I did have my surgery in Feb. I absolutely do believe it is the best thing I have every done in my life. If you read the past posts, Total Colectomy Parts 1,2 and 3, there is a lot of information about the surgery. Feel free to ask me any questions at all. Hope everything goes well for you in August!
Thank you so much Betty. When I first decided to have this done a few months ago, I was totally for it. No second thoughts what so ever. Then my husband started telling me that I was being too cavalier, that I needed to consider all possible outcomes. I didn't want to consider any negative outcomes, and still don't, but I have. He forced me to have a second opinion, which backfired on him because the second surgeon was more for the subtotal colectomy than my own surgeon. I guess my husband is just afraid for me, plus we have different philosophies in terms of surgery. I'm of the mind set: if it's broken, fix it. He, on the other hand, believes that if it's broken, suffer for as long as humanly possible then suffer a little more. Men.......is all I have to say! Still, because of him, I researched; and because of all of you, I feel so well informed. I'm more than ready to have the surgery and am counting down the days (19). I refuse to have anything but positive thoughts. I believe that will make all the difference. And stories like yours, Somer's and Sommer's make it easy. Even Sara, Zoe and Melissa who are having somewhat more difficult recoveries have been so couragous and so encouraging. Thank you all.
I had my surgery done on June 27 as well. I am 40 and live in Iowa. My surgeon left 12" of my large intestine. I am still in the "did I do the right thing" thinking. Hopefully, when the body gets in a pattern and the pain goes away. I will be glad I did it. I was to start back to work on July 11, but I had complications. I started back on August 2.
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Marcy, I had my surgery almost 1 year ago. I think for most of the girls here, 6 weeks was the magic "feel good" number.
Thanks Somer! I guess if I can piddle around the house 13 days post-op I'm doing good! I was fortunate to be able to have my small intestine directly connected to the rectum with normal passage so far! Is it normal to now be feeling the "soreness" inside as opposed to the actual incision? Not bad pain, just sore. What kinds of things did everyone eat afterwards? I know I'm limited to an extent, but suggestions would be great!
I had anastamosis also (small intestine attached to the rectum). I was still sore when I went back to work. Everything was pushed and pulled around in there, so it's normal to feel sore inside, as long as things are coming out normally. I did not have any dietary restrictions after surgery, I eat anything I want now. It's just great being able to eat and not think how bad it's gonna hurt next week or 2 coming out!
Thanks so much! That gives me great hope! Things are passing through wonderfully (without any kind of bulking agent I might add ) but I still have quite a bit of post-operative pains. The doctor suspects I strained some muscles and that's where some of the pain is coming from, but I know that to will pass and I look forward to a new and wonderful life!
breezy62-welcome to the forum! I don't have an answer for you...I have a perm ileo, but I think it is an individual thing. It may take a few months for things to settle out, until then, bulking foods might help.
Also, you may want to start a new thread. That might help with getting more replies.