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summerstorm
Veteran Member


Date Joined Aug 2006
Total Posts : 6565
   Posted 8/12/2013 11:39 PM (GMT -6)   
I was just talking to my friend on the phone a little bit ago and we had a conversation I thought y'all might find amusing.
A bit of backgroud, so it makes sense. She has been having GI problems for 2 years not, lots of urgency and D, she had a diagnosis, it was obviously not right since she still has the problem. She went for a scope two years ago and found out last week that the scope was not really any good because 3/4 of her colon was still coated in poop. So she's going back in a few weeks for another one.
She knows about my bag, a few years ago when she got sick she was very worried about what might happen to her and made a comment about having to have surgery. And I told her, I wanted her to feel better, to know that if she did end up with surgery it wasn't the end of the world.

So we were talking tonight and she was telling about how she was on vacation and how she had taken some medicine she had orignally been given that worked, but made it where she couldn't go at all. Anyway, she says "Do you fart?"
And i busted out laughing because it was so weird, I thought she was asking me if I just farted, and I thought how would she even think she knew that? So i said, "what" She's like "do you fart now, or do you not" I said "well not really" So she says "do you not need to or you just can't" I said well there isn't really anything for it to come out of. I had never given her the exact details of the surgery. I said that I didn't fart like she thinks but that in the morning especially my stomach can be kind of grumbly and loud that she would hear it when we went to Nashville on our trip in a few weeks. So she says that i will probably wake up to her laying on my stomach trying to hear it!
So we talked a little more and I think mainly to ease her fears she was asking me questions. She said she thought about how I don't have these problems like she has anymore and how nice that must be and she said she knew it must have downfalls (Surgery) i said that I hadn't found any so far. And she says that I could get infections. I said not really there isn't any thing to get infected. So she says, "well it must come out somewhere can't that get stuff in it?" I laughed and said yeah but it's not just open and hanging out! It's covered up. So she says, "I assume it goes into a container of some type, possibly a bag. But don't you worry that it will fall out?" I said no not really it closes up. then she asked me how often I had to take it off I told her about once a week. I said but I had to empty it more often, so she says, so you just unscrew it off you and pour it out? I tried to explain but eventually told her i couldn't really explain this so she said she would look at a picture.
She then asked me where it was on my body and I told her it was on my stomach, and she said, "but where i can never see it! I've seen you in a bathing suit and I have looked for it!"
I said now whenever you see me you are just going to try to find it aren't you? She said yeah she was.
I just had to laugh because she was trying to ask the questions without saying things outright, like she wasn't sure exactly how to ask without offending me. I know she was asking because she is worried that she will need surgery, I think where she's at right now she would be all for it!
Anyway I just wanted to share, and anyone who is reading this who is worried about the bag showing, obviously it doesn't since she has been looking!

B'Dereh
Veteran Member


Date Joined Jun 2011
Total Posts : 1912
   Posted 8/13/2013 12:00 PM (GMT -6)   
Why don't you just satisfy her curiosity once and for all, and show her a bag sample? It's pretty self-explanatory once you see it.
UC Dx and then 7 years of no symtoms. But when they started, they didn't let up, ASA stopped working, pred stopped working, and azathioprin did nothing. The threat of much more radical drugs, plus the fact that a stricture was about to shut down my colon, led to my decision for a total colectomy in April 2011, 2nd step December 2011 and ... TAKE-DOWN WAS ON MARCH 19, 2012.

Pluot
Veteran Member


Date Joined May 2012
Total Posts : 2214
   Posted 8/13/2013 12:40 PM (GMT -6)   
Too funny! I agree, I showed my new stoma (in a clear bag no less) to my close friends when they visited the hospital my first surgery.

Everyone who *hasn't* seen my stoma has expressed most of those silly questions... my sister-in-law was SHOCKED that I was going back to work while I had the ostomy because she thought I needed to do a full appliance change every time I went to the bathroom. After I explained that wasn't the case she still said "but you'll have to use the handicap stall right?" LOL. My boyfriend originally thought I had some kind of valve implanted and that my bag *screwed* on to it, hahaha.
Liz, 26
itslikethisuc.blogspot.com

dx'ed UC pancolitis 5/12

past meds: asacol hd, VSL#3, apriso, rowasa, xifaxan, 6mp, cortifoam, pentasa, cimzia, canasa, butyrate, flagyl, cipro, prednisone, remicade, methotrexate, cholestyramine, cortenema

current meds: none!

step one: colectomy, end ileo 1/16/13
step two: j-pouch construction, loop ileo 5/1/13
step three: takedown 7/31/13

B'Dereh
Veteran Member


Date Joined Jun 2011
Total Posts : 1912
   Posted 8/13/2013 1:08 PM (GMT -6)   
Then we do have to praise the friends who said adorable things like "So what?" or pretended to be the one who emitted a weird noise when the stoma had done it. It was sort of border-line sweet/dumb when someone asked if they were putting my colon back. But downright idiocy when another person asked if I would still have problems from the amoeba that caused the UC in the first place.
UC Dx and then 7 years of no symtoms. But when they started, they didn't let up, ASA stopped working, pred stopped working, and azathioprin did nothing. The threat of much more radical drugs, plus the fact that a stricture was about to shut down my colon, led to my decision for a total colectomy in April 2011, 2nd step December 2011 and ... TAKE-DOWN WAS ON MARCH 19, 2012.

Silent Lucidity
Regular Member


Date Joined Nov 2007
Total Posts : 368
   Posted 8/13/2013 5:37 PM (GMT -6)   
I'm too blunt to answer all those questions, I would just have lifted my top and shown her.

summerstorm
Veteran Member


Date Joined Aug 2006
Total Posts : 6565
   Posted 8/13/2013 5:44 PM (GMT -6)   
I thought it was really funny when she asked if I screwed it on too. She said she didn't want to see it, I think she thought I would be naked. And honestly I don't really want to show my stomach anyway. But we were also on the phone,lol. I could take her a bag I guess, if she ends up with a diagnosis where surgery is something she really has to look at I will.
She has been fine about it, when I did tell her she didn't let it change our friendship or anything and isn't upset by it, so I am lucky in that sense. We've known each other a long time and been through some pretty odd things together, so this wasn't a big deal,lol.
Pluot I would never be able to show it to anyone, not because I'm ashamed, just because I don't want anyone to see my fat roll and my missing belly button!
Bdereh you mean you didn't have that disease causing amoeba???? Wth??? :)

petal1752
Regular Member


Date Joined Feb 2012
Total Posts : 100
   Posted 8/14/2013 7:59 AM (GMT -6)   
I did find this pretty amusing reading it at work. It's amzing how many people ask you really repetetive questions and they always seem more embarrassed asking them than I do answering them. I got bored of people asking questions and seeing that look of curiosity in people's faces when talking to me about it, so now I just get it out show everyone how it works. I empty it in front of my mates with the toilet door open and laugh at their reaction when they start cursing the smell wafting up their nostrils. I can honestly say that all my family and friends have accepted my bag as if it were there own and they are no more embarrassed seeing the bag than I am shoing it to them.
29 year old male in the UK. Found out I had been suffereing with UC for 6 years after finally getting the right tests. Unfortunately those tests came too late and that resulted in 3 life saving emergency operations. Large bowel removed and small bowel damaged/repaired. 2 x illeostomies. 20x Loperamide a day. 8 months in hospital but home now. Returned back to work after 14 months off.

summerstorm
Veteran Member


Date Joined Aug 2006
Total Posts : 6565
   Posted 8/14/2013 9:57 AM (GMT -6)   
Oh lord you let people watch you empty it? But of course, boys do like poop,lol.
I don't think anyone would want to watch me empty it. I haven't told many people, because I don't want to answer questions. Like I've never said anything about it on fb or on my site I own. I just don't feel like explaining it to all those people, so I just keep it to myself.
UC for 8 years, before finally kicking its butt and having a permanent ileostomy April 17 2007!
-I have gone to find myself, if i get back before i return, keep me here-
No matter what kind of day you are having, take five minutes to sing loudly and dance like a fool!

crohnielass
Veteran Member


Date Joined Mar 2009
Total Posts : 1117
   Posted 8/14/2013 11:42 AM (GMT -6)   
Hahaha, Bless her! Nice thats she's interested in how it all works well at least she knows you don't have to unscrew it lol!! x
Diagnosed with crohns at 13, right Hemicolectomy in 93, remmision till sept 08, small bowel resections & Entercantaneous fistula excised, along with temp stoma in 09 stoma reversed Apr 2010. 2011 3 more fistula's to deal with!!
Major surgery Jan 2013 had all fistula's, Gallbladder & sections of small bowel removed permenant ileostomy given.

2b ColonFree
Veteran Member


Date Joined Nov 2008
Total Posts : 2603
   Posted 8/14/2013 1:51 PM (GMT -6)   
aw she's a sweetie lol. ppl acsually know nothing about their insides/ anatomy. i didnt know much either till igot into this whole intestinal business. i cant remmember now all the funny questions ive been asked, but just today i went to the cosmetics girl to have all of me waxed before surgery, esp the perineum area. i felt i needed to prepare her before we start so she wont get shocked by the looks of it. she was really great about it cuz she's one of the sweetest persons i know. so after explaning everything to her she says "so what comes into the bag is blood?".... i said "no, it is..... stools". but i was thinking omg.... if i were losing same amount of blood as the amount of stools i lose every day......
Hodaya
06/05/2007 - STARR procedure
colonic inertia w/pelvic floor dysfunction
08/16/2009 - total colectomy w/ileorectal anastomosis
07/08/2010 - loop ileostomy

NiceCupOfTea
Veteran Member


Date Joined Jan 2010
Total Posts : 5661
   Posted 8/14/2013 2:28 PM (GMT -6)   
I have my brother staying with us. He knows I've had an operation, but I don't think he even knows I have a bag. I did think of telling him, but I could not think of a good reason of why he needed to know this quite personal and intimate fact about me.

Can't imagine dating and how I'm gonna tell somebody, tbh. Hate my body enough, this just compounds the hate I have for my body.

I don't have friends and family like you people do, I don't have people that ask me cute and funny questions or, indeed, ask me anything. Just a boring and dysfunctional family with a load of boring and dysfunctional people, including me, the most boring and dysfunctional of them all.

Post Edited (NiceCupOfTea) : 8/14/2013 1:42:51 PM (GMT-6)


petal1752
Regular Member


Date Joined Feb 2012
Total Posts : 100
   Posted 8/15/2013 2:58 AM (GMT -6)   
Summerstorm, I can just picture the shock on your face when you read my last comment haha. I just have the attitude that I'm not going to let the bag stop me from being me. I have always been one of these who isn't shy in front of friends, I never close the door on the toilet on my own because I like to watch TV or continue the conversation so I'm not going to let the bag change that and my friends don't bat an eyelid either which is amazing... I had to empty my bag leaning into the boot of my car last night as it filled up during a football match, no-one even noticed I was doing it amazingly enough... OOOOh, you have facebook, does that mean we can put a face to the blogger??
29 year old male in the UK. Found out I had been suffereing with UC for 6 years after finally getting the right tests. Unfortunately those tests came too late and that resulted in 3 life saving emergency operations. Large bowel removed and small bowel damaged/repaired. 2 x illeostomies. 20x Loperamide a day. 8 months in hospital but home now. Returned back to work after 14 months off.

summerstorm
Veteran Member


Date Joined Aug 2006
Total Posts : 6565
   Posted 8/15/2013 8:37 AM (GMT -6)   
The boot??? Please tell me that means something else in england than it does in the US...
I was in the library when I read that actually and everyone probably thought I was crazy.
My pic is on the photobucket site if you want to see me or my email is undermy prfoile.
UC for 8 years, before finally kicking its butt and having a permanent ileostomy April 17 2007!
-I have gone to find myself, if i get back before i return, keep me here-
No matter what kind of day you are having, take five minutes to sing loudly and dance like a fool!

petal1752
Regular Member


Date Joined Feb 2012
Total Posts : 100
   Posted 8/15/2013 8:51 AM (GMT -6)   
I am now worried about what the boot means in the US??? Disappointingly, it only means the rear holding area for the car in England..... What reaction did you make in the library to make people assume you're crazy? lol.
I'll check out your email if that's ok then!!
29 year old male in the UK. Found out I had been suffereing with UC for 6 years after finally getting the right tests. Unfortunately those tests came too late and that resulted in 3 life saving emergency operations. Large bowel removed and small bowel damaged/repaired. 2 x illeostomies. 20x Loperamide a day. 8 months in hospital but home now. Returned back to work after 14 months off.

UCwhat?
Veteran Member


Date Joined Dec 2012
Total Posts : 784
   Posted 8/15/2013 9:28 AM (GMT -6)   
I am also completely open about my ileostomy and how my body works now. If anyone wants to know, I will tell them anything. Funny thing is, not too many people ask questions, I think they are worried about offending me somehow! There was a day recently when I was talking about how nice it is to get a bath/shower on change day, with no pouch or wafer on. At that point a friend said "now that you are feeling better, I feel like I can ask you a couple questions." Those questions were "do you have to wear the bag ALL the time, and I know you "go" into the bag now, but do you still sometimes "go" the normal way too?" Not terribly crazy questions, and I was more than happy to answer!
DX:6/12 Mild UP:got/kept remission w/1 Canasa nightly
MAJOR Flare began end of 11/12
Flex Sig 12/14/12:UC,mod/severe left side
Flex Sig 2/4/13:UC Severe into transverse colon
Prednisone refractory,little to no relief from enemas or Remicade
Proctocolectomy w/end ileostomy 3/13/13
Pathology showed Severe Chronic UC into right colon
Finally off Pred as of 4/24/13
So far my new,healthy life is GREAT!

summerstorm
Veteran Member


Date Joined Aug 2006
Total Posts : 6565
   Posted 8/15/2013 1:16 PM (GMT -6)   
A boot in the us is a shoe! I thought you were emptying into a shoe in your car!
I guess part of the reason I don't tell people is because I didn't talk when I pooped before I had a bag, I don't see any reason to talk about it now! I wouldn't go on fb if I had a colon and say "just went and pooped" so I don't want to go on there and talk about pooping in a bag either,lol.
I'm kind of like nCOT in that I think its kind of a need to know thing.
UC for 8 years, before finally kicking its butt and having a permanent ileostomy April 17 2007!
-I have gone to find myself, if i get back before i return, keep me here-
No matter what kind of day you are having, take five minutes to sing loudly and dance like a fool!

petal1752
Regular Member


Date Joined Feb 2012
Total Posts : 100
   Posted 8/15/2013 2:33 PM (GMT -6)   
Haha, us English have boots as shoes as well, that's a woman thing which is why I didn't think about that.
I totally understand the whole privacy thing though, I wouldn't necessarily just announce the the world I was having a poo (although we do/did find amusement in taking photos of our poo'd and sending them as picture messages to our group of mates, we used to have a competition on who could manage the most horrific poo's).
God I sound like a horrific man lol
30 year old male from the UK. Suffered UC for 6 years without treatment. Found too late and had large bowel removed in emergency operation. small bowel perforated. Had 2 x ileostomies... now have just the 1 and awaiting decision for J-Pouch. Tough journey but not going to let it beat me. I WILL WIN.
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