Peristomal Hernia Repair

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Sherrine
Forum Moderator


Date Joined Apr 2005
Total Posts : 17460
   Posted 5/2/2005 2:40 PM (GMT -6)   
Hi!  I'm new here.  I've had Crohn's disease for over thirty years and had to have my colon and rectum removed back in 1989.  The surgery was a godsend and I definitely don't regret it.  It doesn't stop me from doing anything but moving my piano during spring cleaning! tongue    Anyway, eleven months after surgery, I developed a peristomal hernia.  I saw my doctor and he said if it wasn't bothering me that I should leave it alone.  I took his advice and this thing has gotten huge over the years!  It's in a race with my breasts to see which can get to my knees first! devil    I have seen a surgeon about having it repaired (two years ago) and he said he wouldn't suggest it.  He said that they usually rerupture which would entail more surgery.  Meanwhile, it has gotten even larger and half of me looks like I'm nine months pregnant!  No kidding!  Also, it is uncomfortable.  Is there anyone out there that has had a peristomal hernia successfully repaired?  Did they use mesh?  I've had surgeons say they don't like to use mesh because of infection. Thanks, in advance, for your help.

Patsy Box
New Member


Date Joined May 2005
Total Posts : 1
   Posted 5/28/2005 7:52 PM (GMT -6)   
Sherrie, I am glad there is someone out there like me, haha I had Ulcerative Colitis for 18 years and in 1986 had surgery to remove my colon and rectum. I had my Ileostomy for 9 years and developed a hernia also. I had surgery for mine and like to have died. They tried to fix mine right at my stoma and I was back in hospital in a day with a blockage. They had sewed my intestine together. I lay there for 9 days and they finally did surgery again and this time revised my ostomy to the left side. I went home with 2 holes in my stomach that had to heal. It was such a mess. They it wasn't 6 months till I developed another hernia. I still have ti but it is as big as a football. They told me the same thing do not fool with it unless it was an emergency so I just go on living with it. I had gallbladder surgery with pancreatitis 2 years ago and thought I had a blockage till they found the stones in my bile duct. I have rheumatoid arthritis which they say goes along with the Ulcerative Colitis. Nice to read your post and to meet you. Take care. Patsy

Sherrine
Forum Moderator


Date Joined Apr 2005
Total Posts : 17460
   Posted 5/29/2005 8:38 AM (GMT -6)   
     WOW, Patsy!  Thank you so much for telling me your story.  It validates what I have been told.  Now, I have had doctors tell me I should get the hernia taken care of, but the surgeon I have been seeing said he wouldn't advise it nor would he operate.  He said it would be easy for me to find someone to operate but it wouldn't be him.  He said it has been his experience that they rerupture and continually need more surgery.  I figured he had nothng to gain, even financially, by saying this.  But, when I have bad days I think I'd like to get this taken care of...that's why this was posted.
     I'm so sorry that you have had such a terrible time.  I've been told that if they operated that they would move the stoma to the other side and I thought, "What if the surgery on the left side ruptures and the original site reruptures?  I'd have two hernias!"  UGH!  So I didn't do it.
     I've had the hernia for 14 years and it hasn't stopped me from doing anything I want to do.  But I have to buy clothes a couple of sizes larger to go around the hernia and then have them altered!  LOL  At least I'm not scheduled for any beauty contests in the near future! tongue   I also have had several partial bowel obstructions that have required hospitalization.  Not fun. 
     Bottom line, thank you, thank you, thank you for your input.  You have REALLY helped me. 
 
Sherrine 
    
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