I'm so sorry mythaldo. PG is devastatingly painful. One of the reasons why I'm hanging on to my dyfunctional bowel; including fistulas is the risk of PGG. I believe 70% of ostomates will have some form of skin irritation at some point but if you have had PG, there is a 30% of getting it around your stoma. Sounds like you might have crohns. I had UC but that changed when I developed severe PG on my legs 10 years ago and now of course I have lovely fistulas.
The only thing that has helped my PG and put that into remission is IVIG. It also helped my bowel. I don't think there is any evidence to suggest that Entyvio helps PG. The other option is using tacrilimous. That also helps PG
IVIG (on hold)
UC/Crohns - tested positive for MAP antibodies & mycobacterium
chronic perianal abscess and fistulas. Failed setons...it was pure torture.
started Stelara May 24, 2017. 100mg imuran
Hoping to start Anti-MAP drugs soon
Had a 10 week reprieve, now flaring...again. 4 years of flaring is tiresome.