Oh Melissa sweetie, you have come to the right place! Check out the post on the total colectomy group, there is a TON of information. I am also a nurse who has been through everything you have... and more! I had the colectomy about 2 months ago, and I am doing great.
As far as your colon prep, I have an odd idea for you. Go LYtely tastes awful, but if you mix it with tang (remember the old drink) its not as bad! For the colonoscopy though if you cant do anything else, they can do enemas until you are clean enough to get it done. I was in the outpatient center for 10 hours worth of enemas before my colonoscopy, but they were able to do it and get what they needed!
Welcome to the world of colonic inertia! At least you are having results, when I did it I had NOTHING after 3/4 of a gallon of GoLytely. If you are having results it is working a little bit, and you know you probably are just going to have to have enemas... it will all work itself out! Make sure that they do biopsies because your next surgeon might require those (mine did). I will kinda be around my computer for a bit tonight and tomorrow morning... good luck! :)
I never imagined that something like moving your bowels would cause me as many problems. I have been on every drug, done everything possible to be "normal" again. The colonscopy will be done with dipravan- have you had that? I am scared that they will tell me to go home and"prep" again because I am not cleaned out. But I know I am not so I will let the staff know when I arrive. I expect to be up all night,waiting to poop!! I hope I get an answer tomorrow as to whether or not surgery is the only answer-it is a big deal to have a colectomy, but I guess my misery will be over then. I am very self conscious and frightened of the scars from surgery. Vain, I know, but that it how I feel!! I have lost alot of weight and just cannot eat solid foods anymore- I have been living on coffee, water,and milkshakes for over a month now. It is hard to eat when it has nowhere to go!!
Geez, it sure sounds like a colectomy would improve your life! I would just be honest right off the bat and explain what is happening. If your GI is understanding, they will allow you do to enemas and understand why you are not cleaned out. An average patient they would send home for noncompliance, but you need to be clear in verbalizing that you are NOT an average patient.... like I said I had 15 tapwater enemas that took about 10 hours... and they GI nurse talked about cancelling twice and I told her no... my GI stayed late to do the procedure..... and was very understanding about it, never made me feel that it was my fault. I had tried to have the colonoscopy 4 previous times, and always failed the prep so was sent home... this time was different because my doc believed me! That was the most important part!
Diprovan is a Good drug... sedative and amnesiac :)
BTW forgot to tell you that I am also 25 years old.. :)
Emma, thanks for your info, helped me alot. i am leaving in 20 mins to go to appt.,slept for 5 hrs, no BM till this morning, but am not cleaned out. How much wt. did you lose with the surgery? just wondering, becuase I am aleady underweight- 5'9 and 118 pds. Well, wish me luck, I will write you later!!!
Well, I had a long and complicated hospital stay, longer than most. I had a post op ileus, and so I was in for 9 days. I lost 20 pounds at one point, but I have put most of the weight back on. I am able to eat healthier foods now, healthier than before. I had to stay away from high fiber diets because it made things worse, now I can eat all the fruits and veggies that I want! :) Good luck, your in my prayers today!
Hello!! I am home- it went well, and my prep worked- thank god.was asleep the whole time- it was great. still sleepy and hungry, but home with my doggy!! The results- doc said that there were no polyps, tumors,etc.. but a kink in left side- was twisted, causing the pain and stool could not pass through. he straightened it and i have to get a colonic transit study, then go back to see him oct.6th. what do you think of that? does it sound like it makes sense? what did ur colonoscopy show?
My colonoscopy showed dilation of the sigmoid flexure and the cecum. No polyps, and no other abnormalities and just hypoparistalsis of the colon. If you had a blockage or a twist maybe that will solve your problem?