Thank you so much for replying phil and Beth,
My appointmet with my Doctor is April 6th to talk to him about reversal. I dont understand though......Why do they need to take the rectum? Dont you need that to control .... uh ya know? What is the difference between the reversal and the final take down?
Hi Crissie, welcome to this site. My mom is still not in total control since her reversal surgery on Jan 23. You must consider that mom's surgery was not because of crohn's and she had two bags, one for mucas. She was with the ileostomy for only 9 months. But also she is in her 70's. I think you would do well if you were in top physical shape before having surgery. The surgeon who performed the ostomy is the guy we got to reverse it. Her insurance covered it because it was alway a temporary thing. I know alot of this really does not apply to you, but may apply to someone else out there. I think Jean is getting ready for her surgery the end of this month or beginning of April. We haven't heard from the guy who is a paramedic, he had his done in December I believe. Seems like he went back to work in just a couple of weeks. Everyone is different. - Rhonda
I know how hard it is keeping track of one bag, Two? My goodness. She is blessed to have a daughter as caring as you are.
I was also wondering if any of my ostomy friends have ever experienced intestinal twisting? I have had it happen twice, doctors kept treating me for CD when my intestine was actually twisting and causing the pain and vomiting. I actually spent most of 10 months in the hospital missdiagnosis... (since I had already been diagnosed with CD). I have titanium staples tapering intestines to abdominal wall. I was wondering, If I had it reversed, would it still need to be tapered up?
Hi Folks, Sorry it's been awhile since my last posting. I've had a few ups and downs. That and we sold our house and were moving, when I ended up back in the hospital with an infection. Apparently I had a pocket of it above my bladder, that think it was from my last incision line from the February surgery. Anyway, five day's later and a bunch of IV antibiotics and they sent me home. I am scheduled next Wednesday for the Iodine push to look for leaks on my reversal, and if that is fine they will do the ileostomy take down on the 21st. Looking forward to it and getting back to work hopefully in a couple weeks after. While I was in the hospital they did do one iodine push to check for leaks. That was not too comfortable. They push it through the ileostomy and that along with some gas, it was uncomfortable. Also some of the gas must have gotten into my chest because I had some chest pain. Of course, with a stent from a previous heart attack, they didn't take any chances and moved me to Cardiac ICU for three days.
That really stunk. No phone to check on how the family was doing in the midst of the move. But needless to say, I made it through and am looking forward to the take down. I do have one question though. Has anyone experience pain in the ball and heel area's of their feet possibly from any medication? Mine are throbbing and it is hard to walk. Almost like neuropathy and may be, but the skin isn't hot to the touch or sensative. It just feels like I am walking on Ice skates without the bottom of the shoe. Anyway, take care to all.
Hi gbrux and everyone, Just checking in. gbrux, the pain that I am having in my feet is in my right heel, and also under my second toe and into the ball of my left foot. It was strange. I went into the hospital on the 21st for my take down and was in there until Sunday. I noticed the pain had really subsided and swelling went down while I was in the hospital. I don't know if this is going to be tied to a diet issue or what, since I was mostly on liquids and ice chips for about three days. As for the being off the medication, I can agree with that how well you must feel. The 6mp, Prednisone, I did it all too. I think ones system can just take so much garbage before it fights back. I've been off all that since October, and the only thing I am on now is Loepressor for a heart attack I had in September.
Anyway as for my progress, I am managing to get along pretty well. Still a mild case of the butt burn but it is clearing up a bit. I have been taking some immodium to slow down the system and help form along with eating bulking foods. Monday night I was up three times, Tuesday only once and twice last night, so all in all, I am pleased for where I am. Daytime is a crap shoot. Pardon the pun. Part of the day I am rockin' and then it's musical toilets in the house. Just when you think you're done you go to give a standing ovation and have to sit right back down again. I am sure that this will work out though. Unfortunately, right now I can't have one of my favorite foods, sautee'd mushrooms. YOUCH ! Those burned.
Going back to the Doc tomorrow though, as I am a bit concerned about the incision. It's probably the strangest suturing I've seen, maybe someone else has experienced it and it is normal. It looks like a telfa pad folded in half and placed just in between the edges of the incision, then two sutures about mid-way to hold it closed. I'll ask about it tomorrow, but it almost looks like they are trying to prevent the outside from healing faster than the inside. Who knows. Well going to go sit in a warm tub and soak my troubles. Best to all.
Hi AVP and welcome. As for the weight gain, mine was up and down over the years with the off and on use of Prednisone. It was really hard to track. As far as having the ileostomy take down and recovery, I am now 2.5 weeks post op from the take down and haven't really gained alot of weight. Mostly, I lost mine during the initial subtotal colectomy in October, 30 pounds and never really regained it. I think the most I gained was 10, then I would have a surgery again and lose that.
Hope that helps and hope all goes well with your surgery. Take care. Phil