Questions on Ileostomy

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moaning martha
New Member


Date Joined Aug 2005
Total Posts : 3
   Posted 8/10/2005 7:16 PM (GMT -6)   
:-)  Hi, I am new. I had an ileostomy a year ago April last.  I have pretty much figured out on my own what I can eat and what not.  My question concerns dealing with my pouch when swimming or in water. I have not gone in the water or taken a bath. I do take showers. Any advice? Thank you.

T Jane
Veteran Member


Date Joined May 2003
Total Posts : 785
   Posted 8/10/2005 8:33 PM (GMT -6)   

GO SWIMMING !!! Take a long hot bath !!!   unless you are having trouble with leaks you shouldnt have any problems.  If you need to you can tape up around the sides of your flang with the pink tape, its real good !!! i swim all the time , i have a bad habbit of looking to make sure its not comming off but , i have never had any trouble,  i usually tape it up to just be on the safe side.  maybe you could get in the bathtub  first just so you see how it will hold up and get more comfortable about it.  but dont let it stop ya from swimming, its too hot outside. haha

good luck !!!


 
I Just tell myself, it could be worse !!!
          "Even with a Bag!!!"
                Tonia                                                                


missyoungp1963
New Member


Date Joined Jul 2005
Total Posts : 5
   Posted 8/10/2005 9:16 PM (GMT -6)   
Thats right go Swimming...take a bath...I do both...I also tape mine..it helps. I have never had any problems with it leaking. I do check to make sure its okay and intact. Have some fun. Don't let your ileostomy run your life. Try it...
Good luck
Pam

John-the-Scientist
Regular Member


Date Joined Nov 2004
Total Posts : 21
   Posted Today 1:38 PM (GMT -6)   

Mine is above my belt line.  Been swimming, I just put some tape on to reduce the "bulge".  Try some pink tape, I have found some 6" wide in the Edgepark catalog.  I've tried some elastic brown-colored tape, but it didn't stick in the water.  

My 3 year old niece asked me what that was, I told her it was a bandage from where the doctor fixed me.  If anyone else has a problem, too bad.

First time I went swimming, I taped all the edges of the flange with 1" pink tape, then put the 6" pink tape across the bag (where it is above my swim  trunks), then put the elastic-brown-colered tape over that.  Didn't want to be too conspicious!  The brown tape didn't stick in the water, so now I just use the pink tape on the outside.  It stick to the bag pretty heavy, so after I swim I usually end up changing the whole pouch.


Suzy2
Regular Member


Date Joined Aug 2003
Total Posts : 335
   Posted 8/21/2005 1:38 AM (GMT -6)   
Hello Martha.

As well as the suggestions that have been given above,another idea is to wear a swimsuit or tankini that has got a pocket sewn inside it to hold the bag. I use these and I find it gives me just that bit more confidence.

I don't think I am allowed to put a link to the company's that make them,but if you type "Ostomy swimwear" into Google.I am sure that you will find something.
 
As for taking a bath or shower, I do usualy change my bag after anyway,but I know many people dont. You should be able to just dry the bag with a towel and go. Somthing that I use a lot is a "stoma cup" it's a small plastic cup attached to an ostomy belt. Generaly.I shower with the bag on to start with and then remove it to wash around the stoma. When this is done I put on the stoma cup to catch any output and then I have both hands free to dry myself properly. Some people use this to take a bath too. I find after breakfast is the quieter time for my stoma so when I can I take my shower then. 
 
I hope this helps
Sue


Post Edited (bag lady) : 8/21/2005 1:48:02 AM (GMT-6)


sparkn
Regular Member


Date Joined Apr 2003
Total Posts : 273
   Posted 9/5/2005 6:37 PM (GMT -6)   
Swim, shower, take long hot baths....and even go hot tubbing now and again! Although don't stay too long in the hot tub. I do think that it helps after the appliance gets wet to blow it dry with a hair dryer on a medium setting.

I am curious about the stoma cup, I have never heard of one but it sounds great. Where do you get them??
Happiness is a journey not a destination - Souza


Suzy2
Regular Member


Date Joined Aug 2003
Total Posts : 335
   Posted 9/17/2005 5:14 PM (GMT -6)   
I got my stoma cup from whiterosecollection.com

I wouldnt be without it now.

Sorry I took so long to reply,i have been away on holiday.

Sue


Janene
Regular Member


Date Joined May 2005
Total Posts : 89
   Posted 9/17/2005 5:27 PM (GMT -6)   
It seems everyone is happy with their ileostomy but has anyone here ever considered the BCIR surgery. I have had mine for only 8 weeks and it is the best thing I have ever done. I do not have to worry about anything external. I have complete control over everything. I love it. I know alot of people had no choice at the time of surgery to get an ileo but what about now. I know if I had been on steroids or to sick to wait I would have needed to have an ileo first and then converted in a couple of months. I just cannot tell you how happy I am now that the UC is gone and I truly just want everyone else to be happy as well and if another surgery is not for you then so be it I just wanted to put it out there. It has changed my life and I like not having restrictions and being able to wear form fitting clothing and swim with no worry.
Janene

T Jane
Veteran Member


Date Joined May 2003
Total Posts : 785
   Posted 9/18/2005 9:20 AM (GMT -6)   
I got so excited about BCIR surgery , I wanted to get it done, but I found out they wont do it on people with chrons disease.  so that sinks big time.  I'm glad your doing good and I'm glad it works for you !!!

 
I Just tell myself, it could be worse !!!
          "Even with a Bag!!!"
                Tonia                                                                


Janene
Regular Member


Date Joined May 2005
Total Posts : 89
   Posted 9/18/2005 11:14 AM (GMT -6)   
Yes unfortunately that is one of the unfortunate circumstances when they cannot the BCIR. They have done it on patients with crohns in the past but only if they have been in remission for a long long time. I guess because with crohns it can come back in other places and also I do know that the patients that have had the BCIR with crohns have more fistulas and pouchitis.
But for patients with just UC it is a life saver. Thank you TJane I am so glad it worked also. I honestly cannot put into words the difference I feel in my health. It is truly like night and day.
I haven't been swimming in so long because when I had UC I was always in the bathroom instead of the pool. We are going swimming next weekend before they finally close all the pools around here down. I think we have about 3 more weeks.
Well everyone take care and I hope everyone feels as good as I do, if not now, then soon.
Janene

Sherrine
Forum Moderator


Date Joined Apr 2005
Total Posts : 17375
   Posted 10/6/2005 3:11 PM (GMT -6)   
I have a swimming pool and swim all of the time. I bought some light-weight spandyx panties and wear them under my bathing suit. The pouch never moves and you don't see a bulge. This works great. I bought the panties at Walmart.

Sherrine
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