Pyoderma and ostomy

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U B Tough
Veteran Member


Date Joined Aug 2015
Total Posts : 812
   Posted 2/9/2017 7:36 PM (GMT -6)   
Anyone with PG and an ostomy? Wondering if PG has ever occurred around stoma?

Thanks
female, Canada

IVIG (on hold)


UC/Crohns - tested positive for MAP antibodies & mycobacterium
PG- remission
Flaring 3 years. Currently dealing with fistulas including rectal/vag and vulvodynia caused by IBD (taking 3000mg gabapentin)
started Humira Sept 1, 2016. 80mg weekly
started Hyperbaric Oxygen on Dec 13, 2016

cupcakespinkgal
Veteran Member


Date Joined Jun 2010
Total Posts : 1495
   Posted 2/10/2017 4:13 PM (GMT -6)   
One person in my support group got it on one side next to her stoma. It took awhile and a lot of diligent appoints with her WOCN but it did heal.
Diagnosed with Crohn's 1998 and PSC 2015

Surgery 10/15 - colon resection with loop ileostomy
Surgery 12/15 - ostomy closure-disease came right back
Surgery 3/16 - total proctocolectomy - so happy to have my stoma back!

Mythaldo
New Member


Date Joined Aug 2017
Total Posts : 1
   Posted 8/11/2017 4:49 AM (GMT -6)   
I'm currently battling a peristomal pyoderma gangrenosum. It was getting better very slowly, but it started flaring up again about a month ago. If insurance approves Entyvia infusions, I will start these soon. Has anyone else had to deal with PPG? I had UC, and had colon and rectum removed November 2016, and PPG appeared about a month after surgery. Any experience would be nice to know. Thanks!

U B Tough
Veteran Member


Date Joined Aug 2015
Total Posts : 812
   Posted 8/12/2017 11:48 AM (GMT -6)   
I'm so sorry mythaldo. PG is devastatingly painful. One of the reasons why I'm hanging on to my dyfunctional bowel; including fistulas is the risk of PGG. I believe 70% of ostomates will have some form of skin irritation at some point but if you have had PG, there is a 30% of getting it around your stoma. Sounds like you might have crohns. I had UC but that changed when I developed severe PG on my legs 10 years ago and now of course I have lovely fistulas.

The only thing that has helped my PG and put that into remission is IVIG. It also helped my bowel. I don't think there is any evidence to suggest that Entyvio helps PG. The other option is using tacrilimous. That also helps PG
female, Canada

IVIG (on hold)


UC/Crohns - tested positive for MAP antibodies & mycobacterium
PG- remission
chronic perianal abscess and fistulas. Failed setons...it was pure torture.
started Stelara May 24, 2017. 100mg imuran

Hoping to start Anti-MAP drugs soon
Had a 10 week reprieve, now flaring...again. 4 years of flaring is tiresome.
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