Nancyfa, I have suffered with very similar symptoms to your sister. Has she found things that work for her? If so, can you share the information with me? I am 6 weeks post colectomy and I cannot eat very much or I get backed up. Thanks you so much!Amey
Hello, I am new to this post, but am a member to Total Colectomy. I had mine 31 Jan 06. When I left the hosptial 14 days afterward, I was having approximatley 15 bms daily, now I am down to 1-2 daily and they are solid. I lost 20 lbs and have maintained it. I still tire easily. The nurses told me I probably would always have bms the consistency of mud. Somedays I have (d) and other days not. I have decided that stress (have a stressful job) makes it more difficult resulting in only 1 or 2 bms a day and that is after I get home. Just hard to go at work. I am eating almost anything, but sometimes I over eat and get bloated. I am staying off red meats and eat mostly chicken and fish. My doctor also told me it would take 6 months for my insides to figure out what they are supposed to do and I have noticed they have slowed down. I don't have the pain like I did before and I read from the other forum that Welch's 100% grape juice works for making you go. I tried Zelnorm and Murilax, etc., everything before my surgery. So I was hoping that I would never have to take those things again.
saramarie: How do you get the motilium? Does it work better than Zelnorm and does it make you stomach swell and bloat?
Do you find that small meals are easier to tolerate than larger ones.
Right now, life is wonderful and I have not felt this good in years. Like I said earlier, I do tire easily still and seem to have more anxiety. I think some of that is worry about how many bms I am going to have that day.
I have you trried adding a handful of dried prunes to your diet? I find that if I eat a handful a couple times a day with 8 oz of water, I have more BMs.
here is the info on domperidone:
Domperidone(dom-PER-i-done) is a medicine that increases the movements or contractions of the stomach and bowel. Domperidone is also used to treat nausea and vomiting caused by other drugs used to treat Parkinson's Disease.
Because our symptoms are so similar, I had to check and make sure that the post was from you and not previously from myself. My Dr looks at me like I am crazy when I tell her that my stomach gets distended after I drink water. By the end of the night, I am wearing my hubby's shorts because my tummy is so bloated. My diet is very small..5 prunes for breakfast, 1/2 cup gluten-free pasta (made from brown rice) with prune juice for lunch, and 1pc fish for dinner. I still bloat and I have gained 5 pounds. I run about 4-5 miles a day and I am 8 weeks post surgery. My Dr started me on Reglan for motility but the side effects are awful - I feel loopy and dizzy. Can you please email me the site you use at firstname.lastname@example.org? I do not mind eating the same boring foods everyday; I just cannot handle the bloating. Have you had any side effects or weight gain?