted 5/10/2012 11:17 PM (GMT -6)   
I was warned I would have mucus discharge.

I have had stool with a little blood a few weeks after surgery (I was still in the hospital because of blood clots). I was told that was fine.

A little over a month after surgery, I lost what I considered a large amount of blood from my rectum. It was about 1/3 cup or 1/2 cup of blood and it was quick. Couldn't get to the bathroom in time. I was told from both my doctor and a relative who also does these surgeries, that this was normal as well and don't worry unless I loose that much blood again.

The white mucus that I have seen since few weeks is supposed to be healthy for me too. According to both doctors.

Hope this helps. I would keep your doctor's appraised to be safe and cover your bases anyway.

T. R.
Regular Member


Date Joined Mar 2012
Total Posts : 144
   Posted 5/11/2012 1:45 AM (GMT -6)   
My rectum has never given me nice, white mucous :(
10 weeks out from surgery and it still oozes a nice amount of reddish brown stuff from my mucous fistula and I release a small amount from my bottom once or twice a day. Canasa suppositories have made it so that I generally don't experience pressure/discomfort during the day, but I am SO looking forward to getting rid of it in a few weeks with surgery #2

Though I worry about the couple centimeters of it that they'll have to leave to attach my Jpouch to :/
Proctitis dx: Dec 2010 & Pancolitis dx: Dec 2011
Emergency subtotal colectomy with end-ileostomy: Feb 2012

T. R.
Regular Member


Date Joined Mar 2012
Total Posts : 144
   Posted 5/11/2012 1:50 AM (GMT -6)   
I've also been on prednisone for a week (bad rash) - yet there has been no change! Haha gahhh -.-

Anyhow, something more useful for you- the rectum will naturally secrete mucous more or less continuously so it makes sense that if you don't release any for awhile, it will build up causing some discomfort and more drainage the next time you let it out. Also, I know that I have remaining UC I my rectum (quite obvious from the blood, really)... many people do. But your case sounds mild, judgin by the color. So just hold in there (:
Proctitis dx: Dec 2010 & Pancolitis dx: Dec 2011
Emergency subtotal colectomy with end-ileostomy: Feb 2012

twiggs
Veteran Member


Date Joined Mar 2012
Total Posts : 734
   Posted 5/11/2012 8:28 AM (GMT -6)   
Thanks Kazy, I really appreciate your reply. Good luck with everything and hope the very best for you.
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