Skin care post surgery

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CharlotteR
Regular Member


Date Joined Jan 2017
Total Posts : 61
   Posted 3/20/2017 5:31 PM (GMT -6)   
Hello All,

I was just wondering what your experiences have been with taking care of the skin around the stoma.

I had surgery almost a month ago. I have some redness on the side of the stoma (something that looks like a small hole) and will see the doctor about it soon, but I would like to know how you've dealt with it.

From what I hear, it's just important to clean the skin regularly (I do it daily) and dry it before putting the adhesive on. I'm not sure that I'm supposed to be looking for ointments or anything.

Thanks.

cupcakespinkgal
Veteran Member


Date Joined Jun 2010
Total Posts : 1469
   Posted 3/20/2017 7:04 PM (GMT -6)   
For me less is more. Initially I had some redness that seemed to subside the more my skin adjusted.

I like using the Safe n Simple peri stoma cleanser wipes when removing the wafer and initially cleaning up the skin. They are a good size, soft, and don't leave any residue. Then I just wet a piece of gauze and clean with warm water. Make sure skin is totally dry.

For right around my stoma after I've cleaned I use a little stoma powder and crust it with a barrier wipe. Any time I have a little red or raw skin right next to the stoma the stoma powder really helps. I usually crust it twice. I don't use anything on the rest of my skin before putting my wafer on.

I was overwhelmed by all the products at first and trying to keep my skin healthy but after a couple months it becomes much more routine. I usually change every 4-5 days.

Probably is wise to have your Dr or stoma nurse look at that spot.
Diagnosed with Crohn's 1998 and PSC 2015

Surgery 10/15 - colon resection with loop ileostomy
Surgery 12/15 - ostomy closure-disease came right back
Surgery 3/16 - total proctocolectomy - so happy to have my stoma back!

Post Edited (cupcakespinkgal) : 3/20/2017 7:08:01 PM (GMT-6)


cupcakespinkgal
Veteran Member


Date Joined Jun 2010
Total Posts : 1469
   Posted 3/20/2017 7:06 PM (GMT -6)   
Are you changing everyday?
Diagnosed with Crohn's 1998 and PSC 2015

Surgery 10/15 - colon resection with loop ileostomy
Surgery 12/15 - ostomy closure-disease came right back
Surgery 3/16 - total proctocolectomy - so happy to have my stoma back!

CharlotteR
Regular Member


Date Joined Jan 2017
Total Posts : 61
   Posted 3/20/2017 7:31 PM (GMT -6)   
Thanks. I haven't heard about those products yet. I'll ask about them. I've just been using wet cotton wipes and dry ones.

Yes, I have the SenSura Mio 1-piece pouch and I change it every day.

cupcakespinkgal
Veteran Member


Date Joined Jun 2010
Total Posts : 1469
   Posted 3/20/2017 8:22 PM (GMT -6)   
Safe n Simple is generous with samples. I think they have a starter kit for new patients. I can't remember everything they sent but they sent 2 boxes of 5 inidividual wipes each. Worth going on their website to request, they send stuff out pretty quick.
Diagnosed with Crohn's 1998 and PSC 2015

Surgery 10/15 - colon resection with loop ileostomy
Surgery 12/15 - ostomy closure-disease came right back
Surgery 3/16 - total proctocolectomy - so happy to have my stoma back!

clo2014
Veteran Member


Date Joined Feb 2015
Total Posts : 517
   Posted 3/20/2017 9:09 PM (GMT -6)   
Charlotte,

I had separation of my stoma from the skin which created a raw weeping mote for about 4 months. Now the skin is just alittle red and irritated.(6 months post up)

Ointments made my skin too oily and my wafer would not stay on. I can use coconut oil to take off the wafer (I use convatec 2 piece) but I have to wash and dry the skin really well and then I use the the adhesive remover wipes and wash my skin again...then I double crust with stoma powder except when it is redder, itchy and sort of achy....then I use a very thin layer of stomahesive...(comes in a tube and thicker than toothpaste. ) and I always use at least 2 barrier wipes. I change my bag every 3 days. My stoma nurse asked me to stop changing daily as my skin was becoming more irritated and it could not heal with the daily changes. My nurse also recommended that I start taking more showers without a bag on and start using the adhesive removal wipes instead of coconut oil. Less is more. Tried it today and it saved me 5-7 minutes....

I would think that it would be normal to have some redness around the stoma 4 weeks post up.

If you didn't receive samples and you are in the U.S. Hollister, Convatec and Coloplast all send a box of samples. If you are having issues and working with your stoma nurse they will send you additional samples as needed. They all worked with me for 3-4 months after surgery to find something that woold work.

Hang in there. It gets easier every day.

Clo
06/12-07/14 symptoms start, no diagnosis.12/14 diagnosed UC & diverticulitis. 01/15 hosp- fistulas, DX changed to Crohns, 02/15 developed new skin rashes, eye problems and painful joints 06/15 Hosp.2x again.. new specialist.Said was worse case he's seen. 7/16 hosp 5mm Stricture stricturplasty to 15 mm.09/16 colostomy. Meds: Remicade, methtrexate, prednison,folic acid, vit D, calcium, pro biotic,

Vdahl & Roo
Regular Member


Date Joined Jan 2017
Total Posts : 32
   Posted 3/20/2017 10:45 PM (GMT -6)   
Hi Charlotte!
I am also recovering from surgery. I too have been having issues with irritation around the stoma. I ended up back in the hospital (for a couple weeks) immediately after surgery with an ileus so I know there was some leaking under the barrier. I was also extremely dehydrated, so a lot of liquid passed through the stoma. With the help of wonderful ostomy nurses, moving to a convex pouching system helped. Now I have an UTI, which I'm sure was brewing in the hospital. I'm having a hard time getting the correct consistency again. The stoma is still changing too which adds to the problem of keeping the skin clear. I do use the protective powders and barrier spray.

They're right about the sample packages - I've been very pleasantly surprised. They also provide a lot of different information and ideas for maneuvering our way back to a normal life. I am using a one piece, changing it every other day. The nurses also told me that changing it daily was too often unless I know it's leaking because that can burn the skin even more.

Good luck & know, You've Got This!!! Vicki
Ileostomy 2.2.17 - post surgical hospitalization 2 wks. for ileus
IBS and chronic constipation since childhood (laxative dependent)
Slow Transit/Colonic Inertia (Colon Transit Study w/ Sitz-markers)
Rectocele with prolapse and obstruction
Graves Disease & Graves Eye Disease
Fibromyalgia
Major Depressive Disorder, Anxiety, PTSD

CharlotteR
Regular Member


Date Joined Jan 2017
Total Posts : 61
   Posted 3/21/2017 2:01 PM (GMT -6)   
Thanks to all of you for the tips about the free samples! I just reached out to a few websites.

Clo, good to hear that the redness has gone down. I will try the powder. My stoma nurse is in Denmark where I live and I am visiting the US at the moment. I'm just waiting for approval from my insurance to see the GI specialist here. I've had some redness that has come and gone, but the small hole next to the stoma seems a little different. It's not getting bigger, so hopefully that's a good sign. Hopefully it's an easy fix.

For now, the redness is just in the area surrounding the small hole, so I'm continuing to change the pouch daily. I can reach out to the stoma nurse over the phone and ask about whether it makes sense to keep the pouch on for another day or 2. I really like changing it every day - but not at the expense of the skin's ability to attach to the adhesive.

How is it taking a shower without the bag on? I'm afraid to try it as I am not the only person that uses my shower. Do you just clean the shower drains afterward?

Vdahl & Roo, sorry to hear about your ileus and then the UTI. Hope the UTI goes away fast.

My stoma is still changing as well. It's been a bit of a challenge to use the tool to measure the size of the stoma. Once, I realized I had to lift the stoma up a bit as it had been covering some of my skin. There was some redness on the covered skin because it took me a few days to figure it out, but luckily the redness went away pretty fast.

Looking forward to clearer skin!

Vdahl & Roo
Regular Member


Date Joined Jan 2017
Total Posts : 32
   Posted 3/21/2017 6:49 PM (GMT -6)   
Good to hear the response Charlotte!

You're really on top of things and obviously a quick study. I have only showered with the bag off once. It does feel nice was also a little awkward (hoping it goes a little easier tonight). I kept a washcloth close along with paper towel to be sure I could "man the pumps" so to speak. I do clean the shower but wa

It's a learning curve for sure... not one I was expecting at my age, but I can already tell that it's going to be better than the alternative.

Wishing you lots of luck and happiness!

Vicki
Ileostomy 2.2.17 - post surgical hospitalization 2 wks. for ileus
IBS and chronic constipation since childhood (laxative dependent)
Slow Transit/Colonic Inertia (Colon Transit Study w/ Sitz-markers)
Rectocele with prolapse and obstruction
Graves Disease & Graves Eye Disease
Fibromyalgia
Major Depressive Disorder, Anxiety, PTSD

clo2014
Veteran Member


Date Joined Feb 2015
Total Posts : 517
   Posted 3/22/2017 7:52 PM (GMT -6)   
Charlotte,

Quick catch with looking under your stoma for skin irritation. My stoma looks like a mushroom so that's not an issue I have to worry about.

Showering without a bag.....I have a cart of stoma supplies. I prepare everything for a quick bag change, get a plastic baggy (in case Freddie decides to become active) get all shower stuff ready and hop in. I am very careful that shower head is on a soft spray (not pulsate) and that it doesn't hit my stoma directly. (It made Freddie bleed once and we were both very very concerned...but he got better after a couple days. My stoma nurse told me not to let that happen again...Lol)

I have shower doors and I leave them closed while drying. (Freddie went crazy once and it took me an hour to clean up his mess and we had to have a whole new shower!) I immediately put on my new bag, then I spray the shower with lysol and let it set for 10 or 15 minutes, spray it down with water to rinse and repeat. Then I will wipe the whole thing down with a clean white towel that gets washed and then bleached. (I am paranoid that I will miss something so.....) Yes it is more work but gosh....it feels so good...and I have found that as long as I schedule them when Freddie is sleeping and I make it semi quick...no problems... 30 minute shower stimulated Freddie and we both got a work out.... Trial and error.

Please let us know how it goes with your spot. I had a small spot open up, they checked for hernia and fistula but both came back negative. It healed back shut after a couple of weeks.

I hope you enjoy your visit to the US.

Be well

Clo
06/12-07/14 symptoms start, no diagnosis.12/14 diagnosed UC & diverticulitis. 01/15 hosp- fistulas, DX changed to Crohns, 02/15 developed new skin rashes, eye problems and painful joints 06/15 Hosp.2x again.. new specialist.Said was worse case he's seen. 7/16 hosp 5mm Stricture stricturplasty to 15 mm.09/16 colostomy. Meds: Remicade, methtrexate, prednison,folic acid, vit D, calcium, pro biotic,

CharlotteR
Regular Member


Date Joined Jan 2017
Total Posts : 61
   Posted 3/24/2017 11:59 AM (GMT -6)   
Lots of luck and happiness to you as well Vicki!

Clo, thanks very much for sharing your experience! I think that I still need to learn when it's "sleeping." For now, I'll just continue to shower with the bag on.

So far, the spot looks the same. I have a doctor's appointment today, so hopefully it won't be too big of a deal. Good that you were negative on the hernia and fistula.

Some of my free supplies are supposed to arrive today so I'm looking forward to trying out the powder and the wipes smile.

cupcakespinkgal
Veteran Member


Date Joined Jun 2010
Total Posts : 1469
   Posted 3/24/2017 3:00 PM (GMT -6)   
I rarely shower without my bag mostly bc I feel like everything takes longer. For example my skin drying after a hot steamy shower seems to take longer than if I just cleaned with water and gauze.

In the beginning when I wanted my skin to breath more I would eat about a tablespoon of plain gelatin in a little water or tea and that always stops my stoma for at least a half hour.

I hope the doctor appointment went well.

When you use the stoma powder make sure to crust it/ wet it with the barrier wipe. Just powder will affect the adhesion. There are some good YouTube videos about it.

CharlotteR
Regular Member


Date Joined Jan 2017
Total Posts : 61
   Posted 3/25/2017 11:54 AM (GMT -6)   
Great to hear that there are youtube videos about crusting the stoma powder. I'll check those out now.

The doctor appointment went well thanks. The spot is going to be ok.
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