Ostomy leaking

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Theviper
New Member


Date Joined Aug 2012
Total Posts : 2
   Posted 8/11/2012 9:13 AM (GMT -6)   
I have a ostomy that is leaking around the seal, i have used the seals, and paste and nothing seems to help. Where they put the stoma is uneven, the bottom is lower than the top so when the stool comes out it sits on the rim and leaks through causing the skin to sting. The problem is the bottom of my stoma is almost flush with my skin and the top comes out about a quarter of an inch. Needless to say they didn't do a very good job. My ostomy should be temporary but im still waiting to see. Any help would be great!

B'Dereh
Veteran Member


Date Joined Jun 2011
Total Posts : 1912
   Posted 8/11/2012 4:18 PM (GMT -6)   
What you need to do is get yourself some samples of convex and convex-light bags. They will probqbly solve the leakage problem and then you can keep using them for as long as you will have the stoma. Hard for me to put into words what it does; so,eone else will chi,e in here and explain it better. it pushes down around the sto,a so that the stoma sticks up more.
We all go through these leakage issues in the beginning. It is a matter of finding the right bag and the right way of putting it on.

Ironmum
Veteran Member


Date Joined Oct 2010
Total Posts : 776
   Posted 8/11/2012 5:14 PM (GMT -6)   
Hi There and welcome. Agree with B'Dereh you need to try convex wafers. It has a sort of 'hard ring' which encourages the stoma to push out more and should solve your leaks. Do you have a stoma nurse you can ask for help?

Leaks are common at the beginning, esp with a temp loop ileo, it doesn't mean they didn't do a good job, but sometimes the stoma retracts back into the body and loop ileos are notoriously tricky to manage.

You should be able to get on top of this though, so try the convex bags and see how you get on. Good luck
Sarah - 40 year old mum of 2 boys, runner/triathlete from UK
June 2010 - Emergency partial colectomy for peritonitis/perforated diverticulitis. Temporary ileo, reversed Oct 2010.
Reversal failed due to bowel inertia/dysmotility
July 2011 - End Ileostomy - elective
Ongoing dysmotility/adhesions/issues.. but for the most part much better
Follow my blog - http://bagthatruns.blogspot.com

CrohnieCJ
Regular Member


Date Joined Jan 2011
Total Posts : 371
   Posted 8/11/2012 8:53 PM (GMT -6)   
 
I would also say to try convexity.  I use a convex wafer and an Eakin seal together with good results.
 
Heat and pressure are also important in getting a good seal.  I use my hairdryer to heat my Eakin seal and apply it first snuggly around my stoma.  Next I heat my Convatec convex moldable wafer, shape it and apply it on top of the Eakin.  I place the wafer in a diamond shape, rather than square.   For 3 mins or so I alternate heat from my hairdryer and pressure over all, shielding my stoma with a cap from a can of mousse.
 
There is one other thing I do during my pressure step to help solidly set the Eakin & wafer. There is a product available for quite a bit of money, but there are alternatives to the concept. It is the Equalizer by Stomaplex--nothing more than a piece of rubber tubing. You can see how it works and there are a couple of videos within this first link below. I went to Lowe's and bought a foot of rubber tubing and my son cut me off a 2-inch piece--works perfectly. The other 3 links are products I found for next to nothing in the PVC plumbing department at Home Depot & Lowe's. They can be purchased in different sizes depending on stoma size and flange size. All the same concept of even and steady pressure on the wafer around the stoma where it may be hard to get fingers into.  The top of a correctly sized empty bottle would work and some use an empty toilet paper roll [who knew  idea ]
 
 

58 year old Grandma in the Buckeye State.
UC DX 2006 in 2007 DX was changed to Crohn's Colitis.
June 2010 had 10 inches of my colon removed due to a stricture.
Refused Remicade and Humira and opted for what I was certain would be my end result.
July 2011 had a proctocolectomy with permanent end ileostomy.
Got my life back with no regrets. Life is GOOD !!!

Theviper
New Member


Date Joined Aug 2012
Total Posts : 2
   Posted 8/11/2012 9:56 PM (GMT -6)   
Thank you, i will be trying a few new things.

B'Dereh
Veteran Member


Date Joined Jun 2011
Total Posts : 1912
   Posted 8/12/2012 3:16 AM (GMT -6)   
CrohnieCJ, I loved reading about your resourcefulness, practicalness and imagiation in figuring out what would do the same trick as a convex wafer or that stomaplex. So sensible and down to earth, in a situation that made me and a lot of us totally flip out and believe we needed extra-special and expensive stoma proudcts. The problems are generally mechanical when there is a leak, so it makes so much sense to take a household thing and give it a new purpose. I remember that I could only accept myself having a stoma from the point when I started managing it as a 100% practicle, rather than an emotional issue.
Also is about taking control of the matter ourselves instead of waiting helpless for the nurse to come with a product or calling the surgeon, who we expect to know as much as Gd, but who can't do much more beyond operating on us. Sometimes the solution to a problem is lying somewhere around the house.

Post Edited (B'Dereh) : 8/12/2012 2:25:16 AM (GMT-6)


CrohnieCJ
Regular Member


Date Joined Jan 2011
Total Posts : 371
   Posted 8/13/2012 4:42 PM (GMT -6)   
 
Awwww, shucks ;)   Thank you B'Dereh and NASCARon.
 
This group and one other that I frequent have been so resourceful in all areas relating my "new and improved" life.  I found this board when I was in my decision making phase and found such strength from those who have gone before me.   Only recently have I felt comfortable enough to share some of the tips that I have found to be helpful.   None are original, so can't take any credit for ingenuity. 
 

 

58 year old Grandma in the Buckeye State.
UC DX 2006 in 2007 DX was changed to Crohn's Colitis.
June 2010 had 10 inches of my colon removed due to a stricture.
Refused Remicade and Humira and opted for what I was certain would be my end result.
July 2011 had a proctocolectomy with permanent end ileostomy.
Got my life back with no regrets. Life is GOOD !!!

ddd45
Veteran Member


Date Joined Mar 2009
Total Posts : 569
   Posted 8/14/2012 9:23 AM (GMT -6)   
also try an ostomy belt. It will help keep your stoma pushed outward.
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