Your absolutely right, there are very few things in life that compare with the awfullness of an ileostomy. I too woke up after an obstruction surgery with a temp ileo. Then, 5 months later had it taken down, and never got well after. about 2 months ago I had another ileo put back into place, and this time they tell me it's permanent...like hell it is!!!! I have been searching out the perfect Doc to take this thing down, and have recently had some luck. I totally appreciate your honesty about your ileo, because I 100% hate mine too. People that say it's the best thing they ever did, or even name their bag, are totally out of my league. Even though they say it saved my life, I'm not sure it's been worth all the emotional torture I live with verses the physical illness. At least when your "sick" people feel for you, but when you can't handle the mental part of all this, people don't understand, or comments like "hey, at least your alive" are made. I'm so sick of my bag blowing off when I eat anything solid, I haven't been able to actually eat a meal, or any of the foods I enjoy for about 7 months. Before the ileo, I was so sick, and with the ileo, well whatever it's suppose to do it doesn't, which makes digesting foods really really hard. Baby food, yogurt, applesauce...thats about what my diet consist of. So Sally, you have every right to HATE your bag, I'm so happy that yours is temporary. Just keep focusing on that magical day they will take it down, the surgery itself is not too bad, and if your body does what it's suppose to do, (unlike mine) you should be back to "normal in about 5-6 weeks. You may have some "D", but depending how quickly your small bowel adapts to not having the colon will depend on how bad the "D" is and how long it will last. My colon was so bad for so long, that my small bowel adapted before I ever even had the colectomy done. Try paste around the stoma, and eakin seals work fairly well too. Pester the ostomy nurses till you find something that works for you, thats what they are there for. At first I never called them or the Doc with any problems, I always thought they would think I was just a complainer. But now, the way I see it is I didn't create this hell by myself, and I'm not going to live in it alone! So now if there is a problem, I call till I get an answer that works for me. As for your clothes...I know how bad that sucks, especially with the low waisted jeans, shorts, capri's. And do you totally hate how you can't wear any tight tank tops, or how about your bathing suit...UGH!!!!!!!! At least some of the tanks sold today are really loose around the tummy, so that works, but your right, it does totally suck!!! How many more weeks before you get the reversal? I'll help you count down the days, at least one of us has a redemption day planned!!!! Just remember, it's temporary, it'll help you get through some of the rough days. I know I sound really bitter, and I actually am, but I WILL pray Gods best for you, and that time flies by till you get the take down surgery! Remember, take care of YOU, physically, and emotionally, and if you ever want to vent or discuss how frustrating this awful thing called an ileostomy is...I'm here for ya!!!!
Post Edited (Marsky) : 11/1/2012 6:37:23 AM (GMT-6)