bad positioned stoma?

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asdrubale
Regular Member


Date Joined Aug 2010
Total Posts : 174
   Posted 12/21/2012 4:45 AM (GMT -6)   
I have an ileostomy for 20 days, and now I noticed that is probably misplaced. As my abdomen is really short, when I bent down to pick something up from the ground, the skin barrier of the 2-piece system, ends up under my ribs, and being quite thick and hard, it limits me greatly this movement, and it's unconfortable; this also happens when I sit down.

Luckily for me I also had a single piece system, which has got a thinner skin adhesive barrier, and I find it much more flexible when I move myself.

Do you think my stoma is bad positioned? And, do you think they could reposition it when I'll have my second surgery in march? At the moment it's not a huge problem, as my ostomy is programmed to be just temporary, but if it ends to be permanent, yes, I don't think I can live a whole life with a bag which ends always up under my ribs...

Equestrian Mom
Veteran Member


Date Joined Mar 2008
Total Posts : 3064
   Posted 12/21/2012 5:41 AM (GMT -6)   
You can trim the wafer a little to make it more comfortable for you. I actually trim close to 1/2" from mine, to accommodate scars that affect my wear time, and it helps a lot.

If your wafers are cut to fit you can offset the hole to make it sit lower.

Definitely talk to your doctor about lowering it. Sometimes they don't have an option if they are trying to preserve small bowel...just depends how our bodies are made.

Did a Stoma Nurse site the location? If they did you may want to let them know it wasn't a good spot and why.
formally known as OHIO76 ~ honoring my daughter's passion!
Crohn’s dx 1989
some terrible years before my temporary ileo in 2001
Proctocolectomy w/end ileo in 2008
...wish I knew then what I know NOW!

asdrubale
Regular Member


Date Joined Aug 2010
Total Posts : 174
   Posted 12/21/2012 6:04 AM (GMT -6)   
Hi equestrian mom!
Well, my stoma nurse sited the location in about 30 seconds, without asking me, and without making any tries... It's why I'm so upset. I am quite sure she didn't position the stoma well, as I see that when I sit down, the wafer touches my ribs. I'm quite sure my abdomen is not anatomically normal, it's quite short and so I feel it the stoma should have been as low as possible.

What do you mean with "preserve small bowel"? I have crohn colits and had subcolectomy. I probably will have an IRA so chances are I'll end up with a permanent ostomy, but apart this, my small bowel is not affected at the moment. I had my colon removed and kept the rectum. Do you think that in my situation will be easy to change the stoma spot?

B'Dereh
Veteran Member


Date Joined Jun 2011
Total Posts : 1912
   Posted 12/21/2012 7:29 AM (GMT -6)   
Stomas can be repositioned, but it could be in your case that they advise you to wait until it's decided if your ostomy is permanent or not. If you will ultimately have the IRA, but will still keep your stoma for a longer time, then they might reposition it if it really is a problem for you.
UC Dx and then 7 years of no symtoms. But when they started, they didn't let up, ASA stopped working, pred stopped working, and azathioprin did nothing. The threat of much more radical drugs, plus the fact that a stricture was about to shut down my colon, led to my decision for a total colectomy in April 2011, 2nd step December 2011 and ... TAKE-DOWN WAS ON MARCH 19, 2012.

2much2bear
Veteran Member


Date Joined Mar 2008
Total Posts : 624
   Posted 12/21/2012 10:02 AM (GMT -6)   
Hi i can understand your distress and unset.  I am relatviely short (5" 3) and not long in body. When i had my first stoma i knew nothing about site placement etc.  however i had a fantastic young and empathetic fashionable (whehter that makes any difference i dont know!) stoma nurse who dealt with everyone in that hospital.
 
however after a failed reversal i had another (unbeknown to me my one was away on holiday) stoma nurse site me and i actualy questionned where she put it  but she said oh its okay you can offset the hole (little did she know that is not quite easy when you are on convex and also its nice to get the hold cut for you, also the wafter now covers half of my belly button whereas at the start it covered more - i think the sweling goes down and everyting flattens more.)
 
Also due to my own fault, i asked for it to be slightly higher - about an inch (as my new jeans actually cut into my old stoma wound) -  i did not even think about the consequences of that, but she shuold have!  also it is now on my left side.  so i struggled for a few months and got really depressed and coudl not accept it, as i too found it digging into me when i bent down. try new products - some are rubbish.  I have found coloplast mostly the best size flange and discreet.
 
Dont worry you can have it moved.
 
 i however can probably not as i have been opened up three times now hence why i had to have my stoma on my left.  i have gotten  used to it now and actually the stoma is only around 1/2 inch higher - as i say i think things move and settle. So i have double trouble really. 
 
 

asdrubale
Regular Member


Date Joined Aug 2010
Total Posts : 174
   Posted 12/21/2012 10:08 AM (GMT -6)   
why you cant replace it on your right side?

2much2bear
Veteran Member


Date Joined Mar 2008
Total Posts : 624
   Posted 12/21/2012 10:30 AM (GMT -6)   
When they went in the surgeon said the muscle was too weak there - i suspect because of prev surgery. if the muscle is too weak then there is a chance of hernia. so i guess he erred on the side of caution.
Karen: 50
1997: Diagnosed IBS
2003: Pelvic Floor repair
2006: STARR/ODS/diagnosed slow transit constipation
2007: Sigmoid resection made colonic inertia worse
March 2009: Total colectomy/loop ileostomy - quality of life 100%
Sept 2010: Ileostomy reversal - constipation symptoms
Aug 2011: Gastric emptying test.
3 July 2012 ileo op
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