New Topic Post Reply Printable Version
[ << Previous Thread | Next Thread >> ]

artist65
Regular Member


Date Joined Mar 2005
Total Posts : 49
   Posted 10/9/2005 12:11 PM (GMT -6)   
I have read posts asking about taking a bath or showering. Am I wrong to assume you can shower without a bag? If a little drips out, no big deal right?  Are there times when the ostomy is quiet or is it draining 24/7?  I am considering the surgery. Any advice?
 
 
 
 
 
 
 
 
 
 
 
 
 
 
 
 
 
 
 
 
 

Suzy2
Regular Member


Date Joined Aug 2003
Total Posts : 335
   Posted 10/9/2005 1:49 PM (GMT -6)   
Hello Artist

I have an Ileostomy so unfortunatly that means that my stoma is active on and off all day and all night. It does have quiet times though(usuely after breakfast) and I find it isn't vey active then until about 4pm. If you were having a colostomy and not an Ileostomy I think you would find that the stoma is only active at certain times. I think this is partley to do with the fact that what you lose from a Colostomy is a lot firmer than the more watery stuff that we Ileostomates pass through the stoma.

Most of the time I leave on my bag to Bath or shower and then change the bag after. At least once a week though I remove the bag to shower.I choose a time when the stoma is usuely less active, but that doesn't mean that it doesn't sometimes decide to misbehave. I never take a Bath without the bag though because I dont like the idea of any stray output floating in the bath,but taking a shower without it is fine because everything just gets washed down the plug hole anyway. I also have somthing called a stoma cup. Its a small plastic cup that is attached to a belt around the waist. I usualy put this on when I have finished washing around the stoma area and then I know that I can dry myself with a towel and not have to worry about any mess that the stoma might decide to throw at me.

No one person has the same routine with a stoma and you would soon find your own way of doing things.

All the best.

Sue


Janene
Regular Member


Date Joined May 2005
Total Posts : 89
   Posted 10/9/2005 2:48 PM (GMT -6)   
Hello Artist
 
I wanted to let you know that I do not have the conventional ileostomy. I have what is called the BCIR. I do not where anything over my stoma because nothing comes out or goes in unless I am intubating with the catheter. I can swim and take baths all I want. I can do anything. I love the freedom. I intubate 3 or 4 times in 24 hours. Usually 3, unless I eat something that don't agree with me. I was going to have the j-pouch but decided I didn't want to go to the bathroom 'normally' ever again. I just can't tell you how it has changed my life.
The downside is that they do not do it on crohn's patients. You can go to www.bcirostomy.com and learn more about it. They have a message board and monthly chats. I will tell it has changed my life. I never thought I was going to be free again.
My kids love the freedom we have now also.
Good Luck
I hope you find all the information you need.
Janene

gardespatient
Regular Member


Date Joined Mar 2004
Total Posts : 33
   Posted 10/10/2005 3:29 AM (GMT -6)   

Sue,

I must say, you have the most interesting gadgets and know hows for that ileostomy of yours! What is a stoma cup, and by the sounds of it, I want one too, so where can I get one. I also agree with you about showering and bathing, sitting in a tub with stool floating around...not a good idea. My Doc also said you run the chance of a UTI, it's a slight chance, but why take it if you don't need to. I too shower with out the pouch about once a week, I am so raw around the stoma that I try everything to get it as clean as possible, and I'm thinking if I had a cup, maybe air drying wouldn't be so diificult. The ostomy nurses are thinking maybe the air could help heal the rawness around the stoma.I've tried all the creams, the powder, the "goopy stuff", you name it, I tried it...I think it's the position of the stoma. Hopefully we will be doing another surgery in Nov, due to nerve damage in the small intestines, and then we are also going to create a new stoma in a better position.  Then hopefull, if all goes well, in about a year I will have it taken down. But, for right now we are facing the possibilities of me being in Liver failure. I've been in and out of the hosp for past 2 weeks due to this, and all my tests so far are pointing in the direction of failure.  I know I'm rambling, so will shut it for know. Let me know about the cup, OK?!!!!  


Tammy


Suzy2
Regular Member


Date Joined Aug 2003
Total Posts : 335
   Posted 10/11/2005 2:20 AM (GMT -6)   
Hi Tammy.

I got my stoma cup from whitrosecollection.com It's a UK based company. I am not sure who else makes them. The cup is made of plastic and is only very small. I like it because it alows for my hands to be free when drying off after the shower. Before I discovered the cup I would get realy frustrated when I was trying to towel dry after a shower with only one hand because the other hand was holding a dry wipe against the stoma incase it decided to spit. Being small,the cup doesn't hold much output but I don't need to wear it for long so that isn't a problem.

I think you know all my Gadget secrets now Tammy. If I think of any more I will let you know lol.

New Topic Post Reply Printable Version
Forum Information
Currently it is Friday, August 18, 2017 12:18 PM (GMT -6)
There are a total of 2,857,167 posts in 313,473 threads.
View Active Threads


Who's Online
This forum has 155105 registered members. Please welcome our newest member, yongyi.
514 Guest(s), 17 Registered Member(s) are currently online.  Details
ResilienceR, KevinJWhite, 19tarpon47, Micah68, Teddy Caton, PeterDisAbelard., Jerry L., Woogy, Hope4Happiness, Doire, Scaredy Cat, CaliJR, searchinginla, WifeofPie, Tim Tam, vaportrail, Tall Allen


Follow HealingWell.com on Facebook  Follow HealingWell.com on Twitter  Follow HealingWell.com on Pinterest
Advertisement
Advertisement

©1996-2017 HealingWell.com LLC  All rights reserved.

Advertise | Privacy Policy & Disclaimer