Ileostomy reversal - recovery

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Adrian65
New Member


Date Joined Oct 2013
Total Posts : 17
   Posted 10/6/2013 9:49 AM (GMT -6)   
On August 15 I have had my ileostomy reversal surgery done.Now I have no colon and no rectum. Just a J pouch.
The problem is that I still have strong pain episodes, mainly at night, and I still have incontinence problems, which makes me use a diaper 24/7.
Can anybody tell me whether this is normal or not?
I am still taking prednisone, imodium, benefiber, etc, etc..., but the stool is still very liquid most of the time.

Thank you!
Adriano - male, 47
Proctocolectomy with J-pouch (re-do pouch) in August 2013

Post Edited (Adrian65) : 10/6/2013 9:28:03 PM (GMT-6)


ByeByeUC
Veteran Member


Date Joined Feb 2011
Total Posts : 3063
   Posted 10/6/2013 2:22 PM (GMT -6)   
This can be considered normal since you only had the reversal in August. It takes some people longer than others to adjust. You may need something stronger than Imodium like Lomotil which is by prescription. Have you had a follow up with your surgeon? What is your diet like?
Marianne

DX Pancolitis in 2005. Family history of UC.
Tried every drug-even Remicade & Cyclosporine (nasty!)-Tried diets-nothing worked-wanted my life back!
Step 1: J-pouch surgery (Laparoscopic restorative proctocolectomy w/ temporary diverting loop ileostomy) 6-25-10
Step 2: Take down surgery (Ileostomy reversal) 10/8/10
No more UC and no more drugs!! Very happy j-poucher!! :)

Adrian65
New Member


Date Joined Oct 2013
Total Posts : 17
   Posted 10/6/2013 3:43 PM (GMT -6)   
I am following up with a clinician in my city, as the surgeon stays in Cleveland (OH) and he is very difficult to communicate with. I live in Brazil.I am avoiding fiber (raw vegetables, salad, spices and nuts). I eat basically everything but this, trying to concentrate in light and easy digestable food, like fish, chicken, pasta, rice, soup, bananas, apples, peanut butter, etc.
Do you have an idea of how long this recovery may take? Another issue is the pain in the anal region. This, together with the incontinence makes me feel so bad...
Thank you for your response Marianne. Have you had any of these symptoms?

Adriano
Adriano - male, 47
Proctocolectomy with J-pouch (re-do pouch) in August 2013

Post Edited (Adrian65) : 10/6/2013 9:29:30 PM (GMT-6)


ByeByeUC
Veteran Member


Date Joined Feb 2011
Total Posts : 3063
   Posted 10/7/2013 7:19 AM (GMT -6)   
I had a bit of trouble in the very beginning but it all sorted out pretty quickly. I remember my surgeon telling me recovery varies a lot from person to person and that it could take up to year to fully adjust. You may have pouchitis going on. That's tough being in a whole other country than where you had your surgery. I think its very important you get someone from Cleavland on the phone with you to tell them about your symptoms.
Marianne

DX Pancolitis in 2005. Family history of UC.
Tried every drug-even Remicade & Cyclosporine (nasty!)-Tried diets-nothing worked-wanted my life back!
Step 1: J-pouch surgery (Laparoscopic restorative proctocolectomy w/ temporary diverting loop ileostomy) 6-25-10
Step 2: Take down surgery (Ileostomy reversal) 10/8/10
No more UC and no more drugs!! Very happy j-poucher!! :)
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