Hi Linda & Neelie,
There is a lot of information that has been posted over the last few months in the total colectomy section. Under ostomies, and then Total Colectomy, followed by parts 2, 3 & 4. There are a lot of unique stories within all the posts. It would be a great help to read those first and see if some of your questions have been answered/discussed. As far as I know, most or all of the ladies on these boards have had partial/subtotal/total colectomies due to colonic inertia/severe constipation.
It looks like you are both having separate issues--I'm sure if you post under total colectomy part 4, someone can/will relate to your issues :) It may also be that people don't see these messages from you if they automatically pull up the total colectomy part 4 string.....
Hope that helps--there's always room for new members on our postings! I had surgery in January and was fortunate enough to have talked to 2 women before surgery....but this site has helped a lot since then--we all help each other!