End Ileostoma - was supposed to be a Loop - 2 operations on it and in severe pain - can't eat food

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odele
New Member


Date Joined Sep 2012
Total Posts : 2
   Posted 9/22/2012 3:51 PM (GMT -6)   
Hi my names Odele

I was supposed to have a loop ileostoma 17th July, then it was to reversed 3 months later. % weeks ago I found out after it was an end ileostoma which I didnt have informed consent for. The first 4 days went well and I was sent home, two days later I had a bad blockage, terrible labour pains, my right side was like a valcano, so off to hospital I went. Was there for hours in emergency waiting around, when I did see a doc she had just got out of medical school and didn't even know what a ileostoma was. but she did decide to put her gloved small finger down it, made it bleed and then inform me its soft, you haven't got a blockage go home, which I did. During the night I started vomiting as well, shaking, pins and needles and feeling freezing cold.
The next morning the stoma nurse came and saw how bad I was and rang the hospital and put me back in the emergency dept and again waiting for the Registrar Bridget whom put a foley catheter down my stoma and then bag over and readmitted to the ward. The next morning the bag was full of green waste, well this went on for 4 weeks and I was on a fluid/soft diet. In and out of hospital - catheter then home the next day, I kept informing them I felt like I was being strangled and they told me, I was being over sensitive as the first xray and ct showed nothing.

Put, one night another doc put under the x-ray when I was really blocked and see the blockage straight away, it was from under my abdominal to my left hip. The cut in my abdominal wall was too small for my intestine and it was being cut of. Well they redid the surgery, on the 14th August then just after the 2nd surgery my bed was accidentially tilted over half way and back and I bounced up and then back down on the mattress. I screamed as the inner stitiches felt like they were being torn and the outer stitiches were torn. Blood filled my stoma bag and since then I have been in severe pain under the stoma.
I feel like its the piece of colon that was strangled and its not functioning. I've been back in and they reckon they can't find anything with their tests, ct /old fashion barium meal, that blocked me up for a week after they remembered to give me a laxative after 6 hours of having the test, they made me drink 1 1/2 litres of it. I am at the end of my rope with the pain, I can't hardly walk or think. My pain meds are oxynorm 10mg / 4 hrly and panadol. Not doing anything for me.
Any suggestions on what sort of tests or pain medication I could take.

Crohnswifey
Regular Member


Date Joined Jan 2012
Total Posts : 70
   Posted 9/22/2012 4:02 PM (GMT -6)   
I think you need a second opinion, you should find a hospital that has specialties. Like a GI team and a colorectal surgery team. You have the right to be transferred to the hospital of your choice, its just hard work for the dr's so they dont like doing it, but you HAVE that right. Find a different dr please!!!
Good luck to you.

summerstorm
Veteran Member


Date Joined Aug 2006
Total Posts : 6571
   Posted 9/22/2012 4:36 PM (GMT -6)   
You shouldn't be taking laxatives with an ileo, and the stuff you drink for cts isn't the best for us because of the fast transit time. You have gotten a lot of bad care at the hospital! I think you should go elsewhere also.
Hope you feel better!
UC for 8 years, before finally kicking its butt and having a permanent ileostomy April 17 2007!
-I have gone to find myself, if i get back before i return, keep me here-
No matter what kind of day you are having, take five minutes to sing loudly and dance like a fool!

esoR
Veteran Member


Date Joined Jan 2007
Total Posts : 4147
   Posted 9/22/2012 11:53 PM (GMT -6)   
Thinking of you second opinion comes to mind good luck rosemary

Ironmum
Veteran Member


Date Joined Oct 2010
Total Posts : 776
   Posted 9/24/2012 2:15 AM (GMT -6)   
Hi Odele.. You shouldn't be in pain, nor should you have gone through the things you've experienced. You need to find a new and better Doctor/team. Get a second opinion asap. Good luck
Sarah - 40 year old mum of 2 boys, runner/triathlete from UK
June 2010 - Emergency partial colectomy for peritonitis/perforated diverticulitis. Temporary ileo, reversed Oct 2010.
Reversal failed due to bowel inertia/dysmotility
July 2011 - End Ileostomy - elective
Ongoing dysmotility/adhesions/issues.. but for the most part much better
Follow my blog - http://bagthatruns.blogspot.com
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