I have Crohn's Disease and have been hooked up with a temp. Loop Ileostomy re-conect pending. I too like you have great support..but at times I think I will go mad, all these things the just seem to go wrong...well you need to keep your head up and know that we are all here to support you...you also may want to try the crohn's and colitis section..
I to have issues with the bag..I have to keep going from one type to another...my stoma with suppose to only be for a few weeks..it's now been 8 weeks and counting..the problem is that I got an infection in the stomac from the surgery and it's taking time to heel ( cause for the infection I tooke steriods for about 8 months) so the wound is heeling real slow..so no re-versal till it's all closed up...so now the stoma has been shinking..cause that is what it does...so I have little to work with as far as flanges goes.
So everytime I change, I have to uncover it before I see what I can use this time...It's real fun..
Take Care and Good Luck!
Crohn's since Jan/91- 1st re-section Aug/98 2nd Sept/2005. Temp. Loop Ileostomy reversal pending...
"Life is like a bowl of cherries" :)