Tip/tricks to stop flange crimping

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imBen
Regular Member


Date Joined Sep 2016
Total Posts : 31
   Posted 4/17/2017 2:12 PM (GMT -6)   
Only had my stoma a week, no leaks so far and all is well. One thing I have noticed is the flange tends to crimp in places which makes me worry that is it going to leak. Is there anyway to stop it from doing that?

Thanks
Ben

ks1905
Veteran Member


Date Joined Sep 2005
Total Posts : 4387
   Posted 4/18/2017 8:23 AM (GMT -6)   
What kind of setup do you have (1-piece or 2-piece) convex or flat wafer? Who is the manufacture?
Keith

DX'd with Severe Pancolitis June 2005
Previous Meds: 5ASAs, Predisone, 6-MP. Remicade, Humira, Simponi, Cimzia & Cyclosporine
3-step J-Pouch surgery: 2013 & 2014

Current Condition: Chronic Pouchitis -- Not as bad as I thought it would be
Current Meds: Stelara
Total Hip Replacement: 12/16 -- Thanks Prednisone!!!
www.healingwell.com/community/default.aspx?f=38&m=3755226

imBen
Regular Member


Date Joined Sep 2016
Total Posts : 31
   Posted 4/18/2017 1:28 PM (GMT -6)   
I'm using the 1-piece dansac, flat bags

ks1905
Veteran Member


Date Joined Sep 2005
Total Posts : 4387
   Posted 4/20/2017 12:46 PM (GMT -6)   
I've never used Dansac. I think most people on here use Coloplast or Hollister products.

How's the recovery going?
Keith

DX'd with Severe Pancolitis June 2005
Previous Meds: 5ASAs, Predisone, 6-MP. Remicade, Humira, Simponi, Cimzia & Cyclosporine
3-step J-Pouch surgery: 2013 & 2014

Current Condition: Chronic Pouchitis -- Not as bad as I thought it would be
Current Meds: Stelara
Total Hip Replacement: 12/16 -- Thanks Prednisone!!!
www.healingwell.com/community/default.aspx?f=38&m=3755226

Sick4decades
New Member


Date Joined Mar 2017
Total Posts : 6
   Posted 4/20/2017 9:22 PM (GMT -6)   
I am one week into life with my stoma and currently using the 2 piece Coloplast system. I haven't had any flange issues. Post surgery I was on the 2 piece Hollister system with no issues as well. I think I would be concerned if either system had flange crimping issues. There are lots of choices out there...I am experimenting currently and so far both Hollister and Coloplast are great.
UC Diagnosed 1987---30 years is long enough! Surgery scheduled for 4/13/17

"Remission" every once in a while...more bad years than good.
Sulfasalazine, Folic Acid, Rowasa, Asacol, Prednisone (way too much for way too long), 6MP, Humira, Simponi, Entyvio.

finn1
New Member


Date Joined Jun 2015
Total Posts : 2
   Posted 4/21/2017 5:51 AM (GMT -6)   
Hi Ben,

Good to hear you're recovering well. The same thing happened to me too (using coloplast 1 piece), and like you I worried about it. What I found was that the better the job of shaving away hairs I did, the less this happened. I now - carefully - use a beard trimmer to cut away all hair before applying new setup.

Best of luck with recovery.

Finn

ks1905
Veteran Member


Date Joined Sep 2005
Total Posts : 4387
   Posted 4/21/2017 8:45 AM (GMT -6)   
I personally liked the 2-piece better than the 1-piece because I could change the bag out if I felt like it. Or easier to take off the bag & jump in the shower.

There are accessories like barrier strips that go around the bag and add more adhesive support. The work really well, almost too well because they can be difficult to remove.
Keith

DX'd with Severe Pancolitis June 2005
Previous Meds: 5ASAs, Predisone, 6-MP. Remicade, Humira, Simponi, Cimzia & Cyclosporine
3-step J-Pouch surgery: 2013 & 2014

Current Condition: Chronic Pouchitis -- Not as bad as I thought it would be
Current Meds: Stelara
Total Hip Replacement: 12/16 -- Thanks Prednisone!!!
www.healingwell.com/community/default.aspx?f=38&m=3755226

JayBee1
Regular Member


Date Joined Jul 2016
Total Posts : 23
   Posted 4/22/2017 6:17 PM (GMT -6)   
Hi Ben, glad to hear you've had the surgery and are recovering so well! My son is newly 22 and ten months out from his surgery. A life without daily meds, pain, and missing out on fun times with friends is worth the recovery! Best of luck to you.

imBen
Regular Member


Date Joined Sep 2016
Total Posts : 31
   Posted Yesterday 1:17 PM (GMT -6)   
Recovery is going good, bruising is almost gone, the glue on top of the keyhole holes is almost off and stoma is going down in size. No aches or pains part from the small blockage I had. Was destroying a bag of Doritos without drinking much liquid. It's one of those times where you think "ill just have a few" then the packet is completely empty smile

I'm going to be talking to the surgeon about a J-pouch but if for whatever reason the internal pouch didn't work, I'd be perfectly fine with a stoma. It's a piece of cake to change/look after.

Thanks
Ben

Post Edited (imBen) : 4/24/2017 1:20:10 PM (GMT-6)


ks1905
Veteran Member


Date Joined Sep 2005
Total Posts : 4387
   Posted Today 12:33 PM (GMT -6)   
Ben,

If you get small blockages they normally resolve themselves with time. As you heal, the likelyhood of you getting blockages decreases. Right now your intestine is still swollen from the surgery so you need to be careful.

To clear a blockage either hot tea or coffee works. I found that grape juice or wine works the best. Some people use carbonated drinks too. Even if you don't have a blockage these things will make you empty your bag sooner/more often.

I felt great after getting my colon removed too, I said the same thing that I could go back to a bag if I ever had to. I prefer not to have more surgeries but would do it if advised.
Keith

DX'd with Severe Pancolitis June 2005
Previous Meds: 5ASAs, Predisone, 6-MP. Remicade, Humira, Simponi, Cimzia & Cyclosporine
3-step J-Pouch surgery: 2013 & 2014

Current Condition: Chronic Pouchitis -- Not as bad as I thought it would be
Current Meds: Stelara
Total Hip Replacement: 12/16 -- Thanks Prednisone!!!
www.healingwell.com/community/default.aspx?f=38&m=3755226
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