Has anyone heard from Kelly lately......... Here I am.
I have gone back to my rotating 12 hour days. I have accepted a new position that will be 5/8 hour days, no weekends, freedom to go poo when I need to no need to take the 2 way radio in with me. BUT.............. I think tons more stress. Like I did not have any before. The compensations one has to make. I will be doing both jobs for awhile, no time off.
Things have been going good. I was told by my surgeon not to look in the stool anymore to analyze what is coming out. Not to strain (could blow a gasket) and just go with it. I am now taking a Zelnorm when I feel extra full. WOW, does it work and now. It makes everything watery though. Kinda like the feeling you get when you take sodium biscodyl. Also, the apple a day seems to help too. I even woke up in the night to go. I am still trying to manage my weight. Even though your missing part of your guts, the chocolate still goes to the hips and butt.
Glad to read everyone is doing good. Wish I could be on here more. If anyone wants to chat in person, see the TCC sheet for my phone. Here is my e-mail firstname.lastname@example.org.
That was interesting about hair falling out. That's been happening to me ever since the surgery. Thank God I have very thick, coarse hair so it isn't really noticable but it is creepy when you wash your hair and get a handful of it. I have been trying to let my hair grow, so I am resistant to cutting it. What causes that you nusrses and doctors out there.
I have been doing okay. I still can't eat a lot of stuff and never put the weight back on I lost. My doctor told me some people just don't. I've always had a very sensitive stomach and never really did eat a lot of spicy foods. I've be kind of depressed lately too, so that is a real appetite killer for me.
Cathy, I am so happy you are on the road to recovery. You have had one heck of a time. You are always in my prayers.
Cathy - Good to hear that you are doing well (and wearing your seat belt). Your a brave girl to try some salad, I still find that high fiber foods are really giving me alot of cramping so no reason. Have fun with all of those f/u appointments. I have heard alot of complaints from patients about the Lunesta and the metallic taste as well as it not working as well as Ambien. Be careful with the temazepam, although it will work well for you while you are off of work, it is very habit forming and will also have a nasty hang over effect... but then again right now you dont have too much to worry about getting up for... so its ok!
Grad school is horrid!! I am soo busy I can hardly stand it... and of course just when my classes are getting busier... so are my students classes getting harder and thus they need more of my time... its like a viscious cycle. I just stick to my mantra... ONLY FIVE more weeks LEFT!
My birthday is in 4 days, and I am taking a WHOLE 1 1/2 days and going out of town... away from homework, students, and everything else.. I cant wait!
Hey Emma- Out of town sounds real good about now! Happy Birthday too! I'd say that your plate is full.
The salad didn't work for me, I don't think I'll do that very often. Hot dogs and beans didn't work either. French fries are bulk forming for me, but smell bad. I'm learning how different things work for me or not. Because I have to empty the ileostomy pouch, I have to see everything- yuk! It's been hard to get used to that! But most importantly, everything works inside. My transit time is very quick. No constipation here! No Imodium, Miralax, or fiber. Just my HTN/Tachy medicine, and the Lexapro for depression, and occasionally something to help me sleep. I was taking way more crap before surgery.
Today marks 2 months since the 1st surgery. 1 1/2 months since the 2nd. I'm half way to the 3 months recoop mark for reconnection. After the new year I should be ready physically. Really, I'm scared to death of another surgery, after so many problems last go round.
My hands are done peeling, but now my face, arms and the souls of my feet are peeling. What else?
Thanks Cathy, No, there were no signs. I felt fine one day, thought I was eating right and was sick the next. At first I thought I had the flu, but my abdomen hurt so much I knew something else was wrong. The dietetion I spoke with mentioned that sometimes chocholate (bo ho) can cause problems and the only other thing I ate that I normally don't was olives at a Halloween party. Well, I'm following the new diet to the measure. My husband and I went out and bought a food processor today and i even got some baby food. Even with all the problems, I'm still glad I had the surgery. Thanks for the well wishes. We're going out again on Friday. I think i'll stick sick with fettuccine alfredo have few bites and take the rest home. Happy anniversary to you too. Enjoy the Eagles concert. I love those guys.
Well wishes to all,
We're lurking out here. Glad to hear about you and your hubby getting "togehter". The first time my husband and I tried it I was so nervous, I felt like a virgin. I'm doing better. I am so afraid to eat anything. I've been existing on cream of wheat, jello, applesauce yadda yadda yadda. The thought of having another NG tube scares the hell out of me.
I just wish there was somethng I could do about my hair. Halloween is over, so the witch look is out. My hair is so dry and brittle. Are there any vitamin supplements I could take?
Love to all!
Hi Sara and all!
You sound just like me. Food I think should shoot through plugs and visa versa. We went out for my birthday last night to this really great Italian restaurant and all I ate was soup and I still felt sick because it was highly spiced. If I look at another bottle of Boost I think I'll puke LOL.
I had a blockage in several places. The doctor showed me the xrays. There were five or six large dark spots that weren't allowing food to pass. He said a lot of it had to do with scar tissue and it should clear up as I heal more.
Thanks for the hair tip. I'll get some of that today.
Love to all
Hi Cathy et. all.,
Tummy gurgles are good my doctor told me. Once, when I was at work I was talking with my boss in his office and my stomach made the loudest sound I ever heard. He just looked at me, I looked at him and we started laughing. I told him that meant I was getting better. When they stop, that's when you have to worry. When I was in the hospital last week they kept listening to my abdomen trying to hear something. They said it was way too quiet in there - not good.
I am dreading Thanksgiving. My husband's family are all BIG eaters. There is so much food there that I can't eat and they don't really understand why. I'm thinking of bringing my own tomato soup and jello, really I am. I don't want to get that NG tube again. I think that was worse than giving birth.
Well, got to do laundry and see my girlfriend this afternoon. After 25 years of marriage her husband served her with divorce papers. She's devestated. Keep her in your prayers. Her name is Sharon.
We don't really like black stool because it could be a sign of old blood. Stool can be black because of taking iron supplements also. You should let your doctor know so they can test it for blood. That's called a guiac test.
I had 5 drainage tubes and I had one get stuck on the way out too. They are not connected to anything inside. They are used to drain fluid or abcesses. They are usually called JP's. I was real glad to get them out though.
We glad you're home, now you can start the recovery period. Start slow and listen to your body. When you're tired, sleep. When you have energy, don't over do it. And let other people help you. It's time to call in those favor cards.
I've been home for 4 weeks. I still tire easily, but I'm feeling pretty good. Hope this helps. Let us know how you're doing and if you need information.
Love to all,